[Areas of conflict in the caring of critically chronic ill children: an interpretative phenomenological study].

IF 0.3 4区医学 Q4 NURSING Pflege Pub Date : 2025-04-01 Epub Date: 2024-12-03 DOI:10.1024/1012-5302/a001017

Katharina Rüdisüli, Anna-Barbara Schlüer

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Abstract

Areas of conflict in the caring of critically chronic ill children: an interpretative phenomenological study Abstract: Background: Critically chronic ill children are a growing population due to the medical improvement in pediatric intensive care units (PICU). PICU nurses find themselves navigating the complexities between acute and palliative care for these patients, facing various challenges. Aim: This study explored the nurse's experiences in caring for children with critically chronic illnesses in the PICU. Methods: Twelve PICU nurses participated in semi-structured interviews. This qualitative study followed an interpretative phenomenological analysis. Results: Five experiential themes were identified that nurses address in their daily care. These are: supporting developmental care, partnership in interprofessional shared-decision-making, in-depth acknowledgment of the family system, the individual nursing experience, personal leadership and the organizational structure of the working environment in PICU settings. Conclusion: When PICU nurses experience the ability to provide individualized and optimal care to a child with a critically chronic illness, based on family-centered care and within interprofessional decision-making, they develop personal leadership skills which enable the balance within the challenges and complexities of nursing care in this population.

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[重症慢性病儿童护理中的冲突领域：解释性现象学研究]。

摘要：背景：随着儿科重症监护病房（PICU）医疗水平的提高，慢性危重症儿童的数量不断增加。PICU护士发现自己在这些患者的急性和姑息治疗之间导航的复杂性，面临着各种挑战。目的：探讨重症儿童重症监护病房的护理经验。方法：对12名重症监护病房护士进行半结构化访谈。本定性研究遵循解释性现象学分析。结果：确定了护士在日常护理中处理的五个体验主题。这些是：支持发展性护理，跨专业共同决策中的伙伴关系，对家庭制度的深入认识，个人护理经验，个人领导能力和PICU环境中工作环境的组织结构。结论：当PICU护士体验到为重症儿童提供个性化和最佳护理的能力时，基于以家庭为中心的护理和跨专业决策，他们培养了个人领导技能，使他们能够在这一人群的护理挑战和复杂性中取得平衡。

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来源期刊

Pflege NURSING-

CiteScore

1.40

自引率

20.00%

发文量

审稿时长

>12 weeks

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