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[Development and piloting of nurse-led mHealth care for heart failure patients: A feasibility study]. [以护士为主导的心力衰竭患者移动医疗护理的开发和试点:可行性研究]。
IF 0.8 4区 医学 Q4 NURSING Pub Date : 2024-10-29 DOI: 10.1024/1012-5302/a001019
Laura Rothmann, Madeleine Ritter-Herschbach, Julia Müller, Lena Rosenbusch, Stavroula Lili-Kokkori, Jörn Tongers, Daniel Sedding, Patrick Jahn

Development and piloting of nurse-led mHealth care for heart failure patients: A feasibility study Abstract: Background: Chronic heart failure (cHI) is the most common reason for hospitalization. Telemonitoring (TM) and Heart Failure Nurses (HFN) can detect decompensations and prevent hospitalizations. Aim: The aim was to develop and examine the feasibility of a digitally supported care-guided care model for cHI patients and to evaluate it in terms of adherence, technology usability, satisfaction, self-care and health literacy, disease knowledge, quality of life and health status. Methods: The study was conducted in a user-centered manner using mixed. The 6-month pilot was carried out in the patients' domestics using qualitative (e.g. focus groups) and quantitative methods (validated questionnaires). Results: A total of n = 30 cHI patients (age: M 66, SD 14 years; ♀ n = 10 [31%], ♂ n = 22 [69%]) completed the clinical testing. The intervention consisted of: Training, the TM application, nursing/medical advice and support and a digital library. Adherence to TM was over 80% (relative adherence: M 87, SD 16%; absolute adherence: M 82, SD 19%). Health literacy, disease knowledge and quality of life increased. The state of health improved and those affected felt more confident in dealing with the disease. No changes were recorded for self-care skills. Conclusions: Hybrid care is very well received and demonstrates the potential to promote self-care for those affected.

以护士为主导的心力衰竭患者移动医疗护理的开发与试点:可行性研究 摘要:背景:慢性心力衰竭(cHI)是最常见的住院原因。远程监护(TM)和心力衰竭护士(HFN)可检测失代偿情况并预防住院。目的:旨在开发和研究针对心力衰竭患者的数字支持护理指导模式的可行性,并从依从性、技术可用性、满意度、自我护理和健康知识、疾病知识、生活质量和健康状况等方面对其进行评估。研究方法研究以用户为中心,采用混合方式。使用定性方法(如焦点小组)和定量方法(有效问卷)在患者家中进行了为期 6 个月的试点。试验结果共有 n = 30 名 cHI 患者(年龄:男 66 岁,女 14 岁;♀ n = 10 [31%],♂ n = 22 [69%])完成了临床测试。干预措施包括培训、TM 应用程序、护理/医疗建议和支持以及数字图书馆。TM的坚持率超过80%(相对坚持率:M 87,SD 16%;绝对坚持率:M 82,SD 19%)。健康素养、疾病知识和生活质量都有所提高。健康状况有所改善,受影响者在应对疾病时更有信心。在自我护理技能方面没有记录到任何变化。结论混合护理深受欢迎,显示出促进患者自我护理的潜力。
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引用次数: 0
[On the effectiveness of a new advisory service for parents of children in need of care: a controlled study]. [关于为需要照顾的儿童的父母提供的新咨询服务的有效性:一项对照研究]。
IF 0.8 4区 医学 Q4 NURSING Pub Date : 2024-10-24 DOI: 10.1024/1012-5302/a001018
Stefan Nickel, Daniel Lüdecke, Isabella Helmreich, Jan Broll

On the effectiveness of a new advisory service for parents of children in need of care: a controlled study Abstract: Background: Families with children in need of care are exposed to great stress. This results in risks that often lead to a poor living and care situation for families. To support them, an innovative regionally anchored support service is being developed by so-called Family Health Partners (FGP) as part of the NEST research project. Aim/Objective: The primary endpoint of the study is the quality of life of the families. Secondary outcomes are resilience factors and associated measures as well as access to care services. Methods: The effectiveness of the FGP will be tested in a controlled study with four measurement times (baseline, after 6, 12 and 18 months) between January 2022 and April 2024. A total of 204 families with children in need of care were recruited for an intervention and control group. Multilevel models are used to analyze the longitudinal data. Results: Between T0 and T1 there are statistically significant improvements in the intervention group, especially in daily and social stress in the family, in mental health and resilience. In addition, knowledge about general benefit rights as well as specific support and relief offers for caring parents has increased. Conclusions: The results of the first two measurement times indicate that a positive change in quality of life, resilience and health literacy can be achieved through the FGP.

为需要照顾儿童的家长提供新咨询服务的有效性:一项对照研究 摘要:背景:有需要照顾儿童的家庭面临着巨大的压力。这就造成了一些风险,往往导致家庭生活和照料状况不佳。为了向他们提供支持,作为 NEST 研究项目的一部分,所谓的家庭健康合作伙伴(FGP)正在开发一种创新的地区性支持服务。目的/目标:研究的主要终点是家庭的生活质量。次要结果是复原力因素和相关措施以及获得护理服务的机会。方法:将在 2022 年 1 月至 2024 年 4 月期间开展一项对照研究,在四个测量时间段(基线、6 个月后、12 个月后和 18 个月后)测试家庭综合项目的有效性。干预组和对照组共招募了 204 个需要照料儿童的家庭。采用多层次模型对纵向数据进行分析。结果显示从 T0 到 T1,干预组在统计学上有显著改善,尤其是在家庭的日常和社会压力、心理健康和适应能力方面。此外,对一般福利权利以及为照顾子女的父母提供的具体支持和救济的了解也有所增加。结论前两次测量的结果表明,通过家庭性别问题方案,可以在生活质量、复原力和健康知识方面实现积极的变化。
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引用次数: 0
Ongoing and emerging issues for residential long-term care in the context of Covid-19. 在 Covid-19 的背景下,长期寄宿护理方面正在出现和新出现的问题。
IF 0.8 4区 医学 Q4 NURSING Pub Date : 2024-09-24 DOI: 10.1024/1012-5302/a001016
Markus Latzke, Alexander Braun, Manfred Pferzinger, Adelheid Schönthaler

Background: Long-term care facilities have been confronted with various workforce challenges, including a poor image within the nursing profession, a shortage of staff, and a growing demand for long-term care. Furthermore, these facilities have been significantly impacted by the pandemic and the respective measures with detrimental effects on residents, staff, and their family members. Aim: This study explored issues in working in residential long-term care from the perspective of nurses and their perception on amplifying and additional effects of Covid-19. Methods: It applied a qualitative design focusing on experiences and views of 25 LTC nurses working in Austrian long term care facilities during the pandemic. Data were collected by conducting in-depth interviews either virtually or in presence. The data analysis was conducted by applying a thematic analysis. Results: The four identified themes are: (1) Work motivation, (2) Dealing with vulnerability, (3) Human Resource Planning and (4) External view on long-term care. For each theme it was delineated which aspects have been present in the pre-Covid-19 situation and which became more visible or arose additionally. Conclusions: Nurturing connection between LTC nurses and with residents and relatives as well as signaling the positive aspects of LTC such as relationships, challenge and responsibility may allow to tackle Human Resource Planning issues.

背景:长期护理机构一直面临着各种劳动力挑战,包括护理行业形象不佳、人员短缺以及对长期护理日益增长的需求。此外,大流行病和相应的措施也对这些机构产生了重大影响,对居民、员工及其家庭成员造成了不利影响。目的:本研究从护士的角度探讨了在长期护理机构工作的问题,以及他们对 Covid-19 的放大效应和额外效应的看法。研究方法研究采用定性设计,重点关注大流行期间在奥地利长期护理机构工作的 25 名长期护理护士的经验和观点。通过虚拟或现场的深入访谈收集数据。数据分析采用主题分析法。结果:确定的四个主题是(1) 工作动力,(2) 应对脆弱性,(3) 人力资源规划和 (4) 外界对长期护理的看法。对每个主题都进行了划分,哪些方面在 Covid-19 之前就已存在,哪些方面变得更加明显或额外出现。结论:培养长期护理中心护士与居民和亲属之间的联系,以及宣传长期护理中心的积极方面,如关系、挑战和责任,可以解决人力资源规划问题。
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引用次数: 0
Primary nursing in the intensive care unit. 重症监护室的基础护理。
IF 0.8 4区 医学 Q4 NURSING Pub Date : 2024-09-12 DOI: 10.1024/1012-5302/a001015
Lars Krüger, Thomas Mannebach, Franziska Wefer, Gero Langer, René Schramm, Christiane Luderer

Background: Primary nursing (Process Responsible Nursing; PRN) is a nursing organization model, practiced in intensive care units (ICUs), but implementation is challenging. This paper focuses on the qualitative process analysis of the development and implementation of PRN in an ICU at a German university hospital. Aims: Aim was to record the perception of changes in nursing practice due to the introduction of PRN and obtain information on implementation and further optimization perceived by nurses. Method: A qualitative process analysis was done. Data collection took place at three defined times (immediately before implementation and 6 and 12 months after) and each included a focus group interview (FG) and a 5-day ICU ward process analysis (WA) in the form of participant observation. The analysis of FG and WA was carried out according to Kuckartz's content-structuring qualitative content analysis. Findings: The main categories communication, care planning and integration of patients and relatives in care and 13 subcategories with a cross-sectional category could be identified. Positive effects of PRN were found, particularly concerning relatives. The optimization potential included handover, visit appointments, the documentation system and adjustments to the visiting times. Conclusion: The qualitative analysis was able to show changes during the introduction of PRN, e.g. in communication and care planning, but also challenges like visit appointments or the documentation system in nursing practice.

背景:基础护理(Process Responsible Nursing;PRN)是一种护理组织模式,在重症监护病房(ICU)中得到了实践,但其实施却极具挑战性。本文重点分析了德国一所大学医院重症监护室发展和实施 PRN 的定性过程。目的:记录护士对引入 PRN 所带来的护理实践变化的感知,并获取有关实施和进一步优化的信息。方法:采用定性过程分析法:采用定性过程分析法。数据收集在三个特定时间进行(实施前、实施后 6 个月和 12 个月),每个时间段包括一次焦点小组访谈(FG)和以参与观察形式进行的为期 5 天的 ICU 病房过程分析(WA)。对 FG 和 WA 的分析是根据 Kuckartz 的内容结构定性内容分析法进行的。研究结果主要分为沟通、护理计划和患者及亲属参与护理,以及 13 个子类别和一个交叉类别。发现了 PRN 的积极影响,尤其是对亲属的影响。优化潜力包括交接班、探视预约、文件系统和探视时间的调整。结论定性分析能够显示在引入 PRN 期间的变化,例如在沟通和护理计划方面的变化,但也存在挑战,例如护理实践中的探视预约或文件系统。
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引用次数: 0
[The physical and mental health of home care recipients: A quantitative secondary data analysis]. [家庭护理对象的身心健康:量化二手数据分析]。
IF 0.8 4区 医学 Q4 NURSING Pub Date : 2024-09-09 DOI: 10.1024/1012-5302/a001008
Azra Karabegovic, Esther Indermaur, Katharina Fierz

The physical and mental health of home care recipients: A quantitative secondary data analysis Abstract: Background: Although more and more people are being supported by home care services, there is a lack of information regarding the health limitations and needs of this group. Aim: The objective of this study was to examine the health status of people with home care needs in Switzerland. Method: A secondary data analysis based on the HomeCareData database, which contains routine data on people with home care requirements in Switzerland, was conducted. All cases with a fully completed Resident Assessment Instrument (RAI-HC) were included. Data on various items of the RAI-HC and other standardized scale scores with reference to physical or mental health were analyzed using descriptive statistics. Results: In total, 74,674 data records were evaluated. Physical limitations most frequently manifested in the form of fatigue (40.6%), pain (29.7%) or within the scope of impaired hearing (21.9%). Around a third of individuals sampled had experienced a fall in the last 90 days. With regard to mental health, the most frequent signs were fear of falling (33.5%), loneliness (13.9%), depression (12.8%) and anxiety (4%). Approximately one third showed signs of impaired cognition and polypharmacy was detected in almost 68% of those evaluated. Conclusion: Considering the comparatively high prevalence of mental health problems among people with home care requirements, there is a need to develop appropriate skills of employees in home care services and for adequate care planning.

家庭护理对象的身心健康:量化二手数据分析 摘要:背景:尽管越来越多的人得到了家庭护理服务的支持,但有关这一群体的健康限制和需求的信息却十分匮乏。目的:本研究旨在调查瑞士需要家庭护理者的健康状况。研究方法研究以 HomeCareData 数据库为基础进行了二次数据分析,该数据库包含瑞士有家庭护理需求者的常规数据。所有完整填写了居民评估工具(RAI-HC)的病例都被纳入其中。采用描述性统计方法分析了 RAI-HC 各项数据以及其他有关身体或精神健康的标准化量表评分。结果:共评估了 74,674 份数据记录。身体限制最常见的表现形式是疲劳(40.6%)、疼痛(29.7%)或听力受损(21.9%)。约三分之一的受访者在过去 90 天内曾摔倒过。在心理健康方面,最常见的症状是害怕跌倒(33.5%)、孤独(13.9%)、抑郁(12.8%)和焦虑(4%)。约有三分之一的人有认知能力受损的迹象,近 68% 的被评估者被检测出服用多种药物。结论考虑到有居家护理需求的人中精神健康问题的发生率相对较高,有必要培养居家护理服务从业人员的适当技能,并制定适当的护理计划。
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引用次数: 0
[Psychosocial stress and working conditions of nursing home staff in Covid-19 pandemic: A cross-sectional study]. [护理院工作人员在 Covid-19 大流行中的社会心理压力和工作条件:一项横断面研究]。
IF 0.8 4区 医学 Q4 NURSING Pub Date : 2024-08-28 DOI: 10.1024/1012-5302/a001007
Isabella Sappl, Greta Uhlenbrock, Anne Thier, Susanne Schulze, Michael A Rapp, Jacob Spallek, Christine Holmberg

Psychosocial stress and working conditions of nursing home staff in Covid-19 pandemic: A cross-sectional study Abstract: Background: With the onset of the Covid-19 pandemic in March 2020 there were numerous changes in the daily professional lives of healthcare professionals. Aim: Since the focus has been mainly on hospital staff so far, it is also important to watch the care situation in old people's and nursing homes. This study aimed to investigate the impact of the Covid-19 pandemic on the daily professional life, the psychosocial situation and the interpersonal relationships of nursing staff in old people's and nursing homes in Brandenburg. Methods: Cross-sectional survey of nursing staff from old people's and nursing homes in Brandenburg in the period from August to December 2020. The questionnaires were analysed using descriptive statistics and qualitative thematic analysis. Results: On the one hand, the increased workload with more difficult working conditions due to Covid-19 hygiene measures or increased working hours led to physical and psychosocial stress. In private life, increased social isolation was evident and changes in interpersonal relationships were stressful. On the other hand, the participants reported recognition and increased professional political interest. Conclusions: The Covid 19 pandemic highlighted pre-existing pressures on caregivers. In the future, it is important to improve the known workloads for nursing staff in old people's and nursing homes and to work out measures to counteract an increase of stress in situations like the pandemic.

Covid-19大流行时养老院工作人员的社会心理压力和工作条件:一项横断面研究 摘要:背景:随着 2020 年 3 月 Covid-19 大流行的爆发,医护人员的日常生活发生了许多变化。目的:由于目前关注的焦点主要集中在医院工作人员身上,因此观察养老院和护理院的护理情况也很重要。本研究旨在调查 Covid-19 大流行对勃兰登堡州养老院和护理院护理人员的日常职业生活、社会心理状况和人际关系的影响。调查方法在 2020 年 8 月至 12 月期间对勃兰登堡州养老院和疗养院的护理人员进行横向调查。采用描述性统计和定性主题分析法对问卷进行分析。结果显示一方面,由于 Covid-19 卫生措施或工作时间的增加,工作量增加,工作条件更加艰苦,这导致了身体和心理压力。在私人生活方面,社会隔离明显增加,人际关系的变化也带来了压力。另一方面,参与者表示他们得到了认可,专业政治兴趣也有所提高。结论Covid 19 大流行凸显了护理人员原有的压力。今后,重要的是要改善老人院和疗养院护理人员的已知工作量,并制定措施来应对大流行病等情况下压力的增加。
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引用次数: 0
[Nurses' health during the COVID-19 pandemic in Switzerland: A longitudinal study with mixed methods design]. [瑞士 COVID-19 大流行期间护士的健康状况:采用混合方法设计的纵向研究]。
IF 0.8 4区 医学 Q4 NURSING Pub Date : 2024-08-28 DOI: 10.1024/1012-5302/a001009
Claudia Huber, Ewald Schorro, Gabriela Hofstetter-Hefti, Jonathan Jubin, Philippe Delmas, Annie Oulevey Bachmann, Ingrid Gilles, Claudia Ortoleva Bucher

Nurses' health during the COVID-19 pandemic in Switzerland: A longitudinal study with mixed methods design Abstract: Background: The COVID19 pandemic has had a significant impact on healthcare systems worldwide. Nurses have played a crucial role in responding to the crisis, often at the expense of their own health and wellbeing. Aim: The aim of the study was to investigate the physical and mental health status as well as the resources of certified nurses during the pandemic, in German-speaking Switzerland. Methods: In a longitudinal study with a mixed methods design, data were collected among nurses from acute hospitals between 2021 and 2022 using a questionnaire survey and focus group interviews. The data were analysed using multiple regression analysis, knowledge mapping and the Neuman system model. Results: The results show improvements in health, quality of life and job satisfaction, and a decrease in stress; whereby influencing extrapersonal factors are, among others, reorganisations within hospitals with the active involvement of nurses. On the interpersonal level, support from managers or colleagues proved helpful. At the intrapersonal level, the recognition of the nurses' competencies was deemed particularly important, to help them to remain healthy during the pandemic. Conclusions: Increased recognition, participation, training and career opportunities as well as flexible working models need to be implemented in the long term to ensure a sustainable improvement of the health and well-being of nurses.

瑞士 COVID-19 大流行期间护士的健康状况:采用混合方法设计的纵向研究 摘要:背景:COVID19 大流行对全球医疗保健系统产生了重大影响。护士在应对危机中发挥了至关重要的作用,但往往牺牲了自身的健康和福祉。目的:本研究旨在调查瑞士德语区注册护士在大流行期间的身心健康状况和资源情况。研究方法在一项采用混合方法设计的纵向研究中,通过问卷调查和焦点小组访谈收集了 2021 年至 2022 年期间急症医院护士的数据。采用多元回归分析、知识图谱和纽曼系统模型对数据进行了分析。结果显示结果表明,护士的健康状况、生活质量和工作满意度有所改善,压力也有所减轻;其中,影响外部因素的是医院内部的重组,护士也积极参与其中。在人际交往方面,来自管理人员或同事的支持被证明是有帮助的。在人际关系方面,管理者或同事的支持被证明是有帮助的;在人际关系方面,对护士能力的认可被认为是特别重要的,这有助于她们在大流行病期间保持健康。结论从长远来看,需要增加认可、参与、培训和职业机会以及灵活的工作模式,以确保持续改善护士的健康和福祉。
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引用次数: 0
[Advance care planning in the acute hospital: A qualitative analysis of terms and conditions]. [急症医院的预先护理计划:条款和条件的定性分析]。
IF 0.8 4区 医学 Q4 NURSING Pub Date : 2024-08-22 DOI: 10.1024/1012-5302/a001011
Miriam Markgraf, Gabriele Meyer, Änne Kirchner

Advance care planning in the acute hospital: A qualitative analysis of terms and conditions Abstract: Background: Advance Care Planning (ACP) is an internationally established concept aimed to facilitate anticipatory care planning in the event of future inability to consent. In Germany, ACP is currently not regularly offered to patients in acute care hospitals. Aim: We aimed to identify preconditions for implementation of ACP in acute care hospitals in Germany through review of the international literature and expert interviews. Methods: A systematic literature search was carried out in the databases MEDLINE and CINAHL for internationally used strategies for implementing ACP in acute care hospitals. Consecutively, a guide for interviews with experts to evaluate the strategies was developed. Interviews were analyzed by qualitative content analysis according to Mayring. Results: Out of 13 included publications, 17 preconditions were identified and assigned to 16 categories after evaluation by experts. In international ACP programs, it was described how to proceed and organize the ACP conversation. German experts emphasized that appropriate preconditions, such as sufficient time resources and training, must be granted, whereas the literature search revealed the conversation process and organization as important determinants. Conclusions: The implementation of ACP programs is conceivable, but requires specific conditions as legal regulation and defining and structuring of the processes.

急症医院的预先护理计划:对条款和条件的定性分析 摘要:背景:预先护理计划(Advance Care Planning,ACP)是一个国际公认的概念,旨在为将来无法表示同意的患者提供预先护理计划。在德国,急症护理医院目前并未定期向患者提供 ACP。目的:我们旨在通过查阅国际文献和专家访谈,确定在德国急症护理医院实施 ACP 的先决条件。我们在 MEDLINE 和 CINAHL 数据库中进行了系统的文献检索,以了解在急症护理医院实施 ACP 的国际通用策略。随后,编写了一份专家访谈指南,用于评估这些策略。根据 Mayring 方法对访谈内容进行定性分析。结果:在收录的 13 篇出版物中,经专家评估后确定了 17 项前提条件,并将其归入 16 个类别。国际 ACP 计划介绍了如何开展和组织 ACP 对话。德国专家强调,必须提供适当的先决条件,如充足的时间资源和培训,而文献检索显示,谈话过程和组织是重要的决定因素。结论:非加太计划的实施是可以想象的,但需要具体的条件,如法律规定、程序的定义和组织。
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引用次数: 0
[Integrated regulations for medical and nursing care in long-term care: qualitative results of the process evaluation: Innovative form of care in long-term care]. [长期护理中的医疗和护理综合规定:过程评估的定性结果:长期护理中的创新护理形式]。
IF 0.8 4区 医学 Q4 NURSING Pub Date : 2024-08-14 DOI: 10.1024/1012-5302/a001010
Sabine Bunjes-Schmieger, Iris Burkholder, Dagmar Renaud

Integrated regulations for medical and nursing care in long-term care: qualitative results of the process evaluation: Innovative form of care in long-term care Abstract: Background: Long-term care patients, most of whom suffer from multimorbidity, are dependent on appropriate medical and nursing care. Inadequate interdisciplinary cooperation structures and processes pose a challenge for nursing care when residents' conditions deteriorate and can lead to hospital admissions that could potentially be avoided. Objective: Structures and processes of interdisciplinary cooperation were developed and implemented as part of the SaarPHIR innovation fund project "Saarländische PflegeHeim Versorgung Integriert Regelhaft". The aims of the qualitative part of the process evaluation were the subjective assessment of the structural and process level of the complex intervention across all project phases from the perspective of the participants as well as an analysis of the context factors. Method: Qualitative interviews were conducted with all participating facilities and the medical care communities formed as part of the project in order to record the subjective experiences gained in the implementation and impact of the complex intervention. The data analysis was carried out using qualitative content analysis. Results: Both professional groups perceive a structural organizational change that has a positive effect on interdisciplinary cooperation. The benefits in terms of care are rated as high. Conclusion: Various measures (e.g. pre-weekend ward rounds, extended on-call duty) at the structural and process level should be retained when transferring to standard care.

长期护理中的医护一体化规定:过程评估的定性结果:长期护理中的创新护理形式 摘要:背景:长期护理患者大多患有多种疾病,需要适当的医疗和护理。当住院病人的病情恶化时,跨学科合作结构和流程的不足给护理工作带来了挑战,并可能导致入院治疗,而这本来是可以避免的。目标:作为 SaarPHIR 创新基金项目 "Saarländische PflegeHeim Versorgung Integriert Regelhaft "的一部分,制定并实施了跨学科合作的结构和流程。过程评估的定性部分旨在从参与者的角度对项目各阶段复杂干预的结构和过程水平进行主观评估,并对背景因素进行分析。方法:对所有参与项目的机构和医疗保健社区进行了定性访谈,以记录在综合干预措施的实施和影响过程中获得的主观体验。数据分析采用定性内容分析法。结果:两个专业群体都认为组织结构的变化对跨学科合作产生了积极影响。在护理方面的收益被评为很高。结论在向标准护理转变时,应保留结构和流程层面的各种措施(如周末前查房、延长值班时间)。
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引用次数: 0
[Chat-based cancer counseling in Switzerland: A reflexive thematic analysis of chat protocols focused on cancer survivors' needs]. [瑞士基于聊天的癌症咨询:针对癌症幸存者需求的聊天协议的反思性主题分析]。
IF 0.8 4区 医学 Q4 NURSING Pub Date : 2024-08-01 Epub Date: 2024-03-07 DOI: 10.1024/1012-5302/a000986
Jörg Haslbeck, Flurina Casanova, Diana Cascais, Sandra Staudacher

Chat-based cancer counseling in Switzerland: A reflexive thematic analysis of chat protocols focused on cancer survivors' needs Abstract: Background: The number of people diagnosed with cancer and continue to live as cancer survivors is growing. Together with their relatives, they have information and counseling needs during the illness trajectory. With Cancerline, the Swiss Cancer League offers a chat-based counseling service for cancer survivors. Research question/objective: For the first time, the qualitative study investigated which needs cancer survivors express in Cancerline to gain insights for the further development and quality assurance of chat-based cancer counseling. Methods: Based on the principles of Interpretive Description, 669 chat counseling transcripts were analyzed using Braun et al. (2018) reflexive thematic analysis in an iterative process in six analysis steps. Results: Cancer survivorship needs in Cancerline are multifaceted, and we have identified nine themes: need anonymous chat to communicate, get informed, weigh ethical dilemmas and make decisions, seek meaning and hope, find ways to manage burdensome emotions, resolve social conflict and not burden others, feel understood and give space to own needs, clarify role as significant other acting correctly and seeking security. Conclusions: Chat-based counseling may contribute to supporting cancer survivors with information needs about cancer in a flexible way that is close to everyday life. Professionals can sensitize survivors to chat-based counseling, which makes low-threshold counseling accessible.

瑞士基于聊天的癌症咨询:针对癌症幸存者需求的聊天协议的反思性主题分析 摘要:背景:被诊断为癌症并作为癌症幸存者继续生活的人数正在不断增加。他们及其亲属在患病期间需要信息和咨询。瑞士癌症联盟(Swiss Cancer League)通过癌症热线(Cancerline)为癌症幸存者提供聊天咨询服务。研究问题/目标:这项定性研究首次调查了癌症幸存者在 Cancerline 中表达的需求,从而为进一步开发基于聊天的癌症咨询服务并保证其质量提供启示。研究方法根据解释性描述原则,采用布劳恩等人(2018)的反思性主题分析法,分六个分析步骤对 669 份聊天咨询记录进行了迭代分析。分析结果癌症幸存者在 Cancerline 中的需求是多方面的,我们确定了九个主题:需要匿名聊天来沟通、获取信息、权衡伦理困境并做出决定、寻求意义和希望、找到管理繁重情绪的方法、解决社会冲突且不给他人造成负担、感觉被理解并给自己的需求留出空间、明确作为重要他人的角色正确行事并寻求安全感。结论以聊天为基础的心理咨询有助于以贴近日常生活的灵活方式支持癌症幸存者对癌症信息的需求。专业人员可以提高幸存者对聊天式咨询的敏感度,从而使低门槛咨询变得容易获得。
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引用次数: 0
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