Victoria Schei , Anne Berit Guttormsen , Lina S.T. Lernevall , Stian Kreken Almeland , Margrethe Aase Schaufel
{"title":"Parental experiences, coping and the impact of Family Burn Camp after paediatric burn injury: A qualitative study","authors":"Victoria Schei , Anne Berit Guttormsen , Lina S.T. Lernevall , Stian Kreken Almeland , Margrethe Aase Schaufel","doi":"10.1016/j.burns.2024.107344","DOIUrl":null,"url":null,"abstract":"<div><h3>Background</h3><div>Paediatric burn injuries constitute a transformative event for parents, shaping their lives in profound ways. This study explores parental experiences, coping mechanisms, and the impact of Family Burn Camp in the aftermath of paediatric burn injuries.</div></div><div><h3>Methods</h3><div>A qualitative study was conducted in 2019 comprising two focus group interviews with 15 parents at the Family Burn Camp in Stavern, Norway. Data was analysed using systematic text condensation.</div></div><div><h3>Results</h3><div>Four categories emerged outlining parental experiences and coping strategies: 1) From acute chaos to a scarred future; 2) The paradox of being a helper and being the one who needs help; 3) Being isolated as parents of burnt children and 4) Coping through dialogue, empowerment and Family Burn Camp. Balancing the role of caregiver while seeking support, parents often experienced emotional breakdown after completion of the child’s wound treatment, leading to loss of work function. Coping strategies emerged through fostering the child's self-esteem, with Family Burn Camp emerging as a beacon, deemed “<em>worth more than a thousand therapy sessions</em>”.</div></div><div><h3>Conclusions</h3><div>Our findings suggest that increased psychological and economic support are needed during and after the child's physical recovery. Family Burn Camp is a crucial element in the rehabilitation process for the whole family.</div></div>","PeriodicalId":50717,"journal":{"name":"Burns","volume":"51 2","pages":"Article 107344"},"PeriodicalIF":2.9000,"publicationDate":"2024-12-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Burns","FirstCategoryId":"3","ListUrlMain":"https://www.sciencedirect.com/science/article/pii/S030541792400384X","RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"CRITICAL CARE MEDICINE","Score":null,"Total":0}
引用次数: 0
Abstract
Background
Paediatric burn injuries constitute a transformative event for parents, shaping their lives in profound ways. This study explores parental experiences, coping mechanisms, and the impact of Family Burn Camp in the aftermath of paediatric burn injuries.
Methods
A qualitative study was conducted in 2019 comprising two focus group interviews with 15 parents at the Family Burn Camp in Stavern, Norway. Data was analysed using systematic text condensation.
Results
Four categories emerged outlining parental experiences and coping strategies: 1) From acute chaos to a scarred future; 2) The paradox of being a helper and being the one who needs help; 3) Being isolated as parents of burnt children and 4) Coping through dialogue, empowerment and Family Burn Camp. Balancing the role of caregiver while seeking support, parents often experienced emotional breakdown after completion of the child’s wound treatment, leading to loss of work function. Coping strategies emerged through fostering the child's self-esteem, with Family Burn Camp emerging as a beacon, deemed “worth more than a thousand therapy sessions”.
Conclusions
Our findings suggest that increased psychological and economic support are needed during and after the child's physical recovery. Family Burn Camp is a crucial element in the rehabilitation process for the whole family.
期刊介绍：
Burns aims to foster the exchange of information among all engaged in preventing and treating the effects of burns. The journal focuses on clinical, scientific and social aspects of these injuries and covers the prevention of the injury, the epidemiology of such injuries and all aspects of treatment including development of new techniques and technologies and verification of existing ones. Regular features include clinical and scientific papers, state of the art reviews and descriptions of burn-care in practice.
Topics covered by Burns include: the effects of smoke on man and animals, their tissues and cells; the responses to and treatment of patients and animals with chemical injuries to the skin; the biological and clinical effects of cold injuries; surgical techniques which are, or may be relevant to the treatment of burned patients during the acute or reconstructive phase following injury; well controlled laboratory studies of the effectiveness of anti-microbial agents on infection and new materials on scarring and healing; inflammatory responses to injury, effectiveness of related agents and other compounds used to modify the physiological and cellular responses to the injury; experimental studies of burns and the outcome of burn wound healing; regenerative medicine concerning the skin.
京公网安备 11010802042870号
京ICP备2023020795号-1
分享
求助内容：
应助结果提醒方式：
扫码关注我们
