School Satisfaction Predicts Quality of Life for Children With Severe Developmental Disabilities and Their Families

IF 1.9 3区医学 Q2 PSYCHOLOGY, EDUCATIONAL Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-01-30 DOI:10.1111/jar.70013

Sarah E. Bjornson, Adrienne Perry

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Abstract

Background

Children with severe developmental disabilities are frequently excluded from research, and little is known about their quality of life (QoL). Using a mixed-methods approach, this study examined relationships between school factors and QoL for these children and their families.

Method

171 parents of children with severe developmental disabilities completed questionnaires. Hierarchical regression analyses were performed examining predictors of child and family QoL. Of the 171 parents, 123 responded to an open-ended question about their children's school experiences, and responses were analysed qualitatively.

Results

Significant predictors of QoL included challenging behaviours, diagnoses, parent self-efficacy, social support and (importantly) school satisfaction. Seven themes related to school experiences were identified qualitatively.

Conclusion

Many factors contribute to QoL. School has a significant influence on children and their parents and families. Different children have different strengths and difficulties, and school systems need to work with parents to optimise outcomes.

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学校满意度预测严重发育障碍儿童及其家庭的生活质量。

背景：严重发育障碍儿童经常被排除在研究之外，对他们的生活质量（QoL）知之甚少。本研究采用混合方法，考察了学校因素与这些儿童及其家庭生活质量之间的关系。方法：171名重度发育障碍儿童家长填写问卷。分层回归分析检查儿童和家庭生活质量的预测因子。在171位家长中，123位回答了一个关于孩子学校经历的开放式问题，并对这些回答进行了定性分析。结果：生活质量的显著预测因子包括挑战行为、诊断、家长自我效能、社会支持和（重要的）学校满意度。定性地确定了与学校经历有关的七个主题。结论：影响生活质量的因素较多。学校对孩子及其父母和家庭有着重大的影响。不同的孩子有不同的优势和困难，学校系统需要与家长合作，以优化结果。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Journal of Applied Research in Intellectual Disabilities Multiple-

CiteScore

4.70

自引率

12.50%

发文量

期刊介绍： JARID is an international, peer-reviewed journal which draws together findings derived from original applied research in intellectual disabilities. The journal is an important forum for the dissemination of ideas to promote valued lifestyles for people with intellectual disabilities. It reports on research from the UK and overseas by authors from all relevant professional disciplines. It is aimed at an international, multi-disciplinary readership. Topics covered include community living, quality of life, challenging behaviour, communication, sexuality, medication, ageing, supported employment, family issues, mental health, physical health, autism, economic issues, social networks, staff stress, staff training, epidemiology and service provision.