The Transition to Adulthood From the Perspectives of Young People With Cerebral Palsy and Their Caregivers: A Systematic Literature Review

Abstract

Background

The transition to adulthood can be a complex time in the lives of young people with cerebral palsy (CP). There is a lack of research examining this period from the perspectives of young people and their caregivers.

Objective/Aims

The review sought to identify challenging experiences during the transition to adulthood from the perspectives of young people with CP and their caregivers and to examine factors that acted as barriers and enablers to positive transition outcomes.

Methods

A systematic literature review of peer-reviewed, empirical studies was completed. Thirteen articles were extracted and analysed using a narrative synthesis approach.

Results

The findings identified challenges for the young people in the areas of independent living, sexuality and relationships, navigating health and social care systems, feeling different from their peers and increasing autonomy. Barriers contributing to negative experiences included overprotective parents and a lack of resources. Greater motor ability, supportive parents and knowledgeable healthcare practitioners enabled positive transition outcomes.

Conclusions

The transition to adulthood presents multiple challenges as perceived by young people with CP and their caregivers. Both parties require greater support to address these challenges during this time. Further research is required to develop interventions that can support this transition experience.