Terminally Ill Patients: Self-Care Abilities and Compassion in Nurses and Informal Caregivers.

IF 1.4 The American journal of hospice & palliative care Pub Date : 2026-02-01 Epub Date: 2025-02-02 DOI:10.1177/10499091251317585
Dilek Baykal, Ezgi Nur Akar, Aysenur Sahin Eraslan, Mihriban Yilmaz
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Abstract

BackgroundPalliative care units are centers where comprehensive care is provided, primarily by nurses, but also by informal caregivers who are usually the patients' relatives. The difference is that nurses fulfill this duty professionally, and their levels of self-care and compassion are not expected to be affected by their work. In this regard, comparing the levels of compassion and self-care in patients' relatives and nurses will provide evidence to help raise awareness and support both groups.AimsThis study aimed to determine the relationship between the self-care abilities and compassion of nurses and informal caregivers.DesignThis was a descriptive, cross-sectional study.Settings/ParticipantsThe study was conducted between August 2023 and July 2024 in palliative care units in Istanbul. A total of 98 nurses and 96 informal caregivers participated in the study. They were administered the Exercise of Self-Care Agency Scale and the Compassion Scale.ResultsThe mean compassion scores of the informal caregivers and nurses were high, with no significant difference (P > .05). However, a significant difference was observed in their self-care ability scores, with nurses scoring lower in self-care compared to informal caregivers (P < .05).ConclusionsNurses working in palliative care had a similar level of compassion as the primary relatives of the patients. However, it is concerning that the nurses had less ability to engage in self-care than the informal caregivers. This result indicates that nurses need support to enhance their self-care.

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临终病人:护士和非正式照顾者的自我照顾能力和同情心。
背景:姑息治疗单位是提供全面护理的中心,主要由护士提供,但也有通常是患者亲属的非正式护理人员提供。不同之处在于,护士专业地履行这一职责,他们的自我照顾和同情心水平不会受到工作的影响。在这方面,比较患者亲属和护士的同情和自我保健水平将提供证据,帮助提高认识和支持这两个群体。目的:本研究旨在探讨护士和非正式照护者自我照顾能力与同情心的关系。设计:这是一项描述性横断面研究。环境/参与者:该研究于2023年8月至2024年7月在伊斯坦布尔的姑息治疗单位进行。共有98名护士和96名非正式护理人员参与了研究。分别采用自我照顾能力量表和同情心量表。结果:非正式护理人员和护士的平均同情得分较高,但差异无统计学意义(P < 0.05)。然而,他们的自我照顾能力得分有显著差异,护士的自我照顾能力得分低于非正式照顾者(P < 0.05)。结论:从事姑息治疗的护士与患者的主要亲属具有相似的同情心。然而,令人担忧的是,护士从事自我护理的能力低于非正式照顾者。本研究结果提示护理人员需要支持以提高自我护理能力。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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