Involving patients and the public in cancer associated thrombosis research: A strategy for success

Q4 Medicine Thrombosis Update Pub Date : 2025-03-01 Epub Date: 2024-12-13 DOI:10.1016/j.tru.2024.100196

Michelle Edwards , Kathy Seddon , Elin Baddeley , Anne Gulbech Ording , Mark Pearson , Isabelle Mahe , Simon Mooijaart , Frederikus A. Klok , Simon I.R. Noble , SERENITY consortium

{"title":"Involving patients and the public in cancer associated thrombosis research: A strategy for success","authors":"Michelle Edwards , Kathy Seddon , Elin Baddeley , Anne Gulbech Ording , Mark Pearson , Isabelle Mahe , Simon Mooijaart , Frederikus A. Klok , Simon I.R. Noble , SERENITY consortium","doi":"10.1016/j.tru.2024.100196","DOIUrl":null,"url":null,"abstract":"<div><div>The role of public involvement (PI) in biomedical research has never been greater, with accumulating evidence demonstrating its ability to improve the quality of research and the likelihood of translating findings into clinical practice. As the demand for meaningful PI in research continues to grow, research teams are required to provide more than a tokenistic acknowledgement of the role of public contributors to the success of a project.</div><div>This paper presents an overview of PI as a whole and specifically reflects on how it has added value, to an international cancer associated thrombosis research program. It introduces tools designed to guide teams unfamiliar with PI, introducing the Public Involvement in Research Impact Toolkit (PIRIT) which provides a structure for planning and reporting on PI activities from the study inception through conduct, to its impact.</div></div>","PeriodicalId":34401,"journal":{"name":"Thrombosis Update","volume":"18 ","pages":"Article 100196"},"PeriodicalIF":0.0000,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Thrombosis Update","FirstCategoryId":"1085","ListUrlMain":"https://www.sciencedirect.com/science/article/pii/S2666572724000385","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2024/12/13 0:00:00","PubModel":"Epub","JCR":"Q4","JCRName":"Medicine","Score":null,"Total":0}

引用次数: 0

Abstract

The role of public involvement (PI) in biomedical research has never been greater, with accumulating evidence demonstrating its ability to improve the quality of research and the likelihood of translating findings into clinical practice. As the demand for meaningful PI in research continues to grow, research teams are required to provide more than a tokenistic acknowledgement of the role of public contributors to the success of a project.

This paper presents an overview of PI as a whole and specifically reflects on how it has added value, to an international cancer associated thrombosis research program. It introduces tools designed to guide teams unfamiliar with PI, introducing the Public Involvement in Research Impact Toolkit (PIRIT) which provides a structure for planning and reporting on PI activities from the study inception through conduct, to its impact.

查看原文

微信好友朋友圈 QQ好友复制链接

本刊更多论文

让病人和公众参与癌症相关血栓研究：成功的策略

公众参与（PI）在生物医学研究中的作用从未如此之大，越来越多的证据表明它能够提高研究质量，并有可能将研究结果转化为临床实践。随着对研究中有意义的PI的需求不断增长，研究团队需要提供的不仅仅是对公共贡献者在项目成功中的作用的象征性承认。本文概述了PI作为一个整体，并具体反映了它如何增加价值，国际癌症相关血栓研究项目。它介绍了旨在指导不熟悉PI的团队的工具，介绍了公众参与研究影响工具包（PIRIT），该工具包提供了从研究开始到实施到其影响的计划和报告PI活动的结构。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

求助全文

约1分钟内获得全文去求助

来源期刊