The Lived Experience of Suffering by Nigerian Female Breast Cancer Survivors: A Phenomenological Perspective.

IF 1.8 Q3 HEALTH CARE SCIENCES & SERVICES Journal of Patient Experience Pub Date : 2025-01-28 eCollection Date: 2025-01-01 DOI:10.1177/23743735251314858
Chinomso Ugochukwu Nwozichi, Margaret Olutosin Ojewale, Omolabake Salako, Deliverance Brotobor, Elizabeth Olaogun
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Abstract

Breast cancer is a significant public health concern globally, and its impact extends beyond physical survival. Survivors often grapple with a myriad of challenges, including psychological distress, social isolation, and financial hardship. These challenges are often exacerbated in low-resource settings like Nigeria, where limited access to quality healthcare, socioeconomic disparities, and cultural stigma surrounding cancer can significantly impact the quality of life for survivors. This study aims to explore the suffering perceived by long-term breast cancer survivors in Nigeria, focusing on their lived experiences during and after treatment. Using a phenomenological approach, in-depth interviews were conducted with 22 women who have survived breast cancer for over 5 years. Data were analyzed using thematic analysis to capture the essence of their suffering, allowing for a deep understanding of their lived experiences. Five main domains emerged: (1) Physical Suffering, (2) Emotional Distress, (3) Social Suffering, (4) Financial Strain, and (5) Spiritual and Resilient Coping. Participants described their suffering as a multifaceted journey marked by physical pain, emotional turmoil, social stigma, financial challenges, and resilience fostered through spirituality and support systems. The phenomenological analysis revealed that the participants' suffering extended beyond the physical, touching every aspect of their lives and reshaping their identities and perceptions of self. The findings highlight the complex nature of suffering among breast cancer survivors in Nigeria, underscoring the need for comprehensive survivorship care that addresses physical, psychosocial, and spiritual dimensions. By understanding the essence of their suffering, healthcare providers can develop more compassionate, context-specific care strategies that validate and support the holistic needs of survivors.

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尼日利亚女性乳腺癌幸存者的痛苦生活体验:现象学视角
乳腺癌是一个全球性的重大公共卫生问题,其影响超出了身体生存。幸存者经常面临无数的挑战,包括心理困扰、社会孤立和经济困难。在尼日利亚等资源匮乏的环境中,这些挑战往往会加剧,在这些环境中,获得高质量医疗保健的机会有限,社会经济差距和围绕癌症的文化污名会严重影响幸存者的生活质量。本研究旨在探讨尼日利亚长期乳腺癌幸存者所感受到的痛苦,重点关注他们在治疗期间和治疗后的生活经历。采用现象学方法,对22名乳腺癌存活5年以上的妇女进行了深入访谈。数据分析采用专题分析,以捕捉他们的苦难的本质,允许深入了解他们的生活经历。出现了五个主要领域:(1)身体上的痛苦,(2)情绪上的痛苦,(3)社会上的痛苦,(4)经济上的压力,(5)精神上的和有弹性的应对。参与者将他们的痛苦描述为一个多方面的旅程,包括身体上的痛苦、情感上的动荡、社会上的耻辱、经济上的挑战,以及通过精神和支持系统培养的韧性。现象学分析显示,参与者的痛苦超出了身体上的痛苦,触及了他们生活的方方面面,重塑了他们的身份和自我认知。研究结果强调了尼日利亚乳腺癌幸存者所遭受的痛苦的复杂性,强调了需要从身体、社会心理和精神层面对幸存者进行全面护理。通过了解他们痛苦的本质,医疗保健提供者可以制定更富有同情心的、具体情况的护理策略,从而验证和支持幸存者的整体需求。
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来源期刊
Journal of Patient Experience
Journal of Patient Experience HEALTH CARE SCIENCES & SERVICES-
CiteScore
2.00
自引率
6.70%
发文量
178
审稿时长
15 weeks
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