Parents and clinicians disagree on extent of developmental problems in their preterm babies

Alison Knopf
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Abstract

Do parents know what it means when their babies are born preterm? Not always, according to a recent study. Unfortunately, this can have life-or-death consequences if the risk of neurodevelopmental impairment (NDI) is overestimated by clinicians, according to the multicenter study, led by clinicians and researchers in Canada. The study showed that parents' views should be incorporated into definitions of NDI, according to the authors. The main problem is that definitions of NDI were developed without the perspectives of parents, the researchers note. So there is little agreement between parental and medical classification of NDI in preterm children. The study involved parents of 1098 children, and the children, born at under 29 weeks gestation.

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父母和临床医生对早产儿发育问题的程度存在分歧
父母知道孩子早产意味着什么吗?最近的一项研究表明,并非总是如此。不幸的是,根据加拿大临床医生和研究人员领导的多中心研究,如果临床医生高估了神经发育障碍(NDI)的风险,这可能会产生生死攸关的后果。研究表明,家长的观点应该被纳入NDI的定义中。研究人员指出,主要问题是NDI的定义是在没有父母观点的情况下制定的。因此,父母对早产儿NDI的分类与医学对NDI的分类并不一致。这项研究涉及1098名孩子的父母,这些孩子出生在29周以下。
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