[Experience of a support group for women carrying BRCA1/2 mutations].

Déborah Hersch-Bitter, Yann Lurton, Camille Kumps, Sheila Unger, Laurent Michaud
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Abstract

Mutations in the BRCA1/2 genes increase the risk of breast and ovarian cancer, leading to complex medical decisions (surveillance, risk-reducing surgery) and major psychological consequences. A support group for BRCA1/2 mutation carriers has been conducted at the CHUV since 2016 by a psychologist-psychotherapist, a genetic counselor, and a geneticist. This article presents the context and then develops some of the psychological issues raised by the participants, focusing in particular on the notions of risk, uncertainty, and guilt. The processes at work in the group, between identification and differentiation, allow for a valuable work of appropriation and subjectivation around the presence of this genetic mutation.

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[BRCA1/2突变女性支持小组的经验]。
BRCA1/2基因的突变增加了患乳腺癌和卵巢癌的风险,导致复杂的医疗决策(监测、降低风险的手术)和重大的心理后果。自2016年以来,一名心理学家兼心理治疗师、一名遗传咨询师和一名遗传学家在CHUV组织了一个BRCA1/2突变携带者支持小组。本文介绍了背景,然后发展了参与者提出的一些心理问题,特别关注风险、不确定性和内疚的概念。在群体中工作的过程,在识别和分化之间,允许围绕这种基因突变的存在进行有价值的挪用和主体化工作。
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来源期刊
Revue medicale suisse
Revue medicale suisse Medicine-Medicine (all)
CiteScore
0.60
自引率
0.00%
发文量
1210
期刊介绍: Destinée aux professionnels de santé, la plateforme revmed.ch regroupe la version électronique de la Revue Médicale Suisse et les applications de formation et d"aide à la prise de décision eRMS. La eRMS est le fruit d’une large collaboration entre institutions et praticiens de Suisse romande.
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