Informal caregivers' perspectives on participation in a dementia rehabilitation programme.

IF 1.9 4区医学 Q2 REHABILITATION Scandinavian Journal of Occupational Therapy Pub Date : 2025-02-05 Epub Date: 2025-02-14 DOI:10.1080/11038128.2025.2463374

Josefine Lampinen, Ingeborg Nilsson, Mia Conradsson, Håkan Littbrand, Anna Sondell, Yngve Gustafson, Jerry Öhlin, Nina Lindelöf

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引用次数: 0

Abstract

Background: There is limited experience in combining interdisciplinary rehabilitation for persons with dementia and caregiver support.

Aim: To explore how informal caregivers perceive participation in a person-centred, multidimensional, interdisciplinary rehabilitation programme targeting community-dwelling older adults with dementia and their informal caregivers, and how the programme has influenced their everyday life.

Material and methods: Fourteen informal caregivers, aged 45-84 years, participated in a qualitative interview following a randomised controlled pilot study. Transcribed interviews were analysed using qualitative content analysis.

Results: The analysis resulted in seven categories and three themes: feeling challenged and boosted to face an uncertain future, perceiving supportive activities as sources of both joy and frustration in everyday life and finding relief in recognising their relative's former self.

Conclusions and significance: Combining interdisciplinary rehabilitation for adults with dementia with education and support for caregivers was perceived as viable and valuable for the informal caregivers. They felt strengthened by the rehabilitation and better prepared for their uncertain future. However, participation also challenged everyday routines, but the benefits appeared to outweigh the strain.

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来源期刊

Scandinavian Journal of Occupational Therapy REHABILITATION-

CiteScore

3.40

自引率

15.80%

发文量

审稿时长

6-12 weeks

期刊介绍： The Scandinavian Journal of Occupational Therapy is an internationally well-recognized journal that aims to provide a forum for occupational therapy research worldwide and especially the Nordic countries. Scandinavian Journal of Occupational Therapy welcomes: theoretical frameworks, original research reports emanating from quantitative, qualitative and mixed methods studies, literature reviews, case studies, presentation and evaluation of instruments, evaluation of interventions, learning and teaching in OT, letters to the editor.