Pilot quasi-experimental single-arm study of a virtual intervention for caregivers of persons with Lewy body dementia.

Abstract

Objectives: This pilot study evaluated a web-based intervention, guided by problem-solving therapy, to address challenges faced by caregivers of individuals with Lewy body dementia (LBD).

Method: A quasi-experimental single-arm study was conducted with 39 family caregivers (mean age: 67.62 years; 69% women; 95% White). The 8-week program, Virtual Online Communities for Aging Life Experiences Lewy Body Dementia (VOCALE LBD), included a discussion platform, peer support, training, and problem-solving practice. Measurements were taken at baseline, post-intervention, and one month later. Effect sizes and confidence intervals (CIs) were analyzed using bootstrapping, and demographic impacts were assessed through linear mixed-effects models (LMMs).

Results: Of the 39 participants, 29 completed the study. There were no significant differences in demographics between completers and withdrawals. Participants' engagement was high, defined as posting substantive comments at least twice weekly. Significant reductions were observed in depressive (d = -0.54), burden (d = -0.31), and stress scores (d = -0.45), while social support (d = 0.46), positive attitudes (d = 0.32), and negative attitudes towards problem-solving (d = -0.63) improved.

Conclusion: This intervention shows promise in reducing caregiver burden and improving emotional well-being, offering a flexible, effective solution for LBD caregivers.