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Understanding the multifaceted nature of quality of life in dementia using a transdiagnostic network analysis approach. 使用跨诊断网络分析方法了解痴呆症患者生活质量的多面性。
IF 2.4 3区 医学 Q3 GERIATRICS & GERONTOLOGY Pub Date : 2026-01-15 DOI: 10.1080/13607863.2025.2610669
Laura Dewitte, Sau Chi Cheung, David Foxe, Rebekah M Ahmed, Olivier Piguet, Muireann Irish

Objectives: Efforts to improve quality of life (QOL) in dementia depend on its accurate conceptualization and assessment. We employed a data-driven network approach to examine the structure of relationships between individual QOL items. This approach allowed us to capture the complexity and multidimensional nature of QOL from the perspective of the person with dementia and their carer.

Method: Participants with dementia (n = 128) and carers completed the Quality of Life in Alzheimer's Disease questionnaire (QOL-AD), and measures of depressive symptoms, cognition, and functional abilities of the person with dementia, and carer burden. Gaussian graphical models with regularized partial correlations of QOL-AD items were estimated and compared, and item communities were detected.

Results: Central elements that emerged in both self and carer-reported networks included Ability to do Things for Fun, Energy, and Life as a Whole. Memory and Money were less central. Distinct differences were also evident between self- and carer-networks. Whilst Self as a Whole was relatively more central in the self-reported network, Ability to Do Chores and Family were more central in the carer-reported network. Moreover, different communities were detected in the networks, corresponding to domains including socioeconomic, daily, self-referential, and instrumental functioning, with differential correlations to key clinical outcome variables.

Conclusion: QOL in dementia is inherently multidimensional and differs when assessed from the viewpoint of the person living with dementia versus their carer. Network approaches offer the granularity required to ensure that targeted interventions can be tailored toward these complementary perspectives.

目的:提高痴呆患者的生活质量(QOL)取决于其准确的概念和评估。我们采用数据驱动的网络方法来检查各个生活质量项目之间的关系结构。这种方法使我们能够从痴呆症患者及其护理人员的角度捕捉到生活质量的复杂性和多维性。方法:痴呆患者(n = 128)和护理人员完成阿尔茨海默病生活质量问卷(QOL-AD),并测量痴呆患者的抑郁症状、认知和功能能力,以及护理人员负担。对QOL-AD项目的正则化偏相关高斯图模型进行估计和比较,并检测项目群体。结果:在自我报告和职业报告的网络中出现的核心要素包括为乐趣、精力和整体生活而做事的能力。记忆和金钱则不那么重要。自我网络和职业网络之间也存在明显差异。自我作为一个整体在自我报告的网络中相对更重要,而做家务的能力和家庭在职业报告的网络中更重要。此外,在网络中检测到不同的社区,对应于包括社会经济,日常,自我参考和工具功能在内的领域,与关键临床结果变量存在差异相关性。结论:痴呆症患者的生活质量本质上是多维的,从痴呆症患者和他们的护理者的角度来评估是不同的。网络方法提供所需的粒度,以确保有针对性的干预措施可以根据这些互补的观点进行调整。
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引用次数: 0
Cognitive function and its change over time: effects on depression trajectories in oldest-old adults. 认知功能及其随时间的变化:对老年人抑郁轨迹的影响。
IF 2.4 3区 医学 Q3 GERIATRICS & GERONTOLOGY Pub Date : 2026-01-13 DOI: 10.1080/13607863.2026.2612728
Elnaz Abaei, Peter Martin

Objectives: Using data from the Health and Retirement Study (1992-2020), this study investigates how cognitive function and its longitudinal changes influence trajectories of depressive symptoms among oldest-old adults.

Method: Latent growth curve modeling (LGCM) was applied to examine changes in cognitive function and depressive symptoms across five time points (ages 90, 92, 94, 96, and 98+). The analytic sample consisted of 289 participants at baseline (age 90), with sample sizes ranging from 289 to 231 across subsequent age groups. In comparison, we conducted an additional LGCM longitudinal analysis for participants at an earlier baseline at age 60 (N = 17036), following them from 60 to 70 (n = 11915) and 80 years (n = 8942).

Results: The unconditional LGCM (without covariates) showed that higher baseline cognitive function was significantly associated with lower baseline depressive symptoms (β = -0.304, p < 0.001), but did not predict changes in depression over time. In the conditional model (including gender, education, self-rated health, and activities of daily living as covariates), higher education was associated with higher cognitive functioning but also with higher depression at baseline. In contrast, better ADL functioning and better perceived health significantly predicted higher cognitive functioning and lower depression at baseline. The intercept of depression predicted its own slope (β = -0.934, p < 0.001), indicating that Individuals with higher initial depressive symptoms experience a slower increase (or less worsening) in depression over time. For the 60-80 group, the intercept of cognition significantly predicted the intercept of depression (β = -0.380, p < 0.001), consistent with the 90-98+ group. However, longitudinal associations differed across age groups, indicating distinct developmental patterns between mid-to-late and very late adulthood.

Conclusion: This study emphasizes that although cognitive and emotional health are interrelated at baseline, changes in one domain do not reliably predict changes in the other among the oldest-old adults population. Instead, education, physical functioning, and self-rated health emerged as key predictors of both cognitive and emotional well-being. These findings highlight the importance of multidimensional assessments and targeted support to promote resilience and quality of life in extreme old age.

目的:利用1992-2020年健康与退休研究(Health and Retirement Study)的数据,本研究探讨了认知功能及其纵向变化如何影响老年人抑郁症状的轨迹。方法:应用潜在生长曲线模型(LGCM)检查五个时间点(90岁、92岁、94岁、96岁和98岁以上)的认知功能和抑郁症状的变化。分析样本包括289名基线(90岁)参与者,随后年龄组的样本量从289到231不等。相比之下,我们对60岁(N = 17036)较早基线的参与者进行了额外的LGCM纵向分析,跟踪他们从60岁到70岁(N = 11915)和80岁(N = 8942)。结果:无条件LGCM(无共变量)显示,较高的基线认知功能与较低的基线抑郁症状显著相关(β = -0.304, p p p)。结论:本研究强调,尽管认知和情绪健康在基线时相关,但其中一个领域的变化不能可靠地预测另一个领域的变化。相反,教育、身体机能和自我评估健康成为认知和情感健康的关键预测因素。这些发现强调了多维评估和有针对性的支持对于促进极端老年的复原力和生活质量的重要性。
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引用次数: 0
Coupling of within-person changes in sleep quality and subjective cognition in community-dwelling adults. 社区成人睡眠质量变化与主观认知的耦合关系
IF 2.4 3区 医学 Q3 GERIATRICS & GERONTOLOGY Pub Date : 2026-01-13 DOI: 10.1080/13607863.2025.2597964
Jose A Diaz, Soomi Lee, Lynn M Martire, Martin J Sliwinski

Objectives: Subjective cognitive decline (SCD) is an early indicator of cognitive impairment and dementia risk. Sleep quality, essential for cognitive health, often deteriorates with age. Intraindividual changes in sleep quality may be linked to concurrent changes in subjective cognition; this dynamic 'coupling effect' could inform strategies for prevention before objective impairments emerge but remains unexamined longitudinally. We investigated this interplay in older adults over multiple years.

Method: Utilizing the 'nlme' R package, we analyzed nine waves of sleep quality and subjective cognition data from the Transitions in Health and Relationships study (n = 131, ages 59-94 at baseline, 63% female) in hierarchical multilevel models, with random intercepts and slopes.

Results: Multilevel models indicated changes in sleep quality were positively associated with concurrent changes in subjective cognition, independent of baseline sleep quality, and sociodemographic covariates.

Conclusion: Findings highlight the importance of monitoring within-person sleep quality changes as a potential indicator of SCD in older adults. Further studies may help identify pathways to support cognitive health in aging populations.

目的:主观认知能力下降(SCD)是认知障碍和痴呆风险的早期指标。睡眠质量对认知健康至关重要,但往往随着年龄的增长而恶化。个体睡眠质量的变化可能与主观认知的同步变化有关;这种动态的“耦合效应”可以在客观损伤出现之前为预防策略提供信息,但仍未进行纵向研究。我们调查了多年来老年人的这种相互作用。方法:采用随机截点和斜率的分层多层模型,利用nlme R软件包分析来自健康与关系过渡研究(n = 131,基线年龄59-94岁,63%为女性)的9波睡眠质量和主观认知数据。结果:多水平模型表明,睡眠质量的变化与主观认知的同步变化呈正相关,独立于基线睡眠质量和社会人口统计学协变量。结论:研究结果强调了监测个人睡眠质量变化作为老年人SCD的潜在指标的重要性。进一步的研究可能有助于确定支持老年人认知健康的途径。
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引用次数: 0
Racial and ethnic disparities among older adults with autism spectrum disorder: a scoping review. 老年自闭症谱系障碍患者的种族和民族差异:范围综述。
IF 2.4 3区 医学 Q3 GERIATRICS & GERONTOLOGY Pub Date : 2026-01-11 DOI: 10.1080/13607863.2026.2612742
Jiameng Yuan, Tianming Guo, Hannah Rozear, Matthew E Dupre, Rahul Malhotra, Hanzhang Xu

Objectives: Although more older adults are living with autism spectrum disorder (ASD), research has focused mainly on younger individuals. Emerging evidence suggests that racial/ethnic disparities may further hinder timely diagnosis and care for older adults with ASD. This scoping review maps existing research on these disparities among older adults with ASD.

Method: A systematic database search was conducted from 01/15/2025 to 01/30/2025 across PubMed, PsycINFO, and Scopus. The PCC (Population, Concept, Context) framework was used to identify peer-reviewed, data-based studies published in English that focused on adults aged 60 years and older with ASD and explicitly addressed racial/ethnic disparities.

Results: Eight of 4,179 articles met the inclusion criteria. All included studies were observational, with the majority (n = 7) conducted in the United States. Racial/ethnic minority older adults with ASD face persistent disparities across the ASD care continuum. Black, Hispanic, and Asian/Pacific Islander older adults were less likely to be dually eligible for Medicare and Medicaid compared to their White counterparts. Additionally, racial/ethnic minority older adults with ASD showed a higher burden of physical and psychological comorbidities but lower likelihood of receiving treatment for their comorbidities. Racial/ethnic minority older adults with ASD had lower rates of outpatient service utilization and reduced access to supportive accommodations compared to their White counterparts.

Conclusion: Current research on racial/ethnic disparities among older adults with ASD remains limited; this research gap highlights an urgent need for more inclusive, population-specific studies to advance understanding and promote equity at the intersection of aging, autism, and healthcare access.

目的:尽管越来越多的老年人患有自闭症谱系障碍(ASD),但研究主要集中在年轻人身上。新出现的证据表明,种族/民族差异可能进一步阻碍对老年ASD患者的及时诊断和护理。这篇综述概述了现有的研究在老年ASD患者中的这些差异。方法:系统检索PubMed、PsycINFO、Scopus数据库,检索时间为2025年1月15日~ 2025年1月30日。PCC (Population, Concept, Context)框架用于识别同行评议的、基于数据的以英语发表的研究,这些研究的重点是60岁及以上的自闭症患者,并明确指出了种族/民族差异。结果:4179篇文章中有8篇符合纳入标准。所有纳入的研究均为观察性研究,其中大多数(n = 7)在美国进行。少数种族/民族的老年ASD患者在整个ASD护理连续体中面临持续的差异。与白人相比,黑人、西班牙裔和亚洲/太平洋岛民老年人不太可能同时获得医疗保险和医疗补助。此外,少数种族/民族老年ASD患者的身体和心理合并症负担较高,但接受合并症治疗的可能性较低。与白人相比,少数种族/族裔的ASD老年人门诊服务使用率较低,获得支持性住宿的机会较少。结论:目前关于老年ASD患者种族差异的研究仍然有限;这一研究差距凸显了我们迫切需要开展更具包容性的、针对特定人群的研究,以促进对老龄化、自闭症和医疗保健获取交叉点的理解和促进公平。
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引用次数: 0
The lived experience of existential distress among older Iranian adults with colorectal cancer: a qualitative study. 伊朗老年结直肠癌患者的生存痛苦经历:一项定性研究。
IF 2.4 3区 医学 Q3 GERIATRICS & GERONTOLOGY Pub Date : 2026-01-07 DOI: 10.1080/13607863.2025.2612171
Parisa Khalili, Zhale Zandieh, Ahmad Delbari, Shahab Papi, Yadollah Abolfathi Momtaz

Objectives: With population aging and rising colorectal cancer (CRC), existential distress, defined as a profound psychological suffering associated with threats to meaning, identity, and purpose, has emerged as a critical yet underexplored aspect of older adults' cancer experience. This study explored the lived experience of existential distress among older Iranian adults with CRC.

Method: A qualitative descriptive phenomenological design was employed. Seventeen adults (≥65 years) with confirmed CRC were purposively recruited from a cancer center in northern Iran. Data were obtained through in-depth semi-structured interviews and analyzed with Colaizzi's seven-step method.

Results: Participants included 10 men and 7 women with a mean age of 68.94 ± 3.78 years, with diverse education, occupation, illness duration, and treatment. Three themes emerged: Inadequate Self-Realization, Confronting Uncertainty and Death, and Disruption of Meaningful Relationships. Inadequate self-realization involved diminished inner value and guilt for perceived family burdens. Confronting Uncertainty and Death encompassed being lost, fear of the unknown, and pervasive death presence. Disruption of Meaningful Relationships reflected stigma, social humiliation, and self-imposed isolation.

Conclusion: Older Iranians with CRC endure layered existential suffering shaped by personal beliefs and sociocultural values. Findings guide supportive cancer care addressing existential and spiritual needs, alongside physical care, highlighting psychosocial dimensions for culturally informed interventions.

随着人口老龄化和结直肠癌(CRC)的增加,存在主义痛苦,定义为与意义、身份和目的威胁相关的深刻心理痛苦,已经成为老年人癌症经历的一个关键但尚未得到充分探索的方面。本研究探讨了伊朗老年结直肠癌患者存在性痛苦的生活经历。方法:采用定性描述现象学设计。有目的地从伊朗北部的一个癌症中心招募了17名确诊为结直肠癌的成年人(≥65岁)。数据通过深度半结构化访谈获得,并采用Colaizzi的七步法进行分析。结果:男性10例,女性7例,平均年龄68.94±3.78岁,学历、职业、病程、治疗方式等各不相同。出现了三个主题:自我实现不足,面对不确定性和死亡,以及有意义的关系的中断。自我实现不足包括内在价值的降低和对家庭负担的负罪感。面对不确定性和死亡包括迷失、对未知的恐惧和无处不在的死亡存在。破坏有意义的关系反映了耻辱、社会羞辱和自我孤立。结论:伊朗老年结直肠癌患者承受着由个人信仰和社会文化价值观塑造的多层次存在痛苦。研究结果指导支持性癌症治疗,解决存在和精神需求,以及身体护理,突出社会心理层面的文化知情干预。
{"title":"The lived experience of existential distress among older Iranian adults with colorectal cancer: a qualitative study.","authors":"Parisa Khalili, Zhale Zandieh, Ahmad Delbari, Shahab Papi, Yadollah Abolfathi Momtaz","doi":"10.1080/13607863.2025.2612171","DOIUrl":"https://doi.org/10.1080/13607863.2025.2612171","url":null,"abstract":"<p><strong>Objectives: </strong>With population aging and rising colorectal cancer (CRC), existential distress, defined as a profound psychological suffering associated with threats to meaning, identity, and purpose, has emerged as a critical yet underexplored aspect of older adults' cancer experience. This study explored the lived experience of existential distress among older Iranian adults with CRC.</p><p><strong>Method: </strong>A qualitative descriptive phenomenological design was employed. Seventeen adults (≥65 years) with confirmed CRC were purposively recruited from a cancer center in northern Iran. Data were obtained through in-depth semi-structured interviews and analyzed with Colaizzi's seven-step method.</p><p><strong>Results: </strong>Participants included 10 men and 7 women with a mean age of 68.94 ± 3.78 years, with diverse education, occupation, illness duration, and treatment. Three themes emerged: <i>Inadequate Self-Realization</i>, <i>Confronting Uncertainty and Death</i>, and <i>Disruption of Meaningful Relationships. Inadequate self-realization</i> involved diminished inner value and guilt for perceived family burdens. <i>Confronting Uncertainty and Death</i> encompassed being lost, fear of the unknown, and pervasive death presence. <i>Disruption of Meaningful Relationships</i> reflected stigma, social humiliation, and self-imposed isolation.</p><p><strong>Conclusion: </strong>Older Iranians with CRC endure layered existential suffering shaped by personal beliefs and sociocultural values. Findings guide supportive cancer care addressing existential and spiritual needs, alongside physical care, highlighting psychosocial dimensions for culturally informed interventions.</p>","PeriodicalId":55546,"journal":{"name":"Aging & Mental Health","volume":" ","pages":"1-11"},"PeriodicalIF":2.4,"publicationDate":"2026-01-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145914237","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Temporal dynamics of loneliness and perceived stress in older adults. 老年人孤独感和感知压力的时间动态。
IF 2.4 3区 医学 Q3 GERIATRICS & GERONTOLOGY Pub Date : 2026-01-07 DOI: 10.1080/13607863.2025.2609277
Aline Schönenberg, Lisa Bauer, Luise Umfermann, Tino Prell

Objectives: Loneliness and stress are determinants of late-life health, yet their within-person dynamics are insufficiently characterized.

Method: We extracted loneliness, stress, depressive symptoms, social contacts, self-rated health (SRH) and sociodemographics constituted covariates from three waves (2017, 2021, 2023) of the German Ageing Survey (DEAS). Linear mixed-effects models regressed stress on loneliness adjusted for covariates. To disentangle within- and between-person effects, predictors were decomposed into person-mean and person-mean-centered components. Interaction effects tested moderation by gender, depressiveness and SRH.

Results: Loneliness predicted stress within (ß =0.30, p < 0.001) and between persons (ß =0.39, p < 0.001). Random-slope variance indicated inter-individual heterogeneity (SD = 0.247); intercept-slope correlation (r = -0.815) suggested flatter slopes among high-stress individuals: individuals with lower baseline stress showed greater stress upon loneliness while high stress leads to a blunted stress response. This effect was moderated by depressiveness but not by gender or SRH: at high loneliness levels, the contribution of depressiveness to stress is diminished.

Conclusion: Increases in loneliness induce stress beyond depression and SRH on both intraindividual and interindividual levels: when individuals feel lonelier, they experience stress, and those who are chronically lonelier report overall higher stress levels. Targeting loneliness alongside stress-management strategies may reduce stress burden and improve well-being in aging populations.

目的:孤独和压力是晚年健康的决定因素,但它们在人体内的动态特征尚不充分。方法:从德国老龄化调查(DEAS)的三波(2017年、2021年、2023年)中提取孤独、压力、抑郁症状、社会接触、自评健康(SRH)和社会人口构成的协变量。线性混合效应模型回归压力对孤独的影响,调整了协变量。为了理清人内部和人之间的影响,预测因子被分解为人平均和以人平均为中心的成分。交互作用测试了性别、抑郁程度和SRH的调节作用。结果:孤独感对压力的预测在(ß =0.30, p p)范围内。结论:孤独感的增加会在个体内部和个体间诱发抑郁和SRH以外的压力:当个体感到孤独感时,他们会经历压力,而长期孤独感者总体上的压力水平更高。将孤独感与压力管理策略结合起来,可能会减轻老年人的压力负担,提高他们的幸福感。
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引用次数: 0
A systematic review of mental health benefits of functional fitness exercise interventions in older women. 功能性健身运动干预老年妇女心理健康益处的系统综述。
IF 2.4 3区 医学 Q3 GERIATRICS & GERONTOLOGY Pub Date : 2026-01-07 DOI: 10.1080/13607863.2026.2612737
Britteny M Howell, Mary Anne Hansen, Tracy Hellem

Objectives: Older women in the U.S. report higher rates of poor mental health than older men. Increased physical activity is often recommended to older adults, as it is associated with improved neurocognitive function, mood regulation, and greater social participation. Functional fitness training has been shown to have several benefits for adults, but it is unknown if this exercise modality can have mental health benefits for older women.

Method: A systematic literature search was conducted among CINAHL, Global Health, PsycInfo, SportsDiscus, and Web of Science databases with no publication date restrictions for articles describing the mental health outcomes of functional fitness interventions among samples that included women aged 60+ years of age.

Results: Twenty-one articles from 12 countries were analyzed and assessed for risk of bias. Fifteen articles (71%) aligned with our research hypothesis that functional fitness training incurs statistically significant mental health benefits for older women, with outcomes such as reduced anxiety and/or depression and improved general mental health, social functioning, and/or quality of life. Moderate-intensity functional fitness exercise appeared to be as beneficial as high-intensity.

Conclusion: Few studies analyzed their results by sex/gender and most studies did not utilize samples of healthy, community-dwelling adults, so recommendations for future research are discussed.

目的:美国老年女性心理健康状况不佳的比例高于老年男性。老年人经常被建议增加体力活动,因为它与改善神经认知功能、情绪调节和更多的社会参与有关。功能性健身训练已被证明对成年人有很多好处,但尚不清楚这种锻炼方式是否对老年妇女的心理健康有益。方法:在CINAHL、Global Health、PsycInfo、SportsDiscus和Web of Science数据库中进行系统的文献检索,对包括60岁以上妇女在内的样本中描述功能性健身干预的心理健康结果的文章进行无出版日期限制的检索。结果:对来自12个国家的21篇文章进行了偏倚风险分析和评估。15篇文章(71%)与我们的研究假设一致,即功能性健身训练对老年妇女的心理健康有统计学上显著的益处,其结果如减少焦虑和/或抑郁,改善一般心理健康、社会功能和/或生活质量。中等强度的功能性健身运动似乎和高强度一样有益。结论:很少有研究按性别/性别分析其结果,大多数研究没有使用健康的社区居住成年人样本,因此讨论了对未来研究的建议。
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引用次数: 0
Social inclusion and mild cognitive impairment: a scoping review of barriers, facilitators, and conceptual gaps. 社会包容和轻度认知障碍:障碍、促进因素和概念差距的范围审查。
IF 2.4 3区 医学 Q3 GERIATRICS & GERONTOLOGY Pub Date : 2026-01-07 DOI: 10.1080/13607863.2025.2606873
Clara Castaldi, Martina Olcese, Paola Cardinali

Objectives: Social inclusion is increasingly recognized as a determinant of well-being. However, in people with Mild Cognitive Impairment (MCI), evidence on factors promoting or hindering social inclusion remains conceptually inconsistent. This scoping review aims to examine how social inclusion is defined in the MCI literature, identify key facilitators and barriers, and explore its impact on well-being.

Method: Following the PRISMA guidelines, a systematic search was conducted in PubMed, ScienceDirect, and Scopus for peer-reviewed studies published in English. Thirty-one studies were analyzed using thematic synthesis.

Results: The findings highlight the absence of a shared definition of social inclusion. Key facilitators include physical and cognitive activities, social and family support, access to inclusive technologies, and community-based programs. Major barriers are cognitive and physical decline, digital illiteracy, stigmatization, and social or geographic isolation. Across studies, higher levels of social inclusion were associated with greater cognitive resilience and psychological well-being.

Conclusion: Social inclusion appears to play a protective role in the wellbeing of people with MCI. Promoting inclusive practices through digital literacy, participatory care, and supportive environments may reduce social exclusion and help delay cognitive decline. Future research should clarify conceptual definitions and develop consistent tools to assess social inclusion in this population.

目标:社会包容日益被认为是福祉的决定因素。然而,在轻度认知障碍(MCI)患者中,关于促进或阻碍社会包容因素的证据在概念上仍然不一致。本综述旨在研究MCI文献中如何定义社会包容,确定关键的促进因素和障碍,并探讨其对福祉的影响。方法:遵循PRISMA指南,在PubMed、ScienceDirect和Scopus中系统检索已发表的英文同行评审研究。采用主题综合方法对31项研究进行了分析。结果:研究结果强调了社会包容缺乏一个共同的定义。主要的促进因素包括身体和认知活动、社会和家庭支持、获得包容性技术以及社区规划。主要障碍是认知和身体衰退、数字文盲、污名化以及社会或地理隔离。在研究中,较高的社会包容水平与较高的认知弹性和心理健康有关。结论:社会包容似乎在轻度认知障碍患者的幸福感中起着保护作用。通过数字素养、参与式护理和支持性环境促进包容性实践,可能会减少社会排斥,有助于延缓认知能力下降。未来的研究应该澄清概念定义,并开发一致的工具来评估这一人群的社会包容。
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引用次数: 0
A qualitative evaluation of the Resources for Enhancing Alzheimer's Caregiver Health in Vietnam (REACH VN) intervention: a multi-stakeholder perspective. 提高越南阿尔茨海默氏症照顾者健康(REACH VN)干预资源的定性评估:多方利益相关者的观点。
IF 2.4 3区 医学 Q3 GERIATRICS & GERONTOLOGY Pub Date : 2026-01-05 DOI: 10.1080/13607863.2025.2610661
Trung-Anh Nguyen, Trang Thu Nguyen, Hung Trong Nguyen, Ngoc Bich Nguyen, Phong Quy Nguyen, Phuong-Anh Thi Nguyen, Hung Ngoc Nguyen, Thang Pham, Huong Nguyen, Ladson Hinton

Objectives: The primary goal of this study was to understand attitudes and experiences of a culturally tailored dementia intervention for Vietnamese family caregivers of people living with dementia (PLWD) from the perspectives of family caregivers and other stakeholders.

Method: We conducted semi-structured qualitative interviews with 53 stakeholders (i.e. family caregivers, interventionists and their supervisors, and other staff and local officials) with direct or indirect knowledge of the intervention, which was delivered in the home over three months by local interventionists. Directed content analysis of the qualitative interview data was performed to identify themes and sub-themes.

Results: The process-oriented themes suggest that caregivers and interventionists encountered multiple barriers during the intervention process, and amid these challenges, face-to-face intervention was highly preferred among caregivers, and among multiple intervention components, some worked better for caregivers than others. The outcome-oriented themes highlight that participating in the intervention benefited not only caregivers but also health professionals, particularly the interventionists.

Conclusion: Results highlight the need for further cultural modifications in problem-solving and mood management components, and the potential of the blended format of face-to-face and phone interventions to better fit the sociocultural context and cognitive capacity of most Vietnamese caregivers.

目的:本研究的主要目的是从家庭照顾者和其他利益相关者的角度了解越南痴呆症患者家庭照顾者(PLWD)的文化定制痴呆干预的态度和经验。方法:我们对53名直接或间接了解干预措施的利益相关者(即家庭照顾者、干预者及其主管、其他工作人员和当地官员)进行了半结构化的定性访谈,当地干预者在三个月内在家中提供了干预措施。对定性访谈数据进行定向内容分析,以确定主题和副主题。结果:过程导向的主题表明,护理人员和干预人员在干预过程中遇到了多重障碍,在这些挑战中,护理人员更倾向于面对面干预,在多种干预成分中,一些成分对护理人员的效果比其他成分更好。以结果为导向的主题强调,参与干预不仅有利于护理人员,而且有利于卫生专业人员,特别是干预人员。结论:结果强调了在解决问题和情绪管理方面需要进一步的文化调整,以及面对面和电话干预的混合形式的潜力,以更好地适应大多数越南照顾者的社会文化背景和认知能力。
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引用次数: 0
Assessing social support in older adults with cognitive disorders living in institutions. 评估在机构中生活的老年认知障碍患者的社会支持。
IF 2.4 3区 医学 Q3 GERIATRICS & GERONTOLOGY Pub Date : 2026-01-02 DOI: 10.1080/13607863.2025.2609273
Marie Sendra, Michèle Koleck, Océane Pic, Nicole Rascle, Hélène Amieva

Objectives: Although social support is a major dimension of well-being, there is a lack of appropriate tools to assess it in older adults with neurocognitive disorders. This study aims to provide a validation of an adapted version of the Perceived Social Support Questionnaire (PSSQ) for this population. A secondary objective was to investigate whether psychosocial and cognitive outcomes varied according to the category of persons perceived as available (family, professionals, friends, residents).

Method: 113 nursing home residents with neurocognitive disorders were administered the adapted PSSQ and a full clinical examination.

Results: Factor analysis confirmed the structure in two factors (availability and satisfaction with social support). The adapted PSSQ showed satisfactory internal consistency (ω = 0.83-0.84) and good divergent (ps ≥ 0.113) and convergent validity (ps ≤ 0.048). Family members were the most frequently perceived as available. Participants who perceived professionals as available showed a higher level of institutional adaptation (p = 0.005) and tended to report fewer anxiety symptoms (p = 0.069). Those who identified family as available were more satisfied with social support (p < 0.001) and had higher quality of life (p = 0.009).

Conclusion: With good psychometric qualities, the adapted PSSQ is a quick and easy-to-administer tool allowing assessment of social support for residents with moderate to severe cognitive impairment.

虽然社会支持是幸福的一个主要方面,但缺乏适当的工具来评估患有神经认知障碍的老年人的社会支持。本研究旨在为这一人群提供一个改编版的感知社会支持问卷(PSSQ)的验证。第二个目的是调查心理社会和认知结果是否根据可用人员的类别(家庭、专业人员、朋友、居民)而变化。方法:对113名患有神经认知障碍的敬老院居民进行适应性PSSQ和全面的临床检查。结果:因子分析证实了社会支持可得性和社会支持满意度两个因子的结构。调整后的PSSQ具有良好的内部一致性(ω = 0.83-0.84),良好的发散效度(ps≥0.113)和收敛效度(ps≤0.048)。家庭成员是最常被认为有空的人。认为专业人员可用的参与者表现出更高水平的制度适应(p = 0.005),并倾向于报告较少的焦虑症状(p = 0.069)。认为有家庭的人对社会支持更满意(p p = 0.009)。结论:适应性PSSQ具有良好的心理测量质量,是一种快速、易于管理的工具,可用于评估中重度认知障碍患者的社会支持。
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Aging & Mental Health
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