Unveiling the qualities of a 'good doctor': family carers' and healthcare professionals' perspective on dementia healthcare in India.

IF 4.1 2区 医学 Q1 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH International Journal for Equity in Health Pub Date : 2025-02-17 DOI:10.1186/s12939-025-02408-3
Upasana Baruah, Rachita Rao, Josefine Antoniades, Santosh Loganathan, Mathew Varghese, Claudia Cooper, Mike Kent, Briony Dow, Bianca Brijnath
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Abstract

Background: The escalating prevalence of dementia in India highlights the need for effective dementia care, particularly in a context marked by limited specialized services and resources. In response to this growing challenge, we sought to contribute to the understanding of societal expectations of multidisciplinary dementia care by exploring the qualities that family carers and healthcare professionals value in dementia care professionals within a multidisciplinary team in India.

Methods: The aim of the study was to describe the perspectives of carers and healthcare professionals regarding the attributes of a 'good doctor' in the context of accessing care for individuals with dementia in India. The research involved qualitative face-to-face interviews with 19 family carers and 25 healthcare professionals in Bengaluru, India, with data collected between March and July 2022.

Results: Using a thematic analysis framework, four main themes emerged: [1] accessibility and availability [2], empathetic engagement and effective communication [3], knowledge and competency, and [4] systemic reforms and culturally competent multilevel support. Public and professionals' perceptions of 'good' care appeared to have shifted from seeking cures to prioritizing time, counselling, and information, reflecting a more holistic understanding of support needed. Interviewees valued interactions in which they perceived practitioners acting with patience, compassion, respect for dignity of the person with dementia, and professional competence. Effective communication was key. Challenges in accessing quality dementia care included inadequate infrastructure, lack of specialized services, and long waiting times. The importance of multidisciplinary approaches and the need for systemic reforms to enhance service delivery were highlighted.

Conclusion: Findings highlight a need for training programs for healthcare professionals to foster the values inherent to delivery of person-centered care.

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揭示“好医生”的素质:家庭照顾者和医疗保健专业人员对印度痴呆症医疗保健的看法。
背景:在印度,痴呆症的患病率不断上升,这突出了有效的痴呆症护理的必要性,特别是在专业服务和资源有限的情况下。为了应对这一日益增长的挑战,我们试图通过探索印度多学科团队中家庭护理人员和医疗保健专业人员对痴呆症护理专业人员的价值,来帮助理解社会对多学科痴呆症护理的期望。方法:本研究的目的是描述护理人员和医疗保健专业人员在印度痴呆症患者获得护理的背景下对“好医生”属性的看法。该研究包括对印度班加罗尔的19名家庭护理人员和25名医疗保健专业人员进行定性面对面访谈,数据收集于2022年3月至7月。结果:采用主题分析框架,出现了四个主要主题:[1]可及性和可获得性[2],共情参与和有效沟通[3],知识和能力[4]系统改革和文化胜任的多层次支持。公众和专业人员对“良好”护理的看法似乎已经从寻求治疗转变为优先考虑时间、咨询和信息,反映了对所需支持的更全面的理解。受访者重视互动,他们认为从业人员表现出耐心、同情、尊重痴呆症患者的尊严和专业能力。有效的沟通是关键。在获得高质量痴呆症护理方面面临的挑战包括基础设施不足、缺乏专业服务以及等待时间过长。与会者强调了多学科办法的重要性和加强服务提供的系统改革的必要性。结论:研究结果强调需要对医疗保健专业人员进行培训,以培养以人为本的护理的内在价值观。
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来源期刊
CiteScore
7.80
自引率
4.20%
发文量
162
审稿时长
28 weeks
期刊介绍: International Journal for Equity in Health is an Open Access, peer-reviewed, online journal presenting evidence relevant to the search for, and attainment of, equity in health across and within countries. International Journal for Equity in Health aims to improve the understanding of issues that influence the health of populations. This includes the discussion of political, policy-related, economic, social and health services-related influences, particularly with regard to systematic differences in distributions of one or more aspects of health in population groups defined demographically, geographically, or socially.
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