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Layers of inequality: gender, medicalisation and obstetric violence in Ghana. 层层不平等:加纳的性别、医疗化和产科暴力。
IF 4.5 2区 医学 Q1 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-11-20 DOI: 10.1186/s12939-024-02331-z
Abena Asefuaba Yalley

Background: This study explored how gender inequalities in health systems influence women's experiences of obstetric violence in Ghana. Obstetric violence is recognised as a major public health concern and human rights violation. In particular, it reduces women's trust and use of health facilities for childbirth, thereby increasing the risks of maternal and neonatal mortality. In Ghana, obstetric violence is pervasive and normalised; yet, little is known about the gendered dynamics of this phenomenon.

Methodology: A qualitative study was conducted in eight public health facilities in Ghana. Specifically, semi-structured interviews were conducted with 30 midwives who work in the maternity units and 35 women who have utilised the obstetric services of the hospitals for childbirth. The midwives and women were selected using the purposive sampling technique. The transcripts of the interviews were coded using NVivo qualitative data analysis software and were thematically analysed. Secondary materials such as existing data on the medical profession in Ghana were utilised to complement the primary data.

Results: The study revealed that there are huge structural inequalities that keep women at the lower cadres of the health system. Five major themes depicting how gender inequalities contribute to women's experiences of obstetric violence emerged: gender inequality in the medical profession, unequally and heavily tasked, feminisation of midwifery, patriarchal pressures and ideologies, and gender insensitivity in resource provision. These inequalities impact the kind of care midwives provide, which is often characterised by mistreatment and abuse of women during childbirth. The study also discovered that patriarchal ideologies about women and their bodies lead to power and control in the delivery room and violence has become a major instrument of domination and control.

Conclusion: The hierarchical structure of the healthcare profession puts the midwifery profession in a vulnerable position, with negative consequences for maternity care (obstetric violence). The study recommends that gender-responsive approaches that address structural inequalities in health systems, women's empowerment over their bodies and male involvement in women's reproductive care are crucial in dealing with obstetric violence in Ghana.

研究背景本研究探讨了卫生系统中的性别不平等如何影响加纳妇女遭受产科暴力的经历。产科暴力是公认的重大公共卫生问题和侵犯人权行为。尤其是,它降低了妇女对医疗设施的信任和对分娩的使用,从而增加了孕产妇和新生儿死亡的风险。在加纳,产科暴力普遍存在并被正常化;然而,人们对这一现象的性别动态却知之甚少:在加纳的八家公共医疗机构开展了一项定性研究。具体而言,对 30 名在产科工作的助产士和 35 名利用医院产科服务分娩的妇女进行了半结构化访谈。助产士和产妇是通过有目的的抽样技术选出的。访谈记录使用 NVivo 定性数据分析软件进行编码,并进行主题分析。此外,还利用加纳医疗行业的现有数据等二手资料对原始数据进行了补充:研究结果表明,巨大的结构性不平等使妇女处于卫生系统的低层。出现了五大主题,描述了性别不平等是如何导致妇女遭受产科暴力的:医疗行业的性别不平等、任务不平等且繁重、助产士女性化、重男轻女的压力和意识形态,以及在提供资源时对性别问题不敏感。这些不平等现象影响了助产士提供的护理服务,其特点往往是在分娩过程中虐待和凌辱妇女。研究还发现,关于妇女及其身体的父权意识形态导致了产房中的权力和控制,暴力已成为支配和控制的主要手段:结论:医疗保健行业的等级结构使助产士行业处于弱势地位,对产妇护理(产科暴力)产生了负面影响。研究建议,采取促进两性平等的方法,解决保健系统中的结构性不平等、妇女对其身体的赋权以及男性参与妇女的生殖保健等问题,对于解决加纳的产科暴力问题至关重要。
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引用次数: 0
"They pulled that funding away and we're not recovering. it's getting worse": deaths of despair in post-austerity north east England. "他们撤走了资金,我们却没有恢复。情况越来越糟":紧缩后英格兰东北部的绝望死亡。
IF 4.5 2区 医学 Q1 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-11-19 DOI: 10.1186/s12939-024-02334-w
Timothy Price

Background: Deaths related to suicide, drug misuse, and alcohol-specific causes, known collectively as "deaths of despair" are of growing interest to researchers in England. Rates of death from these causes are highest in deprived northern communities and are closely tied to the social determinants of health and the policy decisions that have shaped them. The aim of this paper is to explore how stakeholders and community members living in Middlesbrough and South Tyneside, two Northern towns with above average rates of deaths of despair, understood the relationship between austerity policies and rates of deaths from these causes in their areas.

Methods: I conducted interviews and one focus group with a total of 54 stakeholders and community members in Middlesbrough and South Tyneside. Data were analysed using the iterative categorisation technique and the findings were interpreted through thematic analysis.

Results: The findings highlight four primary ways through which austerity exacerbated rates of deaths of despair in Middlesbrough and South Tyneside: reduced access to mental health services, diminished substance abuse treatment capacity, loss of youth services, and the closure of community institutions. Participants linked these cuts to rising social isolation, declining mental health, and increased substance misuse, which collectively deepened geographic inequalities in deaths of despair.

Conclusions: This study underscores the urgent need for reinvestment in local services to reduce inequalities and prevent further unnecessary deaths due to drug, suicide, and alcohol-specific causes. Prioritising the restoration and enhancement of services lost to austerity is critical. Such reinvestment will not only help to alleviate some of the most immediate need but also form a foundation for addressing the wider structural inequalities that perpetuate deaths of despair.

背景:与自杀、滥用药物和酗酒有关的死亡,统称为 "绝望死亡",越来越受到英格兰研究人员的关注。这些原因造成的死亡率在北部贫困社区最高,并与健康的社会决定因素和形成这些因素的政策决定密切相关。本文旨在探讨居住在米德尔斯堡(Middlesbrough)和南泰恩赛德(South Tyneside)的利益相关者和社区成员是如何理解紧缩政策与其所在地区因这些原因导致的死亡率之间的关系的:我对米德尔斯堡和南泰恩赛德的 54 名利益相关者和社区成员进行了访谈,并组织了一个焦点小组。采用迭代分类技术对数据进行了分析,并通过主题分析对结果进行了解释:研究结果强调了紧缩政策加剧米德尔斯堡和南泰恩赛德绝望死亡率的四种主要方式:获得心理健康服务的机会减少、药物滥用治疗能力下降、青少年服务丧失以及社区机构关闭。参与者将这些削减与日益严重的社会隔离、心理健康下降和药物滥用增加联系在一起,共同加深了绝望死亡的地域不平等:这项研究强调,迫切需要对当地服务进行再投资,以减少不平等现象,防止因毒品、自杀和酗酒等特定原因造成更多不必要的死亡。优先恢复和加强因财政紧缩而失去的服务至关重要。这种再投资不仅有助于缓解一些最迫切的需求,而且也为解决造成绝望死亡的更广泛的结构性不平等奠定了基础。
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引用次数: 0
A hill tribe community advisory board in Northern Thailand: lessons learned one year on. 泰国北部山地部落社区咨询委员会:一年来的经验教训。
IF 4.5 2区 医学 Q1 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-11-18 DOI: 10.1186/s12939-024-02323-z
Carlo Perrone, Nipaphan Kanthawang, Phaik Yeong Cheah

Northern Thailand and its neighbouring regions are home to several minority ethnic groups known as hill tribes, each with their own language and customs. Hill tribe communities live mostly in remote agricultural communities, face barriers in accessing health, and have a lower socio-economic status compared to the main Thai ethnic group. Due to their increased risk of infectious diseases, they are often participants in our research projects.To make sure our work is in line with the interests of hill tribe communities and respects their beliefs and customs, we set up a hill tribe community advisory board. We consult the members before, during, and after our projects are carried out. This manuscript recounts how we set up the community advisory board and our reflections following one year of activities. Our experience strongly supports engaging with community advisory boards when working with minority ethnic groups in lower and middle-income settings. In particular, we found that over time, as researchers and members familiarise with one another and their respective environments, exchanges gain meaning and benefits increase, stressing the advantages of long-term collaborations over short or project-based ones.

泰国北部及其邻近地区居住着几个被称为山地部落的少数民族,每个少数民族都有自己的语言和习俗。山地部落大多生活在偏远的农业社区,在获得医疗服务方面面临重重障碍,与泰国主要民族相比,他们的社会经济地位较低。为了确保我们的工作符合山区部落社区的利益,尊重他们的信仰和习俗,我们成立了山区部落社区咨询委员会。为了确保我们的工作符合山地部落社区的利益,尊重他们的信仰和习俗,我们成立了山地部落社区咨询委员会,在项目实施之前、期间和之后,我们都会征求委员会成员的意见。本手稿记述了我们如何成立社区咨询委员会,以及一年活动后的反思。我们的经验有力地支持了在中低收入环境中与少数民族群体合作时与社区咨询委员会的合作。特别是,我们发现随着时间的推移,研究人员和成员彼此熟悉了各自的环境,交流变得更有意义,收益也会增加,这强调了长期合作比短期或基于项目的合作更有优势。
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引用次数: 0
Unpacking occupational and sex divides to understand the moderate progress in life expectancy in recent years (France, 2010's). 解读职业和性别差异,了解近年来预期寿命的适度增长(法国,2010 年代)。
IF 4.5 2区 医学 Q1 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-11-15 DOI: 10.1186/s12939-024-02310-4
Ophélie Merville, Florian Bonnet, Guy Launoy, Carlo Giovanni Camarda, Emmanuelle Cambois

Purpose: The growth in life expectancy (LE) slows down recently in several high-income countries. Among the underlying dynamics, uneven progress in LE across social groups has been pointed out. However, these dynamics has not been extensively studied, partly due to data limitations. In this paper, we explore this area for the 2010 decade using recent French data.

Methods: We utilize the recent change in French census mortality follow-up data (EDP) and apply P-spline models to estimate LEs across five occupational classes (OCs) and indicators of lifespan heterogeneity (edagger) within these OCs, for seven triennial periods (2011-2013 to 2017-2019).

Results: First, we found a similar ranking of OCs along the LE gradient over time and across sexes, from manual workers to higher-level OCs. Noteworthy, the lowest LE in women overlaps with the highest one in men drawing a sex-OC gradient. Second, we observe varying progress of LEs. In women, LE increases in higher-level OCs meanwhile it levels off in manual workers, so that the OCs gap widens (up to 3.4 years in 2017-2019). Conversely, in men LE stalls in higher-level OCs and increases in manual workers so that the gap, which is much larger than in women (+5.7 years in 2017-2019), is tending to narrow. Finally, the lifespan homogenizes in OCs only when LE is low.

Conclusion: Overall, the limited LE progress in France results from LE stalling in the middle of the sex-OC gradient, though LE increases at both ends. At the lower end, LE progress and lifespan homogenization suggest that laggards benefit recently improvements achieved earlier in other OCs. At the upper end, LE progress may come from a vanguard group within higher-lever OC, benefiting new sources of improvements. These findings underscore the need for further research to explore the diverse mortality dynamics coexisting in the current health landscape.

目的:最近,一些高收入国家的预期寿命(LE)增长放缓。在这些动态变化中,不同社会群体在预期寿命方面取得的进展并不均衡。然而,这些动态尚未得到广泛研究,部分原因在于数据的局限性。在本文中,我们利用最近的法国数据,对 2010 年的这一领域进行了探讨:方法:我们利用法国人口普查死亡率跟踪数据(EDP)的最新变化,并应用 P-spline 模型估算了五个职业类别(OCs)的生命周期异质性(LEs),以及这些职业类别内七个三年期(2011-2013 年至 2017-2019 年)的生命周期异质性指标(edagger):首先,我们发现随着时间的推移和性别的不同,从体力劳动者到较高级别的职业类别,职业类别的生命周期梯度排序相似。值得注意的是,女性的最低工作效率与男性的最高工作效率重叠,形成了性别-工作效率梯度。其次,我们观察到最低工作收入的不同进展。在女性中,LE 在较高级别的 OC 中增加,而在体力劳动者中则趋于平稳,因此 OC 差距扩大(在 2017-2019 年达到 3.4 年)。相反,男性的平均寿命在较高级别的 OC 中停滞不前,而在体力劳动者中则有所上升,因此差距(2017-2019 年为 +5.7)远大于女性,但有缩小的趋势。最后,只有当生活水平较低时,OCs 的寿命才会趋于一致:总体而言,法国的平均寿命进展有限,这是因为平均寿命在性别-OC 梯度的中间停滞不前,尽管平均寿命在两端都有所增长。在低端,LE 的进步和寿命的同质化表明,落后者最近从其他 OCs 早期取得的进步中获益。在高端,LE 的进步可能来自高杠杆 OC 中的先锋群体,他们受益于新的改进来源。这些发现强调了进一步研究的必要性,以探索当前健康状况中并存的各种死亡率动态。
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引用次数: 0
Correction: Making health inequality analysis accessible: WHO tools and resources using Microsoft Excel. 更正:使健康不平等分析便于使用:世卫组织使用 Microsoft Excel 的工具和资源。
IF 4.5 2区 医学 Q1 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-11-15 DOI: 10.1186/s12939-024-02330-0
Katherine Kirkby, Daniel A Antiporta, Anne Schlotheuber, Ahmad Reza Hosseinpoor
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引用次数: 0
Correction: Refraining from seeking dental care among the Sámi in Sweden: a cross-sectional study. 更正:瑞典萨米人拒绝看牙医:一项横断面研究。
IF 4.5 2区 医学 Q1 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-11-14 DOI: 10.1186/s12939-024-02329-7
Negin Yekkalam, Christina Storm Mienna, Jon Petter Anders Stoor, Miguel San Sebastian
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引用次数: 0
Retraction Note: Bridge the gap caused by public health crises: medical humanization and communication skills build a psychological bond that satisfies patients. 撤稿说明:弥合公共卫生危机造成的鸿沟:医学人性化与沟通技巧建立起令患者满意的心理纽带。
IF 4.5 2区 医学 Q1 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-11-13 DOI: 10.1186/s12939-024-02316-y
Xiaoou Bu, Yao Wang, Yawen Du, Chuanglu Mu, Wenjun Zhang, Pei Wang
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引用次数: 0
Adapting and pilot testing a tool to assess the accessibility of primary health facilities for people with disabilities in Luuka District, Uganda. 在乌干达卢卡区改编并试点测试一种工具,用于评估残疾人使用初级保健设施的无障碍性。
IF 4.5 2区 医学 Q1 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-11-13 DOI: 10.1186/s12939-024-02314-0
Islay Mactaggart, Andrew Sentoogo Ssemata, Abdmagidu Menya, Tracey Smythe, Sara Rotenberg, Sarah Marks, Femke Bannink Mbazzi, Hannah Kuper

Background: People with disabilities frequently experience barriers in seeking healthcare that lead to poorer health outcomes compared to people without disabilities. To overcome this, it is important to assess the accessibility of primary health facilities - broadly defined to include a disability-inclusive service provision - so as to document present status and identify areas for improvement. We aimed to identify, adapt and pilot test an appropriate tool to assess the accessibility of primary health facilities in Luuka District, Uganda.

Methods: We conducted a rapid literature review to identify appropriate tools, selecting the Disability Awareness Checklist (DAC) on account of its relative brevity and development as a sensitization and action tool. We undertook three rounds of adaptation, working together with youth researchers (aged 18-35) with disabilities who then underwent 2 days of training as DAC facilitators. The adapted tool comprised 71 indicators across four domains and 12 sub-domains. We also developed a structured feedback form for facilitators to complete with healthcare workers. We calculated median accessibility scores overall, per domain and per sub-domain, and categorised feedback form suggestions by type and presumed investment level. We pilot-tested the adapted tool in 5 primary health facilities in one sub-district of Luuka, nested within a pilot healthcare worker training on disability.

Results: The median overall facility accessibility score was 17.8% (range 12.3-28.8). Facility scores were highest in the universal design and accessibility domain (25.8%, 22.6-41.9), followed by reasonable accommodation (20.0%, 6.7-33.3). Median scores for capacity of facility staff (6.67%, 6.7-20.0), and linkages to other services were lower (0.0%, 0-25.0). Within the feedback forms, there were a median of 21 suggestions (range 14-26) per facility. Most commonly, these were categorised as minor structural changes (20% of suggestions), with a third categorised as no (2%) or low (33%) cost, and the majority (40%) medium cost.

Conclusions: Overall accessibility scores were low, with many opportunities for low-cost improvement at the facility level. We did not identify any issues with the implementation of the tool, suggesting few further adaptations are required for its future use in this setting.

背景:与非残疾人相比,残疾人在寻求医疗保健服务时经常会遇到障碍,导致他们的健康状况较差。为了克服这一问题,必须对初级卫生设施的无障碍性进行评估--广义上的无障碍性包括提供兼顾残疾人的服务--以便记录现状并确定需要改进的地方。我们的目标是确定、调整和试点测试一个合适的工具,以评估乌干达卢卡区初级卫生设施的可及性:我们进行了快速文献综述,以确定合适的工具,并选择了残疾意识检查表(DAC),因为它相对简洁,而且是作为宣传和行动工具开发的。我们与残疾青年研究人员(18-35 岁)合作,进行了三轮改编,然后对他们进行了为期两天的培训,使他们成为 DAC 的主持人。改编后的工具包括 4 个领域和 12 个子领域的 71 个指标。我们还开发了一份结构化反馈表,供促进者与医护人员填写。我们计算了总体、每个领域和每个子领域的可及性得分中位数,并按类型和假定投资水平对反馈表建议进行了分类。我们在卢卡(Luuka)一个分区的 5 家基层医疗机构试点测试了改编后的工具,并在试点医疗工作者中开展了残疾问题培训:结果:设施无障碍总体得分的中位数为 17.8%(范围为 12.3-28.8)。通用设计和无障碍领域的设施得分最高(25.8%,22.6-41.9 分),其次是合理便利(20.0%,6.7-33.3 分)。设施工作人员能力(6.67%,6.7-20.0 分)和与其他服务的联系方面的得分中位数较低(0.0%,0-25.0 分)。在反馈表中,每个机构提出的建议中位数为 21 条(14-26 条不等)。最常见的是,这些建议被归类为轻微的结构性改变(占建议的 20%),三分之一的建议被归类为无成本(2%)或低成本(33%),大多数建议(40%)为中等成本:无障碍设施的总体得分较低,在设施层面有许多低成本改进的机会。我们没有发现该工具在实施过程中存在任何问题,这表明今后在这种环境下使用该工具几乎不需要进一步调整。
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引用次数: 0
Mobile outreach clinics for improving health care services accessibility in vulnerable populations of the Diffa Region in Niger: a descriptive study. 流动外展诊所改善尼日尔迪法地区弱势群体获得医疗服务的机会:一项描述性研究。
IF 4.5 2区 医学 Q1 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-11-12 DOI: 10.1186/s12939-024-02322-0
Lawali Mahaman Rabiou, Batoure Oumarou, Diaw Mor, Maman Abdou, Camara Ibrahim, Jacques Lukenze Tamuzi, Patrick D M C Katoto, Charles S Wiysonge, Blanche-Philomene Melanga Anya, Tshikolasoni Casimir Manengu

Background: Niger is a large country with many distant locations that can be difficult to access because the Sahara Desert covers 80% of the country's land. In Niger, just 49% of residents have access to a health centre within 5 km of their house. Health care may be difficult to access in the Diffa region of Niger, as non-state armed groups strike on a regular basis and floods cause a high rate of vulnerability. This study looked at how mobile clinics can improve healthcare accessibility for vulnerable populations in the Diffa region.

Methods: This was a descriptive-comparative study conducted over the period from 15 August 2022 to 15 October 2022, using three months' mobile outreach clinic to improve health outcomes in five districts of the Diffa region, including Bosso, Diffa, Goudoumaria, Mainé Soroa, and N'guigmi.

Results: During the three months of mobile outreach clinic, 42,251 people were sensitized about mobile outreaches and 12,004 were treated. A total of 18,708 vaccine doses were delivered to children aged 0-11 months, with Maine Soroa, Goudoumaria, Bosso, Diffa, and N'guigmi districts accounting for 29.24%, 24.62%, 18.54%, 18.05%, and 9.5%, respectively. In the same line, Goudoumaria, Bosso, and Maine Soroa districts recorded relatively high antenatal clinic (ANC) attendance percentages of 27.85%, 25.62%, and 21.89%, respectively. Furthermore, mobile clinic outreach provided a variety of healthcare treatments, both curative and preventative. Mobile Clinic 2 increased vaccine dose received among children aged 0-11 months by 1.11% (95%CI: 0.15%-2.06%, P = 0.023) when compared to Mobile Clinic 1. In the same line, mobile clinic showed a statistically significant increase of ANC between the three clinical rotations (P = 0001), showing an increased ANC update over time.

Conclusion: This study found that mobile outreach clinic can play an important role in improving healthcare access for vulnerable populations in the Diffa region. However, well-designed, and frequent mobile clinic outreach should be planned and included in the country's public health policy.

背景:尼日尔幅员辽阔,撒哈拉沙漠覆盖了全国 80% 的土地,因此有许多偏远地区交通不便。在尼日尔,只有 49% 的居民能在离家 5 公里的范围内获得医疗中心的服务。在尼日尔的迪法地区,由于非国家武装组织经常发动袭击,洪水又造成了极高的易受伤害性,因此可能很难获得医疗服务。本研究探讨了流动诊所如何改善迪法地区弱势群体的医疗服务:这是一项描述性比较研究,从 2022 年 8 月 15 日至 2022 年 10 月 15 日,在迪法地区的博索、迪法、古杜马里亚、马内索罗阿和恩吉格米等五个县开展了为期三个月的流动外联诊所活动,以改善医疗成果:在为期三个月的流动外展诊所活动中,42 251 人了解了流动外展活动,12 004 人接受了治疗。共为 18 708 名 0-11 个月大的儿童接种了疫苗,其中缅因州索罗亚、古杜马里亚、博索、迪法和恩吉格米地区分别占 29.24%、24.62%、18.54%、18.05% 和 9.5%。同样,古杜马里亚、博索和缅因索罗阿地区的产前检查(ANC)就诊率相对较高,分别为 27.85%、25.62% 和 21.89%。此外,流动诊所外联活动还提供了各种医疗保健治疗,包括治疗和预防。与流动诊所 1 相比,流动诊所 2 使 0-11 个月儿童接种的疫苗剂量增加了 1.11%(95%CI:0.15%-2.06%,P = 0.023)。同样,流动诊所的新生儿破伤风率在三次临床轮转之间有显著的统计学增长(P = 0001),表明新生儿破伤风率随着时间的推移而增加:这项研究发现,流动外展诊所在改善迪法地区弱势群体的医疗服务方面可以发挥重要作用。然而,应该对流动诊所进行精心设计,并经常开展外展活动,并将其纳入国家公共卫生政策。
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引用次数: 0
Strategies to optimise the health equity impact of digital pain self-reporting tools: a series of multi-stakeholder focus groups. 优化数字疼痛自我报告工具对健康公平影响的策略:一系列多方利益相关者焦点小组。
IF 4.5 2区 医学 Q1 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-11-11 DOI: 10.1186/s12939-024-02299-w
Syed Mustafa Ali, Amanda Gambin, Helen Chadwick, William G Dixon, Allison Crawford, Sabine N Van der Veer

Background: There are avoidable differences (i.e., inequities) in the prevalence and distribution of chronic pain across diverse populations, as well as in access to and outcomes of pain management services. Digital pain self-reporting tools have the potential to reduce or exacerbate these inequities. This study aimed to better understand how to optimise the health equity impact of digital pain self-reporting tools on people who are experiencing (or are at risk of) digital pain inequities.

Methods: This was a qualitative study, guided by the Health Equity Impact Assessment tool-digital health supplement (HEIA-DH). We conducted three scoping focus groups with multiple stakeholders to identify the potential impacts of digital pain self-reporting tools and strategies to manage these impacts. Each group focused on one priority group experiencing digital pain inequities, including older adults, ethnic minorities, and people living in socio-economically deprived areas. A fourth consensus focus group was organised to discuss and select impact management strategies. Focus groups were audio-recorded, transcribed verbatim, and analysed using a framework approach. We derived codes, grouped them under four pre-defined categories from the HEIA-DH, and illustrated them with participants' quotes.

Results: A total of fifteen people living with musculoskeletal pain conditions and thirteen professionals took part. Participants described how digital pain self-reports can have a positive health equity impact by better capturing pain fluctuations and enriching patient-provider communication, which in turn can enhance clinical decisions and self-management practices. Conversely, participants identified that incorrect interpretation of pain reports, lack of knowledge of pain terminologies, and digital (e.g., no access to technology) and social (e.g., gender stereotyping) exclusions may negatively impact on people's health equity. The participants identified 32 strategies, of which 20 were selected as being likely to mitigate these negative health equity impacts. Example strategies included, e.g., option to customise self-reporting tools in line with users' personal preferences, or resources to better explain how self-reported pain data will be used to build trust.

Conclusion: Linked to people's personal and social characteristics, there are equity-based considerations for developing accessible digital pain self-reporting tools, as well as resources and skills to enable the adoption and use of these tools among priority groups. Future research should focus on implementing these equity-based considerations or strategies identified by our study and monitoring their impact on the health equity of people living with chronic pain.

背景:在不同人群中,慢性疼痛的发病率和分布以及疼痛管理服务的获取和结果都存在可避免的差异(即不公平)。数字疼痛自我报告工具有可能减少或加剧这些不平等现象。本研究旨在更好地了解如何优化数字疼痛自我报告工具对正在经历(或有可能经历)数字疼痛不平等的人群的健康公平影响:这是一项定性研究,以健康公平影响评估工具--数字健康补充(HEIA-DH)为指导。我们与多个利益相关者开展了三个范围界定焦点小组,以确定数字疼痛自我报告工具的潜在影响以及管理这些影响的策略。每个小组重点关注一个经历数字疼痛不平等的优先群体,包括老年人、少数民族和社会经济贫困地区的居民。组织了第四个共识焦点小组,以讨论和选择影响管理策略。我们对焦点小组进行了录音、逐字记录,并采用框架法进行了分析。我们从 HEIA-DH 中提取代码,将其归入四个预定义类别,并用参与者的引语加以说明:共有 15 名肌肉骨骼疼痛患者和 13 名专业人员参与了此次研究。参与者描述了数字化疼痛自我报告如何通过更好地捕捉疼痛波动和丰富患者与医护人员之间的交流来对健康公平产生积极影响,进而加强临床决策和自我管理实践。相反,与会者指出,对疼痛报告的错误解读、缺乏疼痛术语知识、数字(如无法使用技术)和社会(如性别成见)排斥可能会对人们的健康公平产生负面影响。与会者提出了 32 项策略,其中 20 项被认为有可能减轻这些对健康公平的负面影响。策略范例包括:根据用户的个人偏好定制自我报告工具,或提供资源更好地解释如何使用自我报告的疼痛数据以建立信任:与人们的个人和社会特征相关联,在开发可访问的数字疼痛自我报告工具时需要考虑公平性问题,还需要提供资源和技能,以便优先群体能够采纳和使用这些工具。未来的研究应侧重于实施我们的研究确定的这些基于公平的考虑因素或策略,并监测它们对慢性疼痛患者健康公平的影响。
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International Journal for Equity in Health
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