Researching Together: Researchers With and Without Disabilities Engage Across National and Interdisciplinary Boundaries

IF 1.3 4区 医学 Q3 EDUCATION, SPECIAL British Journal of Learning Disabilities Pub Date : 2024-12-04 DOI:10.1111/bld.12634
Jess Mannion, Lori B. Vincent, Stephen D. Kroeger, Tricia Blee, Oisin Daly, Rhena Gallagher, Bryan Higgins, Mairead McHugh, Kerri Wolfer, Brittany E. Hayes
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Abstract

Introduction

The Relationships and Sexuality Research Team consists of researchers with learning disabilities who specialise in research on sexual citizenship and use visual and creative research methods. They are collaborating with academics on an innovative, cross-national, interdisciplinary and co-produced research project that brings together research teams from Ireland, the United Kingdom and the United States. Together, we gauged how effective this way of working was for use with an international research team.

Methods

Each of the 10 researchers participated in an interview using graphic narrative to co-create their story in comic form, uncover the origin stories and motivating elements of our mutual involvement and identify, in a formative way, conditions of equitable participation. Two focus groups followed this to explore perceptions and experiences of this project, one with the researchers with learning disabilities and one with the non-disabled academics and practitioner-researchers.

Results

Many benefits were identified. This approach fosters learning new perspectives and innovative research methods, leading to meaningful and equitable research outcomes. However, we identified various barriers relating to power and communication due to professional jargon, cultural terminology, speech and articulation differences, accents and online communication. This led us to devise several strategies to implement to work towards more inclusive research.

Conclusion

For research teams with diverse teams, there needs to be the opportunity to build trust and find common ground. Reflecting on the process and making changes early on is crucial, as well as focusing on inclusion and equity rather than agendas.

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共同研究:残疾和非残疾的研究人员跨越国家和跨学科的界限
关系与性研究小组由有学习障碍的研究人员组成,他们专门研究性公民,并使用视觉和创造性的研究方法。他们正在与学术界合作开展一项创新的、跨国的、跨学科的、共同生产的研究项目,该项目汇集了来自爱尔兰、英国和美国的研究团队。我们一起评估了这种工作方式与国际研究团队合作的有效性。方法10位研究人员均参与访谈,采用图形叙事的方式,以漫画的形式共同创作他们的故事,揭示我们相互参与的起源故事和激励因素,并以形成性的方式确定公平参与的条件。两个焦点小组随后探讨了这个项目的看法和经验,一个是有学习障碍的研究人员,另一个是无残疾的学者和实践研究人员。结果确定了许多益处。这种方法促进学习新的观点和创新的研究方法,导致有意义和公平的研究成果。然而,由于专业术语、文化术语、言语和发音差异、口音和在线交流,我们发现了与权力和沟通有关的各种障碍。这促使我们设计了几项战略来实施,以实现更具包容性的研究。对于拥有不同团队的研究团队,需要有机会建立信任并找到共同点。反思过程并尽早做出改变至关重要,同时注重包容和公平,而不是议程。
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来源期刊
CiteScore
2.30
自引率
20.00%
发文量
74
期刊介绍: The British Journal of Learning Disabilities is an interdisciplinary international peer-reviewed journal which aims to be the leading journal in the learning disability field. It is the official Journal of the British Institute of Learning Disabilities. It encompasses contemporary debate/s and developments in research, policy and practice that are relevant to the field of learning disabilities. It publishes original refereed papers, regular special issues giving comprehensive coverage to specific subject areas, and especially commissioned keynote reviews on major topics. In addition, there are reviews of books and training materials, and a letters section. The focus of the journal is on practical issues, with current debates and research reports. Topics covered could include, but not be limited to: Current trends in residential and day-care service Inclusion, rehabilitation and quality of life Education and training Historical and inclusive pieces [particularly welcomed are those co-written with people with learning disabilities] Therapies Mental health issues Employment and occupation Recreation and leisure; Ethical issues, advocacy and rights Family and carers Health issues Adoption and fostering Causation and management of specific syndromes Staff training New technology Policy critique and impact.
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