Sue Fletcher-Watson, Holly Joseph, Laura Crane, Georgia Pavlopoulou, Steve Lukito, Eloise Funnell, Alyssa M Alcorn, Catherine J Crompton
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引用次数: 0
Abstract
Purpose of review: Inclusive research practices are important for neurodevelopmental studies, facilitating the involvement of community members throughout the research process. Highlighting this value, we reiterate our previously proposed framework for inclusive research practice and present a selection of case studies showcasing successful implementation of inclusive approaches.
Recent findings: Across four invited case studies, authors illustrate how neurodivergent people can be effectively involved in research, providing meaningful input and shaping outcomes. Our report concludes that these case studies underscore the significance of building relationships, prioritizing community well-being, and considering diverse identities in neurodevelopmental research. We call for careful evaluation of the impact of inclusive practices on community representatives and advocate for enhanced reporting in academic journals, and use of online repositories to share the materials that support coproduction.
Summary: Despite the recognized benefits, a lack of detailed reporting on inclusive methods poses a challenge for researchers. This report provides valuable insights for researchers aiming to instigate, establish or develop their inclusive practice.
期刊介绍:
Current Developmental Disorders Reports commissions expert reviews from leading scientists and clinicians in the field of developmental disorders. What makes the journal unique is its focus—coverage of not one but a host of major disorders in the field, ranging from autism, ADHD, and Tourette’s syndrome, to motor disorders such as cerebral palsy and developmental coordination disorder, through to language and reading disorders such as developmental dyslexia. International authorities serve as editorial board members and section editors, and articles from some of the world’s leading researchers will focus on timely and current reviews of the literature in areas spanning the continuum from bench to communities to individuals. Reviews on new scientific discoveries in neurosciences, genetics, and epidemiology, as well as clinical interventions and policy will provide readers with access to new, innovative, and impactful discoveries as they emerge.