Cervical Collar Satisfaction and Functional Impact in Amyotrophic Lateral Sclerosis: A Survey Study.

IF 2.4 4区医学 Q1 REHABILITATION American Journal of Physical Medicine & Rehabilitation Pub Date : 2025-09-01 Epub Date: 2025-02-24 DOI:10.1097/PHM.0000000000002716

Katherine M Burke, Cristina Shea, Vishni Arulanandam, Stacey Sullivan, Amy S Ellrodt, Claire MacAdam, Kendall Carney, Gabriella Casagrande, Elizabeth Christiansen, Sabrina Paganoni

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Abstract

Objectives: Many people with amyotrophic lateral sclerosis develop cervical muscle weakness, often managed with cervical collars. Finding supportive and comfortable collars can be challenging. This study aimed to evaluate satisfaction with various collars and their impact on activities of daily living.

Design: This electronic survey study collected demographic information, clinical status, and participant experiences with commonly used cervical collars.

Results: Thirty-four participants (33 with amyotrophic lateral sclerosis, 1 with primary lateral sclerosis) completed the survey, with 79% reporting neck weakness and 38% experiencing neck pain. Among those who tried cervical collars (65%), many had tried multiple options. The mean satisfaction across all collar types was 5.03 (SD = 2.92) out of 10.

Conclusions: These findings suggest current collars do not fully meet the needs of people living with amyotrophic lateral sclerosis, emphasizing the importance of improved treatment options. Future research should explore innovative technologies to improve cervical support, function, and quality of life.

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肌萎缩性侧索硬化症患者颈套满意度与功能影响的调查研究。

目的：许多肌萎缩性侧索硬化症（ALS）患者会出现颈部肌肉无力，通常使用颈套进行治疗。找到支持和舒适的项圈是很有挑战性的。本研究旨在评估不同项圈的满意度及其对日常生活活动的影响。设计：这项电子调查研究收集了人口统计信息、临床状况和参与者使用常用颈套的经历。结果：34名参与者（33名ALS患者，1名原发性侧索硬化症患者）完成了调查，其中79%报告颈部无力，38%经历颈部疼痛。在尝试过颈套的人中（65%），许多人尝试过多种选择。所有领型的平均满意度为5.03 （SD = 2.92）。结论：这些发现表明，目前的项圈不能完全满足ALS患者的需求，强调了改进治疗方案的重要性。未来的研究应探索创新技术来改善颈椎的支持、功能和生活质量。

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来源期刊

American Journal of Physical Medicine & Rehabilitation 医学-康复医学

CiteScore

4.60

自引率

6.70%

发文量

423

审稿时长

1 months

期刊介绍： American Journal of Physical Medicine & Rehabilitation focuses on the practice, research and educational aspects of physical medicine and rehabilitation. Monthly issues keep physiatrists up-to-date on the optimal functional restoration of patients with disabilities, physical treatment of neuromuscular impairments, the development of new rehabilitative technologies, and the use of electrodiagnostic studies. The Journal publishes cutting-edge basic and clinical research, clinical case reports and in-depth topical reviews of interest to rehabilitation professionals. Topics include prevention, diagnosis, treatment, and rehabilitation of musculoskeletal conditions, brain injury, spinal cord injury, cardiopulmonary disease, trauma, acute and chronic pain, amputation, prosthetics and orthotics, mobility, gait, and pediatrics as well as areas related to education and administration. Other important areas of interest include cancer rehabilitation, aging, and exercise. The Journal has recently published a series of articles on the topic of outcomes research. This well-established journal is the official scholarly publication of the Association of Academic Physiatrists (AAP).