Semi-Structured Interview Guide Development and Validation to Explore Parental Experiences and Expectations From Physiotherapy for Children With Down Syndrome

IF 1.9 3区医学 Q2 PSYCHOLOGY, EDUCATIONAL Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-03-06 DOI:10.1111/jar.70030

Fathimath Akhila, Asir John Samuel

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Abstract

Background

Existing literature failed to explore the parental expectations and experiences from physiotherapy for children with Down syndrome. Hence, we aimed to validate a semi-structured interview guide to explore parental experiences and expectations from physiotherapy for children with Down syndrome.

Methods

A 28-item interview guide was reduced to a six-item interview guide and validated through three rounds of Delphi survey in experts with prior experience in children with disabilities. The first and second rounds failed to meet the S-CVI/Ave threshold of 0.90, leading to revisions based on feedback.

Results

After suggestions were received from 10 experts with an average of 2 years of experience in dealing with children with Down syndrome, a six-item interview guide was finalised, with I-CVI of 0.78–1 and S-CVI of 0.9.

Conclusion

The generated interview guide aimed to explore the experiences and expectations of parents of children with Down syndrome undergoing physiotherapy, found to be valid.

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半结构化访谈指南开发和验证：探索唐氏综合症儿童物理治疗的父母经验和期望

背景现有文献未能探讨家长对唐氏综合症儿童物理治疗的期望和经验。因此，我们旨在验证半结构化访谈指南，以探索父母对唐氏综合症儿童物理治疗的体验和期望。方法将28项访谈指南缩减为6项访谈指南，并通过3轮德尔菲调查对具有残疾儿童经验的专家进行验证。第一轮和第二轮未能达到0.90的S-CVI/Ave阈值，导致根据反馈进行修改。结果10位专家平均具有2年以上的唐氏综合征患儿治疗经验，在听取了专家的建议后，最终确定了一份6项访谈指南，I-CVI为0.78-1，S-CVI为0.9。结论所生成的访谈指南旨在探讨唐氏综合症患儿家长接受物理治疗的经历和期望，是有效的。

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来源期刊

Journal of Applied Research in Intellectual Disabilities Multiple-

CiteScore

4.70

自引率

12.50%

发文量

期刊介绍： JARID is an international, peer-reviewed journal which draws together findings derived from original applied research in intellectual disabilities. The journal is an important forum for the dissemination of ideas to promote valued lifestyles for people with intellectual disabilities. It reports on research from the UK and overseas by authors from all relevant professional disciplines. It is aimed at an international, multi-disciplinary readership. Topics covered include community living, quality of life, challenging behaviour, communication, sexuality, medication, ageing, supported employment, family issues, mental health, physical health, autism, economic issues, social networks, staff stress, staff training, epidemiology and service provision.