Collaborating with and enabling diverse communities to address health inequities: The experiences of a community engagement and outreach team.

IF 2.1 Q3 MEDICINE, RESEARCH & EXPERIMENTAL Journal of Clinical and Translational Science Pub Date : 2025-01-22 eCollection Date: 2025-01-01 DOI:10.1017/cts.2025.7
Reimund Serafica, Lorraine S Evangelista, Tony Ward, Jeffery Peterson, Joseph Guerrero Lopez, Julie Lucero, Esther Erdei, Kathryn L Braun, Andrea Bersamin, Jenifer Thomas, J D Wulfhorst, Cheryl Jorcyk, Rebecca Palacios, Judith Owens-Manley, Elizabeth Fore, Ann Bertagnolli, Chelsea Bellon, Francisco S Sy
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Abstract

The Mountain West Clinical and Translational Infrastructure Network Community Engagement and Outreach (CEO) Core has fostered academic-community engagement since 2018. States historically receiving lower levels of NIH funding are characterized by significantly higher proportions of rural and remote populations, as well as uniquely elevated percentages of Native American/Alaska Native and Native Hawaiian/Pacific Islander populations compared to most other states. This case study highlights the Core's efforts in advancing community-engaged research. Key initiatives included forming a CEO Core Steering Committee to recruit interdisciplinary investigators, establishing regional community advisory boards to identify research priorities, and creating a Resource Library and Training Portal for stakeholders. The Core also collaborated with other Cores to provide training, mentorship, and funding for community-engaged research. Despite these achievements, geographical and cultural diversity presented engagement challenges. Regular meetings between investigators and stakeholders ensured bidirectional communication and aligned goals. The Core transformed transactional engagement into meaningful collaboration, emphasizing the need for interdisciplinary teams who understand community needs. Future goals include training academic teams, clinical providers, and community members, empowering early-stage investigators to share findings with partners, leveraging health records for research, and developing strategies to protect investigators' time.

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自 2018 年以来,"西部山区临床与转化基础设施网络社区参与和外联(CEO)核心"(Mountain West Clinical and Translational Infrastructure Network Community Engagement and Outreach (CEO) Core)一直在促进学术界与社区的接触。与大多数其他州相比,历史上获得美国国立卫生研究院资助较少的州的特点是农村和偏远地区人口比例明显较高,美国原住民/阿拉斯加原住民和夏威夷原住民/太平洋岛民的比例也独特地较高。本案例研究重点介绍了核心小组在推进社区参与研究方面所做的努力。主要举措包括成立首席执行官核心指导委员会,以招募跨学科研究人员;成立地区社区咨询委员会,以确定研究重点;以及为利益相关者创建资源库和培训门户网站。该核心还与其他核心合作,为社区参与研究提供培训、指导和资金。尽管取得了这些成就,但地域和文化的多样性给参与带来了挑战。研究人员和利益相关者之间的定期会议确保了双向交流和目标一致。核心小组将事务性的参与转变为有意义的合作,强调需要了解社区需求的跨学科团队。未来的目标包括培训学术团队、临床服务提供者和社区成员,授权早期研究人员与合作伙伴分享研究结果,利用健康记录开展研究,以及制定保护研究人员时间的策略。
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来源期刊
Journal of Clinical and Translational Science
Journal of Clinical and Translational Science MEDICINE, RESEARCH & EXPERIMENTAL-
CiteScore
2.80
自引率
26.90%
发文量
437
审稿时长
18 weeks
期刊最新文献
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