{"title":"Sensing Rhabdomyolysis: Building Sensorial Knowledge in Inherited Metabolic Disorders in Poland.","authors":"Małgorzata Rajtar","doi":"10.1080/01459740.2025.2475925","DOIUrl":null,"url":null,"abstract":"<p><p>Sensations have emerged as an increasingly important topic in anthropological studies of health and disease. In this article, I draw from ethnographic research conducted among people living with selected rare inherited metabolic diseases (IMDs) and their caregivers in Poland, focusing specifically on recurrent rhabdomyolysis, a long-term complication that affects energy-consuming organs and muscles. Employing insights from sensorial and medical anthropology, I examine how people with IMDs and their caregivers, as parent-patient units, build anticipatory sensorial knowledge that enables them to attend to bodily sensations symptomatic of elevated creatine kinase levels, which are characteristic of rhabdomyolysis.</p>","PeriodicalId":47460,"journal":{"name":"Medical Anthropology","volume":" ","pages":"1-16"},"PeriodicalIF":1.5000,"publicationDate":"2025-03-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Medical Anthropology","FirstCategoryId":"90","ListUrlMain":"https://doi.org/10.1080/01459740.2025.2475925","RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"ANTHROPOLOGY","Score":null,"Total":0}
引用次数: 0
Abstract
Sensations have emerged as an increasingly important topic in anthropological studies of health and disease. In this article, I draw from ethnographic research conducted among people living with selected rare inherited metabolic diseases (IMDs) and their caregivers in Poland, focusing specifically on recurrent rhabdomyolysis, a long-term complication that affects energy-consuming organs and muscles. Employing insights from sensorial and medical anthropology, I examine how people with IMDs and their caregivers, as parent-patient units, build anticipatory sensorial knowledge that enables them to attend to bodily sensations symptomatic of elevated creatine kinase levels, which are characteristic of rhabdomyolysis.
期刊介绍：
Medical Anthropology provides a global forum for scholarly articles on the social patterns of ill-health and disease transmission, and experiences of and knowledge about health, illness and wellbeing. These include the nature, organization and movement of peoples, technologies and treatments, and how inequalities pattern access to these. Articles published in the journal showcase the theoretical sophistication, methodological soundness and ethnographic richness of contemporary medical anthropology. Through the publication of empirical articles and editorials, we encourage our authors and readers to engage critically with the key debates of our time. Medical Anthropology invites manuscripts on a wide range of topics, reflecting the diversity and the expanding interests and concerns of researchers in the field.
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