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Sensing Rhabdomyolysis: Building Sensorial Knowledge in Inherited Metabolic Disorders in Poland.
IF 1.5 3区 社会学 Q2 ANTHROPOLOGY Pub Date : 2025-03-06 DOI: 10.1080/01459740.2025.2475925
Małgorzata Rajtar

Sensations have emerged as an increasingly important topic in anthropological studies of health and disease. In this article, I draw from ethnographic research conducted among people living with selected rare inherited metabolic diseases (IMDs) and their caregivers in Poland, focusing specifically on recurrent rhabdomyolysis, a long-term complication that affects energy-consuming organs and muscles. Employing insights from sensorial and medical anthropology, I examine how people with IMDs and their caregivers, as parent-patient units, build anticipatory sensorial knowledge that enables them to attend to bodily sensations symptomatic of elevated creatine kinase levels, which are characteristic of rhabdomyolysis.

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引用次数: 0
The Reconfiguration of Stigma: (Mis)understanding the COVID-19 Infection and Contagion in Rural Central China.
IF 1.5 3区 社会学 Q2 ANTHROPOLOGY Pub Date : 2025-03-06 DOI: 10.1080/01459740.2025.2475927
Siyi Chen

Based on an ethnography of a Chinese village, this article examines the re-stigmatization of recovered COVID-19 patients in China's COVID-19 response between 2020 and 2022. I show that distrust in the local government was reactivated in epidemic governance and led to the production of localized knowledge as a proactive response to official knowledge, which prompted stigma driven by health concerns. As the epidemic governance intensified alongside viral mutations, the stigma was reconfigured into a broader threat to livelihoods. This research indicates stigmatization is a complex and nuanced process shaped by the interplay between epidemic governance and local social dynamics.

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引用次数: 0
(Self)care by Numbers: Self-Monitoring Technology and the Technology of a UK Public Health Trial. (数字(自我)护理:自我监测技术和英国公共卫生试验技术。
IF 1.5 3区 社会学 Q2 ANTHROPOLOGY Pub Date : 2025-02-28 DOI: 10.1080/01459740.2025.2471920
Rebecca Lynch

In an era of increasing interest in self-monitoring technologies to improve population health, this article considers how participants in a public health trial engaged with such technologies. Exploring how their engagement sits with the logic of self-monitoring and the technology of the trial highlights that the trial's blackboxing of its objects of study obscure the deeply contextualized care practices through which such technologies "work." Attending to (self-)care and what the trial neglects offers a means of disrupting entrenched values in its objects, relations, and logics, questioning what is important and for whom through a critical anthropology of/through health technology.

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引用次数: 0
Reproductive Coercion and Abortion Care: Care and Surveillance in Abortion Decision-Making in North Carolina, USA.
IF 1.5 3区 社会学 Q2 ANTHROPOLOGY Pub Date : 2025-02-27 DOI: 10.1080/01459740.2025.2471926
Whitney Arey

In this article, I explore connections of reproductive coercion and surveillance care through ethnographic research conducted at two independent abortion clinics in North Carolina from 2018 to 2019. Examining the lived experiences of those who seek abortion care shows how patients navigate surveillance during the clinical encounter to receive care. Patients experiencing reproductive coercion often need to maintain existing social ties, involving the providers as mediators to ensure their preferred outcome. Because patients may only receive care if they express an autonomous decision for abortion, providers often observe and negotiate specific social-relational cues, draw-specific ethical conclusions about patient autonomy, and act accordingly.

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引用次数: 0
Cleansing and Building in Rastafari Healing in London: Health Sovereignty for a Hostile Environment.
IF 1.5 3区 社会学 Q2 ANTHROPOLOGY Pub Date : 2025-02-27 DOI: 10.1080/01459740.2025.2471092
Anna Waldstein, Jason Irving, Dennis Francis

Health sovereignty - the assertion of rights to culturally and ecologically appropriate medicines and the ability of communities to structure their own healthcare - is a biopolitical goal of the Rastafari movement. We examine how health sovereignty is enacted by Rastafari herbalists in south London and the contributions these healers make to health in the UK, particularly for migrants disenfranchised by "hostile environment" immigration policies. Using ethnographic data on "bitters" and "roots tonics" we show how herbal medicines are used by healers and their clientele to achieve key political and spiritual aims of the movement, as well as personal healing.

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引用次数: 0
Surveillance in Medically Assisted Reproductive Care in France.
IF 1.5 3区 社会学 Q2 ANTHROPOLOGY Pub Date : 2025-02-16 DOI: 10.1080/01459740.2025.2465736
Alexandra Desy, Diana Marre

Beyond the laws, different institutions watch over - or veille sur - the access to and practice of medically assisted reproductive care in France. Although a shift in the moral regimes underlying French reproductive governance can be observed, ART practices are monitored through surveillance mechanisms, the economic and medical nature of which conceals their normalizing function. Woman and couples who do not correspond to these norms are prevented from forming a family through the French ART system. In this article we show how, faced with this reproductive exclusion, French women and couples choose to undertake cross-border reproductive care in an attempt to circumvent surveillance and fulfil their reproductive desire.

除了法律之外,不同的机构还对法国医疗辅助生育的获取和实践进行监督。尽管可以看到法国生殖管理所依据的道德制度发生了变化,但辅助生殖技术的实践仍受到监督机制的监控,其经济和医疗性质掩盖了其正常化功能。不符合这些规范的妇女和夫妇无法通过法国的 ART 系统组建家庭。在这篇文章中,我们展示了面对这种生殖排斥,法国妇女和夫妇如何选择跨境生殖保健,以试图规避监控,实现他们的生殖愿望。
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引用次数: 0
Speculating About Futures with Covid Reinfection in the UK: The Body as a Site of Educated Guesswork.
IF 1.5 3区 社会学 Q2 ANTHROPOLOGY Pub Date : 2025-02-04 DOI: 10.1080/01459740.2025.2461305
Anna Dowrick, Kaveri Qureshi, Tanvi Rai

We revisit a time in 2021 when people in the UK were coming to terms with an unwanted future characterized by chronic COVID-19 infection. Drawing on experiences of people who had already experienced COVID-19 infection, we explore how they made sense of newly perceived vulnerabilities and the possibility of reinfection. We highlight the work of speculating about the future, which involved making "educated guesses" based on embodied knowledge as understanding about different consequences of "living with COVID-19" moved in and out of view.

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引用次数: 0
"Canary in the Coal Mine": Hope and Emergency in the Management of Measles. "煤矿中的金丝雀":麻疹管理中的希望与紧急情况。
IF 1.5 3区 社会学 Q2 ANTHROPOLOGY Pub Date : 2025-01-02 Epub Date: 2024-11-18 DOI: 10.1080/01459740.2024.2428639
Michael Rabi

Exploring the relationship between governmental infectious disease management and emergency systems, I examine the turn to emergency in European measles management during the resurgence of the disease between 2017 and 2020. While measles management was shaped by hope for disease eradication and as a progressive pursuit of elimination, amid growing concerns with vaccination coverage, hope was redirected toward reversing regression in the struggle against infectious disease. I argue that perception of and action on public health issues as emergencies is intricately tied to change in the fundamental construct of governmental infectious disease management, regardless of change in the disease or its categorization.

在探讨政府传染病管理与应急系统之间的关系时,我研究了欧洲麻疹管理在 2017 年至 2020 年麻疹再次流行期间的应急转变。虽然麻疹管理是由根除疾病的希望所决定的,也是对根除疾病的逐步追求,但随着人们对疫苗接种覆盖率的日益关注,希望转向了扭转在抗击传染病斗争中的倒退。我认为,将公共卫生问题视为紧急事件并采取相应行动,与政府传染病管理基本结构的变化密切相关,而与疾病或其分类的变化无关。
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引用次数: 0
Solicitude and Solitude: Care, Ethics, and the Vulnerability of Front-Line Social Work in the US. 关怀与孤独:美国一线社会工作的关怀、伦理与脆弱性。
IF 1.5 3区 社会学 Q2 ANTHROPOLOGY Pub Date : 2025-01-02 Epub Date: 2024-12-02 DOI: 10.1080/01459740.2024.2431722
Todd Ebling, Thomas Malaby

The moral terrain of caring in a social work context is often treacherous. During ethnographic fieldwork with front-line workers at an organization providing services for unhoused individuals in a U.S. city, respondents articulated a relational intimacy required in client care. However, they also recognized the limits of their endurance and their need for distance from others. In this article, we suggest that Paul Ricoeur's "little ethics," in contrast to first-person or poststructuralist approaches to ethics, captures these workers' experience more fully and allows us to see the forging and negotiation of moral relationships of care and shared vulnerability more clearly.

在社会工作环境中,关怀的道德领域往往是危险的。在美国城市一个为无家可归者提供服务的组织的前线工作人员进行人种学实地考察时,受访者明确了客户关怀所需的关系亲密。然而,他们也认识到自己的耐力有限,需要与他人保持距离。在本文中,我们建议Paul Ricoeur的“小伦理学”,与第一人称或后结构主义的伦理学方法相比,更全面地捕捉了这些工人的经验,使我们能够更清楚地看到关怀和共同脆弱性的道德关系的形成和协商。
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引用次数: 0
Testing Ecology: Breast and Gynecological Cancer Predisposition Tests and the National Healthcare System in Spain. 测试生态学:乳腺癌和妇科癌症易感性测试和西班牙国家医疗保健系统。
IF 1.5 3区 社会学 Q2 ANTHROPOLOGY Pub Date : 2025-01-02 Epub Date: 2024-12-24 DOI: 10.1080/01459740.2024.2444617
Violeta Argudo-Portal

This research asks what is being put to the test by breast and gynecological cancer predisposition testing in Spain beyond genes or cancer. By combining document analysis and fieldwork with national healthcare professionals and drawing on the anthropology and sociology of testing, I examine how the molecular relations of these tests extend to the political economy of the national healthcare system. I show how the capacity of these tests to produce a low-risk collective has paradoxical consequences for the political economy of the national healthcare system, unsettling professionals' concerns and spotlighting what is prioritized in personalized medicine strategies.

这项研究询问除了基因或癌症之外,西班牙的乳腺癌和妇科癌症易感性测试还测试了什么。通过结合文献分析和与国家医疗保健专业人员的实地考察,并借鉴人类学和社会学的测试,我研究了这些测试的分子关系如何扩展到国家医疗保健系统的政治经济学。我展示了这些测试产生低风险集体的能力如何对国家医疗保健系统的政治经济产生矛盾的后果,使专业人员的担忧不安,并突出了个性化医疗策略中的优先事项。
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引用次数: 0
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Medical Anthropology
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