Using the International Classification of Functioning, Disability, and Health (ICF) to explore the experiences of family caregivers of stroke survivors in Burkina Faso: a qualitative study.

Abstract

Purpose: In Sub-Saharan Africa, family caregivers (FCs) almost systematically-and sometimes indefinitely-assist stroke survivors with activities of daily living and the stroke rehabilitation process. This study explored the experiences of FCs of stroke survivors in Burkina Faso.

Materials and methods: A descriptive qualitative study was conducted with FCs recruited through convenience sampling. Semi-structured interviews were recorded and transcribed verbatim. A deductive thematic analysis based on the ICF framework was performed.

Results: Eleven FCs (female: 7; male: 4) participated in the study. Four main themes were identified: (1) Health and well-being (impact on health and well-being, and coping strategies); (2) Activities related to the caregiving role and social participation (activities and social participation); (3) Environmental factors (social support and lack of social security); (4) Personal factors (skills and knowledge about stroke). Furthermore, the facilitators and barriers associated with the caregiving role were synthesized.

Conclusion: FCs, particularly the wives of stroke survivors, experienced a significant impact on their physical and emotional well-being due to their caregiving responsibilities. Social support helped alleviate the burden, while its absence increased distress. Improving health services and policies, and promoting awareness of stroke knowledge, appear to be important in strengthening support for FCs.