Pub Date : 2026-02-10DOI: 10.1080/09638288.2026.2625551
Afnan Ahmed Hassan, Maha F Algabbani, Ahmed Farrag, Walaa Elsayed, Mohsen Z A Rezk, Saad M Bindawas, Adel A Alhusaini, Afaf A M Shaheen
Purpose: Sickle cell disease (SCD) causes abnormal hemoglobin, chronic pain, anemia, and organ damage. Virtual reality (VR) is a non-pharmacological tool for pain management; its effectiveness in SCD remains underexplored. This study evaluates the effect of an adjunctive fully immersive VR on daily pain and its impact on functional mobility and health-related quality of life (HRQOL) in children with SCD.
Materials and methods: In this single-blinded, randomized controlled trial, forty children (8-18 years) were randomized to VR + usual care (n = 20) or usual care alone (n = 20). The VR group received six 40-minute sessions over three weeks. Outcomes included pain (Numeric Rating Scale), mobility (Timed Up and Go test), and HRQOL (Pediatric Quality of Life Inventory). ClinicalTrials.gov (Identifier: NCT05952817).
Results: The intervention group showed significant pain reduction, improved mobility, and enhanced HRQOL compared to controls over five weeks (pain: η2 = 0.28, p < 0.001; mobility: η2 = 0.18, p < 0.001; HRQOL: η2 = 0.08-0.68, p < 0.001). VR was safe and well-tolerated.
Conclusion: Adjunctive VR with usual care significantly reduces pain, improves mobility, and enhances HRQOL in children with SCD, supporting its feasibility and safety.
目的:镰状细胞病(SCD)引起血红蛋白异常、慢性疼痛、贫血和器官损伤。虚拟现实(VR)是一种治疗疼痛的非药物工具;其在SCD中的有效性仍未得到充分探索。本研究评估了辅助完全沉浸式VR对SCD儿童日常疼痛的影响及其对功能活动能力和健康相关生活质量(HRQOL)的影响。材料与方法:在本单盲、随机对照试验中,40名儿童(8-18岁)被随机分为VR +常规治疗组(n = 20)和常规治疗组(n = 20)。虚拟现实组在三周内接受了六次40分钟的治疗。结果包括疼痛(数值评定量表)、活动能力(定时起床和行走测试)和HRQOL(儿科生活质量量表)。ClinicalTrials.gov(标识符:NCT05952817)。结果:干预组5周内疼痛明显减轻,活动能力明显改善,HRQOL明显提高(疼痛:η2 = 0.28, p η2 = 0.18, p η2 = 0.08-0.68, p)。结论:常规护理辅助VR治疗SCD患儿疼痛明显减轻,活动能力明显改善,HRQOL明显提高,支持其可行性和安全性。
{"title":"Effect of fully immersive virtual reality on daily pain, functional mobility, and health-related quality of life in pediatric sickle cell disease: a single-blinded randomized clinical trial.","authors":"Afnan Ahmed Hassan, Maha F Algabbani, Ahmed Farrag, Walaa Elsayed, Mohsen Z A Rezk, Saad M Bindawas, Adel A Alhusaini, Afaf A M Shaheen","doi":"10.1080/09638288.2026.2625551","DOIUrl":"https://doi.org/10.1080/09638288.2026.2625551","url":null,"abstract":"<p><strong>Purpose: </strong>Sickle cell disease (SCD) causes abnormal hemoglobin, chronic pain, anemia, and organ damage. Virtual reality (VR) is a non-pharmacological tool for pain management; its effectiveness in SCD remains underexplored. This study evaluates the effect of an adjunctive fully immersive VR on daily pain and its impact on functional mobility and health-related quality of life (HRQOL) in children with SCD.</p><p><strong>Materials and methods: </strong>In this single-blinded, randomized controlled trial, forty children (8-18 years) were randomized to VR + usual care (<i>n</i> = 20) or usual care alone (<i>n</i> = 20). The VR group received six 40-minute sessions over three weeks. Outcomes included pain (Numeric Rating Scale), mobility (Timed Up and Go test), and HRQOL (Pediatric Quality of Life Inventory). ClinicalTrials.gov (Identifier: NCT05952817).</p><p><strong>Results: </strong>The intervention group showed significant pain reduction, improved mobility, and enhanced HRQOL compared to controls over five weeks (pain: <i>η</i><sup>2</sup> = 0.28, <i>p</i> < 0.001; mobility: <i>η</i><sup>2</sup> = 0.18, <i>p</i> < 0.001; HRQOL: <i>η</i><sup>2</sup> = 0.08-0.68, <i>p</i> < 0.001). VR was safe and well-tolerated.</p><p><strong>Conclusion: </strong>Adjunctive VR with usual care significantly reduces pain, improves mobility, and enhances HRQOL in children with SCD, supporting its feasibility and safety.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-15"},"PeriodicalIF":2.0,"publicationDate":"2026-02-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146151221","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Purpose: This study evaluated combined restorative and compensatory rehabilitation on executive functions in acute stroke patients with mild cognitive impairment.
Materials and methods: A randomized controlled trial with 36 acute middle cerebral artery (MCA) stroke patients compared combined restorative and compensatory rehabilitation (n = 18) to conventional therapy (n = 18). Outcomes were assessed using the Montreal Cognitive Assessment (MOCA), Modified Rankin Scale (MRS), Cognitive Assessment Scale (CASP), and Stroke-Specific Quality of Life (SSQOL) at baseline, 3rd, 6th, and 9th weeks, analyzed with ANOVA methods.
Results: By week 9, the experimental group showed clear gains. MOCA rose from 20.5 ± 2.3 to 27.1 ± 1.8 (95% CI 26.3-28.0, p0.05). CASP from 45.2 ± 4.8 to 50.3 ± 4.0 (95% CI 48.0-52.6, p0.05) and MRS improved more than controls (3.5 ± 0.7 → 2.7 ± 0.5, p<0.05). SSQOL declined in controls 140.2 ± 12.1 to 128.0 ± 10.2 (p0.05).
Conclusions: Combined restorative and compensatory rehabilitation proved more effective than conventional cognitive training, enhancing executive functioning, independence, and quality of life in stroke survivors with mild cognitive impairment.
目的:评价恢复性和代偿性综合康复对急性脑卒中伴轻度认知障碍患者执行功能的影响。材料与方法:对36例急性大脑中动脉(MCA)卒中患者进行随机对照试验,比较恢复性和代偿性康复联合治疗(n = 18)与常规治疗(n = 18)。采用蒙特利尔认知评估(MOCA)、改良Rankin量表(MRS)、认知评估量表(CASP)和卒中特异性生活质量(SSQOL)在基线、第3周、第6周和第9周对结果进行评估,并采用方差分析方法进行分析。结果:到第9周,实验组表现出明显的进步。MOCA由20.5±2.3上升至27.1±1.8 (95% CI 26.3 ~ 28.0, p0.05)。CASP从45.2±4.8降至50.3±4.0 (95% CI 48.0-52.6, p0.05), MRS的改善程度高于对照组(3.5 ± 0.7→2.7 ± 0.5)。结论:综合恢复性和代偿性康复证明比常规认知训练更有效,可增强轻度认知障碍脑卒中幸存者的执行功能、独立性和生活质量。
{"title":"Combined effects of restorative and compensatory rehabilitation training on executive functions in stroke with mild cognitive impairment.","authors":"Ayesha Saddiqa, Zainab Noor Qazi, Arfa Zafar, Ayesha Arshad, Sidra Asghar, Amreen Shabbir, Rabbiya Atta Qazi","doi":"10.1080/09638288.2026.2628645","DOIUrl":"https://doi.org/10.1080/09638288.2026.2628645","url":null,"abstract":"<p><strong>Purpose: </strong>This study evaluated combined restorative and compensatory rehabilitation on executive functions in acute stroke patients with mild cognitive impairment.</p><p><strong>Materials and methods: </strong>A randomized controlled trial with 36 acute middle cerebral artery (MCA) stroke patients compared combined restorative and compensatory rehabilitation (<i>n</i> = 18) to conventional therapy (<i>n</i> = 18). Outcomes were assessed using the Montreal Cognitive Assessment (MOCA), Modified Rankin Scale (MRS), Cognitive Assessment Scale (CASP), and Stroke-Specific Quality of Life (SSQOL<b>)</b> at baseline, 3rd, 6th, and 9th weeks, analyzed with ANOVA methods.</p><p><strong>Results: </strong>By week 9, the experimental group showed clear gains. MOCA rose from 20.5 ± 2.3 to 27.1 ± 1.8 (95% CI 26.3-28.0, p0.05). CASP from 45.2 ± 4.8 to 50.3 ± 4.0 (95% CI 48.0-52.6, p0.05) and MRS improved more than controls (3.5 ± 0.7 → 2.7 ± 0.5, p<0.05). SSQOL declined in controls 140.2 ± 12.1 to 128.0 ± 10.2 (p0.05).</p><p><strong>Conclusions: </strong>Combined restorative and compensatory rehabilitation proved more effective than conventional cognitive training, enhancing executive functioning, independence, and quality of life in stroke survivors with mild cognitive impairment.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-10"},"PeriodicalIF":2.0,"publicationDate":"2026-02-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146151260","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2026-02-09DOI: 10.1080/09638288.2026.2627626
Nora Shields, Stacey L Cleary, Georgia McKenzie, Lyndon Hawke, Simon Bury, Nicholas F Taylor
Purpose: To explore the experiences of Autistic adolescents and young adults who participated in a 12-week student-mentored community based physical activity program called FitSkills.
Methods: This qualitative study was embedded within a large implementation trial. The data sources were: (i) trial screening forms, including reasons for participation from 30 Autistic young people (24 with intellectual disability), and (ii) semi-structured interviews completed by telephone with 7 Autistic young people (6 male; Mage 18.6 years), 13 parents (11 mothers) and 16 student mentors (10 women). Data were analysed using content analysis (screening) and reflective thematic analysis (interviews).
Results: The most common reason Autistic young people and their parents gave for wanting to take part in FitSkills was improving physical fitness. Three themes were identified: (1) Relationships with student mentors 'made it' and evolved over time to becoming gym partners or friends; (2) Social support helped participants to navigate the gym environment, manage sensory needs and establish a routine; and (3) Exercise was perceived to have a positive effect on psychological wellbeing.
Conclusion: A student-mentored community-based program can facilitate Autistic young people to exercise, by overcoming barriers to their participation and supporting them to navigate the community gym environment.
{"title":"'Have a go, you might surprise yourself': a qualitative study of the experiences of autistic adolescents and young adults of a community gym-based exercise programme.","authors":"Nora Shields, Stacey L Cleary, Georgia McKenzie, Lyndon Hawke, Simon Bury, Nicholas F Taylor","doi":"10.1080/09638288.2026.2627626","DOIUrl":"https://doi.org/10.1080/09638288.2026.2627626","url":null,"abstract":"<p><strong>Purpose: </strong>To explore the experiences of Autistic adolescents and young adults who participated in a 12-week student-mentored community based physical activity program called <i>FitSkills</i>.</p><p><strong>Methods: </strong>This qualitative study was embedded within a large implementation trial. The data sources were: (i) trial screening forms, including reasons for participation from 30 Autistic young people (24 with intellectual disability), and (ii) semi-structured interviews completed by telephone with 7 Autistic young people (6 male; <i>M<sub>age</sub></i> 18.6 years), 13 parents (11 mothers) and 16 student mentors (10 women). Data were analysed using content analysis (screening) and reflective thematic analysis (interviews).</p><p><strong>Results: </strong>The most common reason Autistic young people and their parents gave for wanting to take part in <i>FitSkills</i> was improving physical fitness. Three themes were identified: (1) Relationships with student mentors 'made it' and evolved over time to becoming gym partners or friends; (2) Social support helped participants to navigate the gym environment, manage sensory needs and establish a routine; and (3) Exercise was perceived to have a positive effect on psychological wellbeing.</p><p><strong>Conclusion: </strong>A student-mentored community-based program can facilitate Autistic young people to exercise, by overcoming barriers to their participation and supporting them to navigate the community gym environment.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-16"},"PeriodicalIF":2.0,"publicationDate":"2026-02-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146144567","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2026-02-09DOI: 10.1080/09638288.2026.2626481
Emma Jelstrup Balkin, Jane Andreasen, Kirsten Schultz Petersen, Sophie Navntoft, Lone Jørgensen
Background. Rehabilitation is known to have many positive effects for cancer patients. However, patients with head, neck and lung cancer generally have a low uptake of rehabilitation. Therefore, the aim of this study was to explore patient and healthcare professionals' perspectives on rehabilitation uptake after treatment for head, neck and lung cancer in a municipal setting. Methods. Semi-structured formal interviews were conducted with patients and healthcare professionals across hospital and rehabilitation settings in northern Denmark. All interviews were transcribed verbatim and analyzed using reflexive thematic content analysis. Results. There are multiple factors underlying the low uptake of rehabilitation for head, neck and lung cancer patients, ranging from systemic barriers, to matters of health (i)literacy and a perceived lack of interest, which upon further reflection often masks a deeper existential and/or physical vulnerability. Discussion. Our findings indicate that while many of the barriers to rehabilitation uptake arise in the transitions between care sectors, there is also a need to rethink how rehabilitation fits into the cancer care trajectory at hospital level. Current praxis leaves many opportunities for inequalities in rehabilitation access and uptake to arise.
{"title":"\"I had to figure this out for myself.\" Patients and healthcare professionals' perspectives on rehabilitation uptake after treatment for head, neck and lung cancer: a qualitative interview study.","authors":"Emma Jelstrup Balkin, Jane Andreasen, Kirsten Schultz Petersen, Sophie Navntoft, Lone Jørgensen","doi":"10.1080/09638288.2026.2626481","DOIUrl":"https://doi.org/10.1080/09638288.2026.2626481","url":null,"abstract":"<p><p><i>Background.</i> Rehabilitation is known to have many positive effects for cancer patients. However, patients with head, neck and lung cancer generally have a low uptake of rehabilitation. Therefore, the aim of this study was to explore patient and healthcare professionals' perspectives on rehabilitation uptake after treatment for head, neck and lung cancer in a municipal setting. <i>Methods.</i> Semi-structured formal interviews were conducted with patients and healthcare professionals across hospital and rehabilitation settings in northern Denmark. All interviews were transcribed verbatim and analyzed using reflexive thematic content analysis. <i>Results.</i> There are multiple factors underlying the low uptake of rehabilitation for head, neck and lung cancer patients, ranging from systemic barriers, to matters of health (i)literacy and a perceived lack of interest, which upon further reflection often masks a deeper existential and/or physical vulnerability. <i>Discussion.</i> Our findings indicate that while many of the barriers to rehabilitation uptake arise in the transitions between care sectors, there is also a need to rethink how rehabilitation fits into the cancer care trajectory at hospital level. Current praxis leaves many opportunities for inequalities in rehabilitation access and uptake to arise.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-14"},"PeriodicalIF":2.0,"publicationDate":"2026-02-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146144574","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2026-02-08DOI: 10.1080/09638288.2026.2623818
Courtney Harper, Lolohea Tongi, Rebecca Maloney, Geoff Green
Purpose: To enhance quality and equity in the model of care for specialised rehabilitation in a large regional service in Aotearoa New Zealand, this study aimed to explore the experiences and improvement ideas of patients, whaanau (wider family), staff and community providers.
Materials and methods: This qualitative study represents the experience capture phase of a service co-design project. Semi-structured interviews drawing on culturally informed methods were conducted with spinal, stroke and amputee patients (n = 14), whaanau (n = 7), staff (n = 14), and community organisation representatives (n = 10). Data were analysed using reflexive thematic analysis.
Results: Four overarching themes were generated: respecting the whole person and whaanau; fostering a collaborative rehabilitation culture; milestones and speedbumps on the road to recovery; and an enriching environment.
Conclusion: Strengthening a holistic, person and whaanau-centred approach to specialised rehabilitation services may better support equitable outcomes. Priorities for service co-design are enhancing cultural safety and responsiveness, supporting whaanau, and enabling smooth transitions.
{"title":"Exploring experiences of specialised rehabilitation services to co-design equitable model of care improvements: a qualitative study with patients, family, staff, and community providers.","authors":"Courtney Harper, Lolohea Tongi, Rebecca Maloney, Geoff Green","doi":"10.1080/09638288.2026.2623818","DOIUrl":"https://doi.org/10.1080/09638288.2026.2623818","url":null,"abstract":"<p><strong>Purpose: </strong>To enhance quality and equity in the model of care for specialised rehabilitation in a large regional service in Aotearoa New Zealand, this study aimed to explore the experiences and improvement ideas of patients, whaanau (wider family), staff and community providers.</p><p><strong>Materials and methods: </strong>This qualitative study represents the experience capture phase of a service co-design project. Semi-structured interviews drawing on culturally informed methods were conducted with spinal, stroke and amputee patients (<i>n</i> = 14), whaanau (<i>n</i> = 7), staff (<i>n</i> = 14), and community organisation representatives (<i>n</i> = 10). Data were analysed using reflexive thematic analysis.</p><p><strong>Results: </strong>Four overarching themes were generated: respecting the whole person and whaanau; fostering a collaborative rehabilitation culture; milestones and speedbumps on the road to recovery; and an enriching environment.</p><p><strong>Conclusion: </strong>Strengthening a holistic, person and whaanau-centred approach to specialised rehabilitation services may better support equitable outcomes. Priorities for service co-design are enhancing cultural safety and responsiveness, supporting whaanau, and enabling smooth transitions.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-17"},"PeriodicalIF":2.0,"publicationDate":"2026-02-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146144515","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Purpose: The benefits of motor control-based therapeutic exercise and its combination with whole-body vibration in individuals with nonspecific Low Back Pain (NSLBP) are not well established.
Methods: Seventy-five females with NSLBP were randomly assigned to control, motor control, and combination groups. The experimental group received 3 therapeutic exercise sessions per-week for 8 weeks. The pre- and post-intervention measurements used in the current research included trunk muscle activation, the VAS, and postural stability assessments.
Results: The results indicated a decrease in the center of pressure path length in both the anterior-posterior and medial-lateral directions, a drop in pain, and an increase in all studied muscle activation following the intervention in the freestyle lifting task in the motor control and combination groups (p < 0.05). However, post-hoc analysis revealed no significant difference between the motor control and combination groups at post-test in any of the measured parameters (p > 0.05).
Conclusion: Both motor control exercises and their combination with whole-body vibration effectively improve pain, postural stability, and trunk muscle activation in individuals with NSLBP. Effects were generally comparable, with the combination offering only a slight additional pain reduction. Motor control exercises alone may be sufficient, while the combination can be an alternative.
目的:以运动控制为基础的治疗性运动及其与全身振动相结合对非特异性腰痛(NSLBP)患者的益处尚未得到很好的证实。方法:将75例非slbp女性患者随机分为对照组、运动控制组和联合组。实验组每周进行3次治疗性运动,持续8周。目前研究中使用的干预前后测量包括躯干肌肉激活、VAS和姿势稳定性评估。结果:运动控制组和联合组在自由式举重任务干预后,前后方和中外侧压力路径中心长度均减少,疼痛减轻,所有研究肌肉激活均增加(p p > 0.05)。结论:运动控制练习及其与全身振动相结合可有效改善NSLBP患者的疼痛、姿势稳定性和躯干肌肉激活。效果一般是可比性的,联合用药只提供轻微的额外疼痛减轻。单独的运动控制练习可能是足够的,而组合可以是一种选择。
{"title":"Effectiveness of motor control exercises with and without whole-body vibration on pain, postural stability, and trunk muscle activation in individuals with nonspecific low back pain: a randomized controlled trial.","authors":"Raziyeh Karimi, Seyed Sadredin Shojaedin, Raghad Mimar, Mohamadreza Hatefi","doi":"10.1080/09638288.2026.2626449","DOIUrl":"https://doi.org/10.1080/09638288.2026.2626449","url":null,"abstract":"<p><strong>Purpose: </strong>The benefits of motor control-based therapeutic exercise and its combination with whole-body vibration in individuals with nonspecific Low Back Pain (NSLBP) are not well established.</p><p><strong>Methods: </strong>Seventy-five females with NSLBP were randomly assigned to control, motor control, and combination groups. The experimental group received 3 therapeutic exercise sessions per-week for 8 weeks. The pre- and post-intervention measurements used in the current research included trunk muscle activation, the VAS, and postural stability assessments.</p><p><strong>Results: </strong>The results indicated a decrease in the center of pressure path length in both the anterior-posterior and medial-lateral directions, a drop in pain, and an increase in all studied muscle activation following the intervention in the freestyle lifting task in the motor control and combination groups (<i>p</i> < 0.05). However, post-hoc analysis revealed no significant difference between the motor control and combination groups at post-test in any of the measured parameters (<i>p</i> > 0.05).</p><p><strong>Conclusion: </strong>Both motor control exercises and their combination with whole-body vibration effectively improve pain, postural stability, and trunk muscle activation in individuals with NSLBP. Effects were generally comparable, with the combination offering only a slight additional pain reduction. Motor control exercises alone may be sufficient, while the combination can be an alternative.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-11"},"PeriodicalIF":2.0,"publicationDate":"2026-02-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146133518","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2026-02-06DOI: 10.1080/09638288.2026.2624530
Janske H W van Eersel, Inge L Hulshof, Laura S van Os, Geert E Smid, Paul A Boelen
Purpose: This study aimed to develop and validate the Health Impairment Grief Scale (HIGS) to assess grief reactions among sick-listed employees experiencing health loss, thereby increasing understanding of their emotional experiences during sickness absence.
Materials and methods: The 10-item HIGS was developed with input from academic experts in grief and labor, occupational health professionals, and sick-listed employees. Psychometric evaluation of the HIGS was conducted using data from 226 sick-listed employees. Participants were mostly women (81%), highly educated (52%), were on average 49.3 years old, and have been sick-listed for 90.3 weeks.
Results: The HIGS demonstrated a unidimensional structure, robust internal consistency, and temporal stability. Additionally, its items showed clear differentiation from symptoms of depression and anxiety, and exhibited solid convergent validity. These findings indicate that individuals can experience grief due to health problems.
Conclusions: This study identifies health loss-related grief as a distinct psychological phenomenon among sick-listed employees. The association between health loss-related grief and pre-job loss grief suggests that employees may face interconnected emotional challenges during return-to-work. The HIGS provides rehabilitation professionals with a valid tool to identify grief reactions in return-to-work assessments, enabling recognition of employees who may require support that addresses both health-related and anticipated work-related losses.
{"title":"Health loss-related grief among sick-listed employees: development and validation of the health impairment grief scale.","authors":"Janske H W van Eersel, Inge L Hulshof, Laura S van Os, Geert E Smid, Paul A Boelen","doi":"10.1080/09638288.2026.2624530","DOIUrl":"https://doi.org/10.1080/09638288.2026.2624530","url":null,"abstract":"<p><strong>Purpose: </strong>This study aimed to develop and validate the Health Impairment Grief Scale (HIGS) to assess grief reactions among sick-listed employees experiencing health loss, thereby increasing understanding of their emotional experiences during sickness absence.</p><p><strong>Materials and methods: </strong>The 10-item HIGS was developed with input from academic experts in grief and labor, occupational health professionals, and sick-listed employees. Psychometric evaluation of the HIGS was conducted using data from 226 sick-listed employees. Participants were mostly women (81%), highly educated (52%), were on average 49.3 years old, and have been sick-listed for 90.3 weeks.</p><p><strong>Results: </strong>The HIGS demonstrated a unidimensional structure, robust internal consistency, and temporal stability. Additionally, its items showed clear differentiation from symptoms of depression and anxiety, and exhibited solid convergent validity. These findings indicate that individuals can experience grief due to health problems.</p><p><strong>Conclusions: </strong>This study identifies health loss-related grief as a distinct psychological phenomenon among sick-listed employees. The association between health loss-related grief and pre-job loss grief suggests that employees may face interconnected emotional challenges during return-to-work. The HIGS provides rehabilitation professionals with a valid tool to identify grief reactions in return-to-work assessments, enabling recognition of employees who may require support that addresses both health-related and anticipated work-related losses.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-13"},"PeriodicalIF":2.0,"publicationDate":"2026-02-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146127278","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2026-02-06DOI: 10.1080/09638288.2025.2612460
Dawn B Simpson, Kirsti Haracz, Kiara Southgate, Jackson Newberry Dupe, Md Golam Hasnain, Nicole de Carteret, Jenelle Preece, Diana Colvin, Marie-Louise Bird, Liam Johnson, Alison Gibberd, Carlos Garcia-Esperon, Ailsa Mackenzie, Christine T Shiner, Lauren J Christie, Heidi Janssen
Purpose: Measure the benefits and experiences of stroke survivors, carers and staff involved in the piloting of the Exercising, Socialising and Thinking: An Environmental Enrichment Model (ESTEEM) Program.
Materials and methods: Concurrent triangulation mixed-methods were used; (i) physical (leg strength, endurance, falls efficacy and frailty), psychological (anxiety and depression) and quality of life outcomes were collected at baseline, post-intervention, and 3-month follow-up, and (ii) inductive analysis of semi-structured interviews with end-users, described the experience of participation in and delivery of the ESTEEM Program.
Results: Stroke survivors [n = 25, median age 76 (IQR = 68-79) years, 40% female] demonstrated significant improvements at (i) post-intervention, in leg strength [1.2 repetitions, 95% confidence interval (CI) (0.22, 2.3)] and walking endurance [31m, (2.3, 60)] and, (ii) 3-month follow-up, in leg strength [0.99 repetitions (0.01, 2.0)], frailty [-0.79 (-1.3, -0.34)], anxiety [-1.8 (-3.1, -0.45)], depression [-2.1 (-3.5, -0.83)] and QoL [0.30 (0.13, 0.47)]. Stroke survivors [n = 10], carers [n = 3] and staff [n = 5]) perceived the Program to be beneficial, desirable and "worth the effort" of attending.
Conclusions: The ESTEEM Program may benefit both physical and emotional recovery after stroke and is acceptable to end-users. Results will inform future clinical research to determine the effectiveness of the ESTEEM Program.
{"title":"Exercising, Socialising, and Thinking: an Environmental Enrichment Model (ESTEEM) after stroke-a mixed methods pilot study of the ESTEEM program.","authors":"Dawn B Simpson, Kirsti Haracz, Kiara Southgate, Jackson Newberry Dupe, Md Golam Hasnain, Nicole de Carteret, Jenelle Preece, Diana Colvin, Marie-Louise Bird, Liam Johnson, Alison Gibberd, Carlos Garcia-Esperon, Ailsa Mackenzie, Christine T Shiner, Lauren J Christie, Heidi Janssen","doi":"10.1080/09638288.2025.2612460","DOIUrl":"https://doi.org/10.1080/09638288.2025.2612460","url":null,"abstract":"<p><strong>Purpose: </strong>Measure the benefits and experiences of stroke survivors, carers and staff involved in the piloting of the Exercising, Socialising and Thinking: An Environmental Enrichment Model (ESTEEM) Program.</p><p><strong>Materials and methods: </strong>Concurrent triangulation mixed-methods were used; (i) physical (leg strength, endurance, falls efficacy and frailty), psychological (anxiety and depression) and quality of life outcomes were collected at baseline, post-intervention, and 3-month follow-up, and (ii) inductive analysis of semi-structured interviews with end-users, described the experience of participation in and delivery of the ESTEEM Program.</p><p><strong>Results: </strong>Stroke survivors [<i>n</i> = 25, median age 76 (IQR = 68-79) years, 40% female] demonstrated significant improvements at (i) post-intervention, in leg strength [1.2 repetitions, 95% confidence interval (CI) (0.22, 2.3)] and walking endurance [31m, (2.3, 60)] and, (ii) 3-month follow-up, in leg strength [0.99 repetitions (0.01, 2.0)], frailty [-0.79 (-1.3, -0.34)], anxiety [-1.8 (-3.1, -0.45)], depression [-2.1 (-3.5, -0.83)] and QoL [0.30 (0.13, 0.47)]. Stroke survivors [<i>n</i> = 10], carers [<i>n</i> = 3] and staff [<i>n</i> = 5]) perceived the Program to be beneficial, desirable and \"worth the effort\" of attending.</p><p><strong>Conclusions: </strong>The ESTEEM Program may benefit both physical and emotional recovery after stroke and is acceptable to end-users. Results will inform future clinical research to determine the effectiveness of the ESTEEM Program.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-16"},"PeriodicalIF":2.0,"publicationDate":"2026-02-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146127317","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2026-02-04DOI: 10.1080/09638288.2026.2620503
Dawn B Simpson, Caryl L Gay, Søren Berg, Coralie English, Hege Ihle-Hansen, Gisle Berg Helland, Petra Larsson, Ingrid Skogestad, Jan Stubberud, Britt Øverland, Anners Lerdal
Purpose: Post-stroke fatigue affects rehabilitation, daily activities, and quality of life. Its relationship with sleep remains unclear. We aimed in the acute stroke phase to (a) describe fatigue and sleep using self-reported and objective sleep measures, (b) describe sleep apnoea and (c) explore the associations between sleep measures and post-stroke fatigue.
Material and methods: This cross-sectional study examined Norwegian adults within 14 days of first ischaemic stroke. Fatigue was assessed with the Fatigue Severity Scale. Self-reported sleep factors (Pittsburgh Sleep Quality Index [PSQI], Epworth Sleepiness Scale) and objective WatchPAT measures (apnoea-hypopnea, sleep time, efficiency, REM/deep sleep) served as exposure variables. Multivariable regression models, adjusted for age, sex, mRS, and depression or anxiety symptoms, were used to examine associations between sleep and fatigue.
Results: Participants (n = 107, mean age 65 (SD14) years, n = 65(61%) male) had a mean NIHSS score of 2.5 [SD3.3], Fatigue Severity Scale score of 3.11 [SD1.82], and n = 71 (66%) scored as having disturbed sleep (PSQI). Mean total sleep time (n = 81) was 7.04 [SD1.46] hours and 54 (71%) had sleep apnoea. In the final multivariable model, only poor sleep quality (b = 0.45, p = 0.010) was associated with post-stroke fatigue.
Conclusions: Addressing sleep quality in the acute stroke phase may benefit post-stroke fatigue.
目的:脑卒中后疲劳影响康复、日常活动和生活质量。它与睡眠的关系尚不清楚。我们的目标是在急性中风阶段(a)使用自我报告和客观的睡眠测量来描述疲劳和睡眠,(b)描述睡眠呼吸暂停,(c)探索睡眠测量和中风后疲劳之间的关系。材料和方法:这项横断面研究调查了挪威成年人首次缺血性中风后14天内的情况。用疲劳严重程度量表评定疲劳程度。自我报告的睡眠因素(匹兹堡睡眠质量指数[PSQI], Epworth嗜睡量表)和客观的WatchPAT测量(呼吸暂停-低通气,睡眠时间,效率,快速眼动/深度睡眠)作为暴露变量。采用多变量回归模型,对年龄、性别、mRS、抑郁或焦虑症状进行调整,以检验睡眠和疲劳之间的关系。结果:参与者(n = 107,平均年龄65(SD14)岁,n = 65(61%)男性)的NIHSS平均得分为2.5 [SD3.3],疲劳严重程度量表得分为3.11 [SD1.82], n = 71(66%)被评为睡眠障碍(PSQI)。平均总睡眠时间(n = 81)为7.04 [SD1.46]小时,54例(71%)存在睡眠呼吸暂停。在最后的多变量模型中,只有睡眠质量差(b = 0.45, p = 0.010)与卒中后疲劳有关。结论:改善急性中风期的睡眠质量可能有利于中风后的疲劳。
{"title":"Sleep quality, not sleep apnoea, is associated with post-stroke fatigue in acute ischemic stroke: a cross-sectional Norwegian study (NORFAST).","authors":"Dawn B Simpson, Caryl L Gay, Søren Berg, Coralie English, Hege Ihle-Hansen, Gisle Berg Helland, Petra Larsson, Ingrid Skogestad, Jan Stubberud, Britt Øverland, Anners Lerdal","doi":"10.1080/09638288.2026.2620503","DOIUrl":"https://doi.org/10.1080/09638288.2026.2620503","url":null,"abstract":"<p><strong>Purpose: </strong>Post-stroke fatigue affects rehabilitation, daily activities, and quality of life. Its relationship with sleep remains unclear. We aimed in the acute stroke phase to (a) describe fatigue and sleep using self-reported and objective sleep measures, (b) describe sleep apnoea and (c) explore the associations between sleep measures and post-stroke fatigue.</p><p><strong>Material and methods: </strong>This cross-sectional study examined Norwegian adults within 14 days of first ischaemic stroke. Fatigue was assessed with the Fatigue Severity Scale. Self-reported sleep factors (Pittsburgh Sleep Quality Index [PSQI], Epworth Sleepiness Scale) and objective WatchPAT measures (apnoea-hypopnea, sleep time, efficiency, REM/deep sleep) served as exposure variables. Multivariable regression models, adjusted for age, sex, mRS, and depression or anxiety symptoms, were used to examine associations between sleep and fatigue.</p><p><strong>Results: </strong>Participants (<i>n</i> = 107, mean age 65 (SD14) years, <i>n</i> = 65(61%) male) had a mean NIHSS score of 2.5 [SD3.3], Fatigue Severity Scale score of 3.11 [SD1.82], and <i>n</i> = 71 (66%) scored as having disturbed sleep (PSQI). Mean total sleep time (<i>n</i> = 81) was 7.04 [SD1.46] hours and 54 (71%) had sleep apnoea. In the final multivariable model, only poor sleep quality (<i>b</i> = 0.45, <i>p</i> = 0.010) was associated with post-stroke fatigue.</p><p><strong>Conclusions: </strong>Addressing sleep quality in the acute stroke phase may benefit post-stroke fatigue.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-11"},"PeriodicalIF":2.0,"publicationDate":"2026-02-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146114489","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2026-02-04DOI: 10.1080/09638288.2026.2624504
Ingrid C Rosbergen, Aline van der Feen, Wim F C van Houtert, Ester de Jonge, Jorit Meesters, Geert van der Sluis, Niels Vennik, Brenda de Jong, Petra C Siemonsma
Purpose: Physical activity at home is vital after hospital or rehabilitation admission to support recovery and participation in society. This study aimed to identify determinative factors for physical activity at home during the first year post-discharge from the patient's perspective.
Materials and methods: Narrative storytelling was used to explore the underlying emotions and motivations behind physical activity behavior among orthopedic and neurological patients during the first year post-discharge. Analysis included extracting multiple real-life stories from each interview, followed by reflexive thematic analysis.
Results: Fourteen participants (9 orthopedic, 5 neurological) were interviewed. Across the extracted stories, 45 topics were identified and grouped into 4 main themes and 9 subthemes. Findings underscore that long-term physical activity requires rehabilitation to be rooted in patients' life roles, values, and priorities, enhancing autonomy and opportunities for personal functional activities in supportive clinical and home environments. Positive reinforcement and involvement of significant others, provided with practical strategies, were seen as essential for sustaining activity at home. Across neurological and orthopedic subgroups, shared determinative factors included focusing on daily life participation and fostering patients' responsibility and resilience.
Conclusions: Emphasizing participation in personal environments and fostering self-management, autonomy, and resilience may enhance physical activity at home.
{"title":"Exploring determinants of physical activity at home in the first year after hospital or rehabilitation discharge using patient narratives.","authors":"Ingrid C Rosbergen, Aline van der Feen, Wim F C van Houtert, Ester de Jonge, Jorit Meesters, Geert van der Sluis, Niels Vennik, Brenda de Jong, Petra C Siemonsma","doi":"10.1080/09638288.2026.2624504","DOIUrl":"https://doi.org/10.1080/09638288.2026.2624504","url":null,"abstract":"<p><strong>Purpose: </strong>Physical activity at home is vital after hospital or rehabilitation admission to support recovery and participation in society. This study aimed to identify determinative factors for physical activity at home during the first year post-discharge from the patient's perspective.</p><p><strong>Materials and methods: </strong>Narrative storytelling was used to explore the underlying emotions and motivations behind physical activity behavior among orthopedic and neurological patients during the first year post-discharge. Analysis included extracting multiple real-life stories from each interview, followed by reflexive thematic analysis.</p><p><strong>Results: </strong>Fourteen participants (9 orthopedic, 5 neurological) were interviewed. Across the extracted stories, 45 topics were identified and grouped into 4 main themes and 9 subthemes. Findings underscore that long-term physical activity requires rehabilitation to be rooted in patients' life roles, values, and priorities, enhancing autonomy and opportunities for personal functional activities in supportive clinical and home environments. Positive reinforcement and involvement of significant others, provided with practical strategies, were seen as essential for sustaining activity at home. Across neurological and orthopedic subgroups, shared determinative factors included focusing on daily life participation and fostering patients' responsibility and resilience.</p><p><strong>Conclusions: </strong>Emphasizing participation in personal environments and fostering self-management, autonomy, and resilience may enhance physical activity at home.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-13"},"PeriodicalIF":2.0,"publicationDate":"2026-02-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146121022","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}