Fostering self-advocacy development in service-based self-advocacy groups.

Abstract

Background: While the importance of self-advocacy for those with an intellectual disability is well recognised, little is known about how organisations can support self-advocacy development by implementing self-advocacy groups.

Method: This inclusive research study collected empirical data from fourteen self-advocates, two managers, three group supporters, and one advocacy coordinator, all experienced and involved in an established not-for-profit service-based self-advocacy group.

Results: Our findings identified several benefits of being involved in a self-advocacy group, including confidence-building, belonging, social inclusion, empowerment and affecting positive social change for the wider community. To ensure the success of self-advocacy groups, there must be "A Space and Place", "Meaningful Inclusion", and "Learning to Lead Opportunities".

Conclusion: Despite the positive benefits associated with self-advocacy, challenges remain. Society's expectations about self-advocacy are often not translated into practice, inclusion can be superficial, and a balance between independence and assistance is difficult to achieve where support is required.