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Co-existence of strabismus and Down syndrome in relation to visual impairment in institutionalised adults with intellectual disabilities: Implications for vision care.
IF 1.9 4区 医学 Q1 EDUCATION, SPECIAL Pub Date : 2025-02-03 DOI: 10.3109/13668250.2024.2446218
Ching-Ju Hsieh, I-Mo Fang, Fu-Gong Lin

Background: Visual impairment (VI) is common among people with intellectual disabilities, with rates up to 19%. This study assessed the prevalence and risk factors for ocular disorders in 341 institutionalised adults with intellectual disabilities in Taipei City from January 2016 to December 2017.

Method: The cross-sectional survey included visual acuity testing, cycloplegic refraction, strabismus evaluation, slit-lamp biomicroscopy, tonometry, and retinal exams.

Results: Most participants were aged 20-39 years (72.9%), and 57.6% were male. VI or blindness was found in 19.7%, with strabismus (28.0%) and high myopia (23.6%) as key risk factors. Logistic regression indicated strabismus and high myopia significantly increased VI risk (OR 2.32 and 4.86). In participants with Down syndrome, the strabismus-VI association was stronger (OR 4.83 vs 1.73 without DS), with an interactive effect increasing VI risk sixfold.

Conclusion: Early ocular screening and targeted interventions are crucial to reduce VI risk in adults with intellectual disabilities.

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引用次数: 0
Processing ambiguity in a social situation: A developmental and comparative study between a neurotypical population and a population with mild intellectual developmental disorder or borderline intellectual functioning. 在社会情境中处理歧义:一项神经正常人群与轻度智力发育障碍或边缘性智力功能人群的发展和比较研究。
IF 1.9 4区 医学 Q1 EDUCATION, SPECIAL Pub Date : 2025-01-19 DOI: 10.3109/13668250.2025.2449819
Kaëlig Raspail, Suzanne Igier, Valérie Pennequin

Background: The Social Information Processing (SIP) model has helped to identify specificities in the stages preceding the execution of social behaviour in people with mild intellectual developmental disorder or borderline intellectual functioning. However, uncertainties remain about the involvement of the underlying processes and their developmental expression.

Method: The aim of this research was to explore the stages of SIP from a comparative and developmental perspective. A total of 175 participants, from childhood to adulthood, with or without mild intellectual developmental disorder or borderline intellectual functioning, watched videos before answering a structured questionnaire relating to the SIP model.

Results: The results showed developmental specificities in encoding, a hostile intention attribution bias and the absence of specific behavioural patterns in a population with mild intellectual developmental disorder or borderline intellectual functioning compared with a neurotypical population.

Conclusion: These advances are discussed in relation to current clinical remediation therapies and new exploration methods.

背景:社会信息处理(SIP)模型有助于识别轻度智力发育障碍或边缘性智力功能障碍患者在执行社会行为之前的阶段的特异性。然而,关于潜在过程及其发育表达的参与仍然不确定。方法:本研究旨在从比较和发展的角度来探讨SIP的阶段。共有175名参与者,从童年到成年,有或没有轻度智力发育障碍或边缘性智力功能,在回答与SIP模型相关的结构化问卷之前观看了视频。结果:与神经正常人群相比,轻度智力发育障碍或边缘性智力功能人群在编码、敌对意图归因偏差和缺乏特定行为模式方面存在发育特异性。结论:讨论了目前临床修复治疗的进展和新的探索方法。
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引用次数: 0
Parents' initiative in community-based support for children with intellectual and developmental disabilities: The Ahada non-profit model. 以社区为基础支持智力和发育障碍儿童的父母倡议:阿达非营利模式。
IF 1.9 4区 医学 Q1 EDUCATION, SPECIAL Pub Date : 2025-01-17 DOI: 10.3109/13668250.2024.2437767
Orly Ganany-Dagan

Background: The birth of a child with an intellectual or developmental disability inherently presents challenges to parents regarding the child's long-term future. This qualitative study examined the perceptions of parents who are kibbutz members, focusing on the non-profit organisation they established and the socioeconomic model they developed to ensure the future wellbeing of their children with intellectual and developmental disabilities.

Method: In-depth interviews were conducted with 12 participants and used a thematic analysis based on case study methodology.

Results: The socioeconomic model developed by kibbutz parents helps alleviate their concerns, but also gave rise to challenges related to kibbutz privatisation and the requirement for programs to be tailored to individual needs. The study highlighted how cooperation among families, the community, and government institutions can contribute to individual and collective solutions for people with disabilities.

Conclusion: These insights expand our understanding of parental social entrepreneurship within intentional communities and other contexts.

背景:患有智力或发育障碍的孩子的出生天生就给父母带来了关于孩子长期未来的挑战。这项定性研究考察了作为基布兹成员的父母的看法,重点关注他们建立的非营利组织和他们为确保有智力和发育障碍的孩子未来的福祉而发展的社会经济模式。方法:对12名参与者进行深度访谈,采用基于案例研究法的专题分析。结果:基布兹父母开发的社会经济模式有助于减轻他们的担忧,但也带来了与基布兹私有化和要求根据个人需求量身定制方案相关的挑战。该研究强调了家庭、社区和政府机构之间的合作如何有助于为残疾人提供个人和集体解决方案。结论:这些见解扩展了我们在意向社区和其他背景下对父母社会企业家精神的理解。
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引用次数: 0
Does preservice teachers' contact with children with intellectual disabilities during their practicum impact their attitudes and teaching practices? "If you don't have the heart, you can't cope … ". 职前教师在实习期间与智障儿童的接触是否会影响他们的态度和教学实践?“如果你没有勇气,你就无法应付……”
IF 1.9 4区 医学 Q1 EDUCATION, SPECIAL Pub Date : 2025-01-17 DOI: 10.3109/13668250.2024.2437757
Daniel Miezah, Maxwell Peprah Opoku, Christopher Fenu, Keziah Deila Yankey, Ebenezer Mensah Gyimah, William Nketsia

Background: This study sought to explore the effects of preservice teachers' contact with children with intellectual disabilities on their attitudes. The study was conducted against the backdrop of the exclusion and discrimination experienced by children with intellectual disabilities in Ghanaian schools.

Method: Twenty-two preservice teachers who interned at a special school for children with intellectual disabilities were interviewed before and after their practicums, and the gathered data underwent thematic analysis.

Results: There were changes in the participants' knowledge and willingness to interact and work with children with intellectual disabilities. For instance, before the practicum, the participants held stereotypical understandings of intellectual disabilities. However, after their practicums, their level of discussion of the core characteristics of intellectual disabilities had improved.

Conclusion: Based on these findings, this study concludes by recommending that contact with children with intellectual disabilities be included as an integral part of preservice teacher training programmes.

背景:本研究旨在探讨职前教师接触智障儿童对其态度的影响。这项研究是在加纳学校中智力残疾儿童受到排斥和歧视的背景下进行的。方法:对22名在某智障儿童特殊学校实习的职前教师在实习前后进行访谈,并对所收集的数据进行专题分析。结果:参与者对智障儿童的认知和互动意愿发生了变化。例如,在实习前,参与者对智障有刻板印象。然而,经过实习,他们对智障核心特征的讨论水平有所提高。结论:基于这些发现,本研究建议将与智障儿童的接触作为职前教师培训计划的一个组成部分。
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引用次数: 0
Executive function is associated with behaviour problems in children and adolescents with cerebral palsy and intellectual disability. 患有脑瘫和智力残疾的儿童和青少年的执行功能与行为问题有关。
IF 1.9 4区 医学 Q1 EDUCATION, SPECIAL Pub Date : 2025-01-17 DOI: 10.3109/13668250.2024.2446215
Xun Li, Stewart Einfeld, Roger Stancliffe, Antoinette Hodge

Background: Children and adolescents with cerebral palsy (CP) commonly have behaviour problems. The present study aimed to determine which of the most common clinical features experienced by children and adolescents with CP and intellectual disability are associated with behaviour problems.

Method: We investigated 11 possible associated variables including epilepsy, visual and hearing impairments, motor difficulties, communication and speech difficulties, pain, sleep disturbance, executive function (EF) deficits, type of CP, and parent stress. Thirty-eight parents or guardians of children aged 6 to 17 years with CP and intellectual disability (parent informed) completed proxy and self-report standardised questionnaires.

Results: EF deficits and parent stress were significantly associated with behavioural problems.

Conclusion: For children and adolescents with CP and intellectual disability, the present study suggests close attention should be placed on specific clinical features including EF deficits and parent stress when considering variables associated with behaviour problems.

背景:儿童和青少年脑瘫(CP)通常有行为问题。本研究旨在确定患有CP和智力残疾的儿童和青少年最常见的临床特征与行为问题有关。方法:我们调查了11个可能的相关变量,包括癫痫、视觉和听力障碍、运动困难、交流和语言困难、疼痛、睡眠障碍、执行功能(EF)缺陷、CP类型和父母压力。38名6至17岁患有CP和智障儿童的家长或监护人(家长知情)完成了代理和自我报告的标准化问卷。结果:EF缺陷和父母压力与行为问题显著相关。结论:对于患有CP和智力残疾的儿童和青少年,本研究建议在考虑与行为问题相关的变量时,应密切关注具体的临床特征,包括EF缺陷和父母压力。
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引用次数: 0
2023 JIDD Awards Announcement. 2023 JIDD奖项公告。
IF 1.9 4区 医学 Q1 EDUCATION, SPECIAL Pub Date : 2024-12-01 Epub Date: 2024-12-09 DOI: 10.3109/13668250.2024.2426495
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引用次数: 0
Family members use superficial justice information to evaluate performance of sheltered workshops: A warning about “cognitive shortcuts” 家庭成员利用肤浅的司法信息来评估庇护工场的表现:关于 "认知捷径 "的警告
IF 1.3 4区 医学 Q1 EDUCATION, SPECIAL Pub Date : 2024-08-27 DOI: 10.3109/13668250.2024.2389190
Alice Maniezki, Vicente Martínez-Tur, Yolanda Estreder, Carolina Moliner, José Ramos
A growing number of services are focused on people with intellectual disabilities. Our study investigates interpersonal justice (interpersonal treatment families receive from service professionals)...
越来越多的服务机构开始关注智障人士。我们的研究调查了人际公正(家庭从专业服务人员那里获得的人际待遇)...
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引用次数: 0
The uniquely relational role of nurses during the closure of large residential institutions for people with intellectual disability in Australia: A qualitative study 澳大利亚大型智障人士寄宿机构关闭期间护士的独特关系角色:定性研究
IF 1.3 4区 医学 Q1 EDUCATION, SPECIAL Pub Date : 2024-08-26 DOI: 10.3109/13668250.2024.2394194
Peter Lewis, Kathryn M. Weston
After decades of planning, nurses played a pivotal role in achieving the closure of large residential institutions for people with intellectual disability by 2018. This paper describes the experien...
经过数十年的规划,护士在实现到 2018 年关闭大型智障人士寄宿机构的目标中发挥了关键作用。本文介绍了护士在关闭大型智障人士寄宿机构中的经验。
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引用次数: 0
Relatives’ experiences of quality of healthcare services for adults with profound intellectual and multiple disabilities in Sweden 瑞典严重智力和多重残疾成人亲属对医疗服务质量的体验
IF 1.3 4区 医学 Q1 EDUCATION, SPECIAL Pub Date : 2024-07-18 DOI: 10.3109/13668250.2024.2377270
Marie Matérne, Marie Holmefur
There is little research regarding quality of health care for people with profound intellectual and multiple disabilities (PIMD), who often are represented by their relatives, because of their limi...
由于重度智力和多重残疾(PIMD)患者的医疗保健质量有限,他们通常由其亲属代表,因此有关他们医疗保健质量的研究很少。
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引用次数: 0
Interdisciplinarity and self-injury: Toward an inclusive research and treatment paradigm 跨学科与自我伤害:迈向包容性研究和治疗范式
IF 1.3 4区 医学 Q1 EDUCATION, SPECIAL Pub Date : 2024-07-02 DOI: 10.3109/13668250.2024.2370564
Caroline L. Roberts, Madilyn Larsh, Frank Symons
Historically, the research and treatment of self-injury has been disciplinarily siloed. As a result, the behaviour is understood and treated differently among individuals with and without intellect...
从历史上看,对自我伤害的研究和治疗一直都是各自为政。因此,有智力障碍的人和没有智力障碍的人对这种行为的理解和治疗方式都不尽相同...
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Journal of Intellectual & Developmental Disability
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