Partnering With Youth to Enhance Healthcare Access and Experience: Lessons Learned From a Teen Advisory Group

IF 3.2 3区医学 Q2 HEALTH CARE SCIENCES & SERVICES Health Expectations Pub Date : 2025-03-23 DOI:10.1111/hex.70220

Christi H. Esquivel, Sara A. Flores, Kristen Garcia, Whitney Garney, Kelly Wilson

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Abstract

Introduction

Youth are experts of their experiences and well-positioned to be effective partners in innovation. A common method to engage youth in innovation is through an advisory board. This paper focuses on the development and implementation of a nation-wide teen advisory group (TAG) as part of the Comprehensive Healthcare for Adolescents Initiative (CHAI) Project at Texas A&M University. The CHAI project aimed to develop innovative programs that increase youth access to, and enhance experiences with, healthcare services. A TAG was developed at the project's onset to ensure youth voice and experiences drove the program development process. This paper describes methods used to recruit and convene CHAI TAG members, results and outcomes of their efforts throughout the program development process, and conclusions and lessons learned for practitioners and youth engagement researchers.

Methods

Project staff from Texas A&M University recruited youth from across the nation through electronic mediums in Fall 2020. Engagement comprised meeting attendance and take-home activities. All meetings and activities were optional based on the youth's availability.

Results

Throughout the project, CHAI hosted 31 virtual meetings and offered nearly 20 unique activity opportunities for TAG members. Their insights and ideas drove the direction of the program development process, informing program design and content.

Conclusion

The TAG's insights and feedback were instrumental in developing programs related to youth-friendly spaces, confidentiality, assessing for unmet needs and healthcare navigation. The program's success in engaging youth provides a model for other youth engagement efforts.

Patient or Public Contribution

This paper focuses on how a group of young people from across the country served as members of a teen advisory group (TAG) to develop innovative programs for healthcare settings. Said TAG members provided invaluable insight that informed and drove a cyclical program development process. The TAG members began by sharing their experiences with healthcare services and providers, then they envisioned ideal healthcare encounters. Such experiences, along with the youths' continuous feedback, led to the development and fine-tuning of three program ideas focused on organizational change to improve adolescent healthcare.

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与青年合作，提高医疗保健的可及性和经验：从青少年咨询小组获得的经验教训

青年是经验的专家，有能力成为创新的有效伙伴。让年轻人参与创新的一个常见方法是通过顾问委员会。这篇论文的重点是发展和实施一个全国性的青少年咨询小组（TAG）作为青少年综合医疗保健倡议（CHAI）项目的一部分在德克萨斯农工大学。CHAI项目旨在开发创新方案，增加青年获得医疗保健服务的机会，并增强他们对医疗保健服务的体验。在项目启动之初，就制定了一个评估小组，以确保青年的声音和经验推动项目开发过程。本文描述了招募和召集CHAI TAG成员的方法，他们在整个项目发展过程中努力的结果和成果，以及从业者和青年参与研究人员的结论和经验教训。方法来自德州农工大学的项目工作人员于2020年秋季通过电子媒介从全国各地招募青年。参与包括出席会议和带回家的活动。所有的会议和活动都是可选的，取决于青年是否有空。结果在整个项目中，CHAI主持了31次虚拟会议，为TAG成员提供了近20个独特的活动机会。他们的见解和想法推动了节目开发过程的方向，为节目设计和内容提供了信息。TAG的见解和反馈有助于开发与青年友好空间、保密性、未满足需求评估和医疗保健导航相关的项目。该计划在吸引青年参与方面的成功为其他青年参与工作提供了一个模式。患者或公众贡献本文重点介绍了一群来自全国各地的年轻人如何作为青少年咨询小组（TAG）的成员，为医疗保健机构制定创新方案。专家组成员提供了宝贵的见解，告知并推动了周期性的项目开发过程。小组成员首先与医疗保健服务机构和提供者分享他们的经验，然后设想理想的医疗保健相遇。这样的经验，加上青少年不断的反馈，导致了三个项目的发展和微调，这些项目的重点是组织变革，以改善青少年的医疗保健。

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来源期刊

Health Expectations 医学-公共卫生、环境卫生与职业卫生

CiteScore

5.20

自引率

9.40%

发文量

251

审稿时长

>12 weeks

期刊介绍： Health Expectations promotes critical thinking and informed debate about all aspects of patient and public involvement and engagement (PPIE) in health and social care, health policy and health services research including: • Person-centred care and quality improvement • Patients'' participation in decisions about disease prevention and management • Public perceptions of health services • Citizen involvement in health care policy making and priority-setting • Methods for monitoring and evaluating participation • Empowerment and consumerism • Patients'' role in safety and quality • Patient and public role in health services research • Co-production (researchers working with patients and the public) of research, health care and policy Health Expectations is a quarterly, peer-reviewed journal publishing original research, review articles and critical commentaries. It includes papers which clarify concepts, develop theories, and critically analyse and evaluate specific policies and practices. The Journal provides an inter-disciplinary and international forum in which researchers (including PPIE researchers) from a range of backgrounds and expertise can present their work to other researchers, policy-makers, health care professionals, managers, patients and consumer advocates.