Without reliable evaluation tools, ensuring the quality of patient engagement is difficult. The Public and Patient Engagement Evaluation Tool (PPEET) was designed to assess and improve excellence in patient and public engagement (PPE) initiatives across various health system organisations. Since language significantly affects the psychometric properties of research instruments, validated versions of these instruments are crucial.
This study represents the initial phase of exploratory research and marks the first effort to validate the Arabic translation of the PPEET and to track its impact on the healthcare systems of Lebanon and other Arabic-speaking countries. This is a mixed-methods qualitative and quantitative cross-sectional validity and reliability study. The validity was tested by interviewing 10 bilingual healthcare experts. The internal consistency reliability was measured with Cronbach's α and correlation coefficient analysis (N = 60).
Healthcare experts, who were consulted for the face validity of the translated PPEET, had an average age of (34.7 ± 7.9) years with a mean years of work experience of (8.9 ± 6.9). The average clarity percentage for all translated surveys was 96.42%. Cronbach's α coefficients for Participants' Questionnaire Module A, Participants' Questionnaire Module B, Project and Organisation Questionnaire were 0.79, 0.89, 0.95 and 0.89, respectively.
This study demonstrates that the Arabic version of the PPEET is a valid and reliable tool. A large-scale sample would be beneficial for further analysis.
In this study, patient partners were incorporated into the research team as research contributors in the design and implementation of the methodology, not only as consenting participants.
Patient–physician communication in oncology has been studied extensively. Most studies have focused on healthcare professionals' (HCPs) communication, showing the importance of a patient-centred approach. While some studies have explored the behaviours of patients and their relatives, the majority have centred on HCPs' behaviours, with much less attention to patients' communication patterns during consultations. The main objective of this systematic review was to examine how patients communicate and behave during oncology consultations and to identify the factors influencing these behaviours.
Five databases were searched to find studies analyzing the communication patterns of patients and their relatives during oncology consultations that were audio- and/or video-recorded.
Based on the 34,779 references identified, we included 47 studies in our review. Three main themes emerged from the analysis: (1) patients' communication patterns and the topics discussed during oncology consultations; (2) factors influencing patient communication; and (3) patients' perception of and satisfaction with the consultation.
Patients exhibited active behaviours during consultations. However, many factors can influence interactions. We recommend taking a comprehensive approach that involves considering communication factors and supporting the development of patient-centred strategies tailored to individual patient needs. HCPs should not only practice patient-centred care; they should also implement specific actions to address patients' psychosocial needs. Future research should also utilize complex models to better understand the dynamics of patient–provider communication.
Encouraging healthy behaviours among rural residents in China is crucial to promote health and well-being. Although financial incentives are known to be effective in promoting single healthy behaviours, their efficacy in simultaneously encouraging multiple healthy behaviours remains unclear. This study aimed to test the feasibility and acceptability of an incentive-based intervention to encourage multiple healthy behaviours.
‘Health Bank’, a digital platform established by the Changxing County Center for Disease Control and Prevention, was employed financial incentives to engage villagers in promoting healthy behaviours. The intervention, conducted from January to October 2022, was followed by a mixed-methods evaluation in November 2022 to assess its feasibility and acceptability as the primary outcomes. Feasibility was assessed based on quantitative data from self-administered questionnaires and routine data, while acceptability was assessed by conducting semi-structured interviews.
Routine data indicated that 1164 out of 3137 (37.1%) villagers participated in ‘Health Bank’, with the majority completing the required three daily healthy behaviours, despite their low participation rates in other behaviours. Among the 140 surveyed villagers, 68 respondents were not willing to participate in ‘Health Bank’, with only 19% refraining due to a lack of interest or need. The qualitative results suggested that financial incentives were a compelling factor for most participants, though challenges remained regarding the programme's elderly-friendliness, gift redemption process and the range of activities covered.
Although the incentive-based behaviour change intervention exhibited promising feasibility and acceptability, participant feedback necessitates further modifications. To comprehensively assess the efficacy of this intervention, larger-scale, randomised controlled trials were encouraged.
A team-based approach was taken for developing the incentive-based intervention model for this study. This included experienced staff from local Centers for Disease Control and Prevention, as well as community workers and community residents.
To explore the experiences and perspectives of older adults living with diabetes, in relation to insulin management during a surgical hospital admission and identify factors that appear to be associated with insulin safety in these older people. To identify key messages that address people with diabetes priorities, to be used in staff education.
Qualitative study, conducted in a single, rural NHS hospital. Ten semi-structured phone interviews were held with older adults with diabetes, with or without frailty, treated with insulin while undergoing surgical hospital admission. Framework analysis was employed in data analysis.
Six people with type 2 diabetes and four people with type 1 diabetes, aged 68 to 91 years old (mean age 77.2 years [SD = 6.2]) participated in the study. Four themes identified specific to hospital insulin management and safety: (1) preparedness for hospital admission; (2) feeling disempowered in hospital; (3) staff knowledge, confidence, attitudes and behaviours; (4) diabetes and insulin management as a balancing act. In addition, participants co-designed an infographic to help hospital staff understand what matters most to older adults in terms of managing their insulin safely in the hospital.
Lack of joined-up care, staff knowledge gaps and lack of empowerment ethos hinder hospital insulin safety. This study identified that having a self-management policy in a hospital does not necessarily mean it is implemented for older adults with diabetes. Using a co-design approach to engage with older adults helped to identify components critical to hospital insulin safety interventions.
Patients and members of the public are involved in study design and interpretation of findings. Before the study, a diabetes peer-support group reviewed and contributed to the interview topic guide and study recruitment documentation. Study participants co-designed the infographic developed.
Hennessy, M., Dennehy, R., O'Leary, H., O'Donoghue, K., and RE:CURRENT Research Advisory Group (2024), “Involving Knowledge Users in Health Services Research: Collective Reflections and Learning From a National Evaluation of Recurrent Miscarriage Services,” Health Expectations, 27: e70125. https://doi.org/10.1111/hex.70125.
Please refer to the corrected text in the revised Table 1 below.
We apologise for these errors.
Effective communication is central to safe, high-quality primary care. For Bangladeshi communities in the United Kingdom (UK), linguistic barriers continue to impede access to timely and culturally sensitive healthcare. This study describes an early phase of the co-production pathway of the tool seeking to understand the contextual acceptability of an AI-enabled translation tool designed for general practice, with functionality to capture symptoms, clinical problems, across diverse Bangladeshi dialects and provide guidance on next steps.
We conducted a series of semi-structured interviews with a sample of Bangladeshi patients from South Birmingham, UK to understand their attitudes towards using the AmarDoctor translation tool. The data were analysed using a directed content analysis to populate Sekhon's theoretical framework of acceptability.
Seven participants, all native Bengali speakers, were recruited. AmarDoctor was viewed positively for supporting appointment booking, guiding appropriate next steps, and offering a safe, anonymous means of discussing sensitive concerns. Noted strengths were its ability to capture symptoms in multiple Bengali dialects and its ease of use by those with limited digital literacy. The most frequently shared concern centred on the potential for translation inaccuracies and the subsequent risks.
Participants expressed optimism about the role of AmarDoctor and similar AI-enabled translation tools in improving access to primary care. To gain wider acceptance, AmarDoctor must maximise the next steps of the co-production process that includes staff and commissioners to ensure translation accuracy meets the needs of all users and that credible pathways for implementation at scale are developed.
Patients and the public have been involved from the beginning of the AmarDoctor initiative, contributing to the design and content of patient facing materials, and informing the content of our topic guide.
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