[Between experiencing meaning and self-realization: a qualitative study on utilization of help from the perspective of family caregivers].

Abstract

Background: Family caregivers (FC) rarely utilize formal and informal help, which affects their burden and quality of life. Factors that result in rejection are often psychosocial (shame, guilt, heteronomy and social expectations). Previous studies on psychosocial reasons neglected the spiritual dimension. This study aims to identify the psychosociospiritual reasons for the (non)utílization of help from the perspective of FCs.

Methods: This qualitative study conducted semi-structured interviews with 24 FCs between August 2022 and July 2023 and analyzed according to Mayring.

Results: The FCs request formal and informal help to find a balance between their needs and those of the persons in need of care and to develop and maintain interpersonal boundaries. Help is rejected due to negative experiences with help offers as well as personal, familiar, and social role expectations. As long as nursing care is seen as the only meaning in life, help from outside can be perceived as a threat.

Conclusion: When utilizing help, it is not only about the quality of the offered help but also about its compatibility with one's own values and aims. Psychosociospiritual counselling should be provided before counselling for benefits.