An Examination of Patient Knowledge and Education in Patients with Osteoporosis, Osteopenia, and Normal Bone Density

IF 1.6 4区 医学 Q4 ENDOCRINOLOGY & METABOLISM Journal of Clinical Densitometry Pub Date : 2025-07-01 Epub Date: 2025-03-19 DOI:10.1016/j.jocd.2025.101578
Ahdad Ziyar , Alexander Bolufer , Emily Littman , Shazia Beg
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Abstract

Introduction: Osteoporosis represents a preventable and often treatable condition that is responsible for 1.5 million fractures annually in the United States. Proper patient knowledge represents a crucial aspect of disease management and has potential implications in treatment adherence and lifestyle modification. By examining how much patients know about their own diagnosis, their disease knowledge, and what resources they would like to use, we aim to lay the groundwork for developing efficient patient education resources. Methodology: We surveyed 52 individuals and collected data on demographics, bone density test results, disease knowledge, and educational sources both used and preferred. This was done to learn how much patients know about their condition on a fundamental level. Results: 50% of participants diagnosed with osteoporosis correctly self-reported their condition, as did 21.1% diagnosed with osteopenia. Between the normal, osteopenia, and osteoporosis groups there were no significant differences between participants’ scores on the patient knowledge questionnaire. The resources most used by patients were handouts/brochures and internet/personal research, and patients reported a preference for learning directly from their doctor/nurse. Conclusion: Osteoporosis is associated with millions of fragility fractures occurring annually worldwide. Our study showed a consistent level of knowledge across patients with normal bone mineral density, osteopenia, and osteoporosis, suggesting the need for targeted education efforts, particularly for those with severe forms of the disease. We confirmed the invaluable role of medical personnel in teaching patients about bone density loss. It is through efficient learning that patients can be empowered to take charge of their health.
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骨质疏松症、骨质减少症和正常骨密度患者的知识和教育检查
骨质疏松症是一种可预防且通常可治疗的疾病,每年在美国造成150万例骨折。适当的患者知识代表了疾病管理的一个关键方面,并对治疗依从性和生活方式的改变具有潜在的影响。通过检查患者对自己的诊断、疾病知识的了解程度,以及他们想要使用的资源,我们的目标是为开发有效的患者教育资源奠定基础。方法:我们调查了52个人,收集了人口统计学、骨密度测试结果、疾病知识和常用和首选的教育来源的数据。这样做是为了了解患者在基本层面上对自己的病情了解多少。结果:50%被诊断为骨质疏松的参与者正确地自我报告了他们的病情,21.1%被诊断为骨质减少。在正常组、骨质疏松组和骨质疏松组之间,参与者在患者知识问卷上的得分没有显著差异。患者使用最多的资源是讲义/小册子和互联网/个人研究,患者报告更倾向于直接从他们的医生/护士那里学习。结论:骨质疏松症与全球每年发生的数百万例脆性骨折有关。我们的研究显示,正常骨密度、骨质减少和骨质疏松患者的知识水平是一致的,这表明有必要进行有针对性的教育,特别是对那些患有严重疾病的患者。我们证实了医务人员在教导患者骨密度损失方面的宝贵作用。只有通过有效的学习,病人才能掌握自己的健康。
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来源期刊
Journal of Clinical Densitometry
Journal of Clinical Densitometry 医学-内分泌学与代谢
CiteScore
4.90
自引率
8.00%
发文量
92
审稿时长
90 days
期刊介绍: The Journal is committed to serving ISCD''s mission - the education of heterogenous physician specialties and technologists who are involved in the clinical assessment of skeletal health. The focus of JCD is bone mass measurement, including epidemiology of bone mass, how drugs and diseases alter bone mass, new techniques and quality assurance in bone mass imaging technologies, and bone mass health/economics. Combining high quality research and review articles with sound, practice-oriented advice, JCD meets the diverse diagnostic and management needs of radiologists, endocrinologists, nephrologists, rheumatologists, gynecologists, family physicians, internists, and technologists whose patients require diagnostic clinical densitometry for therapeutic management.
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