Development of a questionnaire to measure quality of life in patients with irritable bowel syndrome.

The European journal of surgery. Supplement. : = Acta chirurgica. Supplement Pub Date : 1998-01-01 DOI:10.1080/11024159850191247

E Wong, G H Guyatt, D J Cook, L E Griffith, E J Irvine

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引用次数: 68

Abstract

Objective: To develop a questionnaire for measuring health-related quality of life (HRQL) in patients with Irritable Bowel Syndrome (IBS).

Methods: We surveyed the existing literature, and interviewed patients and clinicians, to develop a list of 182 potential problems for IBS patients. One hundred patients with IBS completed a questionnaire in which they told us whether each of the 182 items was a problem for them, and if so the magnitude of their importance in their lives.

Results: Patients identified four major problem areas: bowel symptoms, fatigue, activity limitations, and emotional dysfunction. On the basis of these findings, we constructed a 26-item questionnaire which, in pre-testing, 16 patients found clear and easy to complete.

Conclusion: We have developed a questionnaire that measures HRQL in IBS patients and is suitable for use as an outcome measure in clinical trials in IBS.

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肠易激综合征患者生活质量调查问卷的制定。

目的:编制一份测量肠易激综合征(IBS)患者健康相关生活质量(HRQL)的问卷。方法:我们调查了现有文献，并采访了患者和临床医生，制定了肠易激综合征患者的182个潜在问题清单。100名肠易激综合征患者完成了一份调查问卷，他们在问卷中告诉我们，182项中的每一项对他们来说是否都是一个问题，如果是的话，它们在他们生活中的重要性有多大。结果:患者确定了四个主要问题领域:肠道症状、疲劳、活动受限和情绪障碍。在此基础上，我们编制了一份26项的问卷，在预测中，有16例患者认为问卷内容清晰且易于填写。结论:我们开发了一份测量IBS患者HRQL的问卷，适合作为IBS临床试验的结果测量指标。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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The European journal of surgery. Supplement. : = Acta chirurgica. Supplement

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