A challenging case: how should an IRB rule when a protocol calls for using an extremely vulnerable population: the dying?

Protecting human subjects Pub Date : 2005-01-01
George Agich, David Smith, Robert Levine
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一个具有挑战性的案例:当一项协议要求使用一个极其脆弱的人群:垂死的人时,IRB应该如何规则?
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A challenging case: how should an IRB rule when a protocol calls for using an extremely vulnerable population: the dying? Has compliance eclipsed ethics? Should we expect serious ethical consideration or give up and admit that regulations are the only hope? What do researchers say? What do subjects hear? Not what they would like to hear. What do subjects need? More information. "Inefficient, arbitrary, inconsistent": a frank look at how some investigators view IRBs and a few suggestions for improvement. Beyond our borders: different laws, different languages. Universal ethics?
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