The moral implications of prenatal genetic testing.

Penn bioethics journal Pub Date : 2006-01-01
Peter Chipman
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Abstract

The advance of medical technology now permits many genetic tests to be administered to a fetus in the womb. The goal of this testing is to determine the potential for genetically based disorders and disabilities. The use of these tests has major implications on the decision of a parent to abort a child based on what information they find in the prospective child's genes. Advocates of prenatal testing argue that it enables the families of these prospective children to make an informed decision when faced with the possibility of disability. I argue that this choice is drastically limited by social coercion through a discriminatory and stereotyped perception of the disabled community. Permitting an uncontrolled barrage of prenatal genetic tests will further promote the stereotype of a disabled life, and thus hinders our societal goal to recognise and promote equality and individuality. Which disabilities to test for, or what genes to search for, is a judgement that should be made only through extensive consultation with members of the disabled community, including individuals who have suffered from or who have been directly associated with the disability which is said to be tested.

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产前基因检测的道德含义。
医学技术的进步现在允许对子宫里的胎儿进行许多基因测试。这种检测的目的是确定遗传疾病和残疾的可能性。这些测试的使用对父母根据他们在未来孩子的基因中发现的信息决定堕胎有重大影响。产前检查的支持者认为,它使这些未来孩子的家庭在面临残疾的可能性时能够做出明智的决定。我认为,由于对残疾人群体的歧视和刻板印象,这种选择受到了社会强制的极大限制。允许不受控制的大量产前基因检测将进一步助长对残疾生活的刻板印象,从而阻碍我们承认和促进平等和个性的社会目标。检测哪一种残疾,或者寻找什么基因,只能通过与残疾人社区的成员,包括那些患有或与据说要检测的残疾直接相关的个人进行广泛协商来作出判断。
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The moral implications of prenatal genetic testing. Justified paternalism: the nature of beneficence in the care of dementia patients. The ethics of placebo-controlled studies on perinatal HIV transmission and its treatment in the developing world. Abortion: pro and contra. Kant's assessment of motivation in the fulfillment of social obligations.
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