The Genetic Information Nondiscrimination Act 2008: What clinicians should understand.

Jennifer M Clifton, Susan S VanBeuge, Christine Mladenka, Kelly K Wosnik
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引用次数: 23

Abstract

Purpose: To explain the Genetic Information Nondiscrimination Act (GINA), what it covers, and what it does not cover to aid primary care practitioners in advising their patients.

Data sources: Governmental agencies, congressional records, and various nongovernmental agencies, press releases, and journal articles.

Conclusions: The GINA will protect patients from employment and insurance information in multiple ways. However, loopholes exist which will need to be addressed at the next review of the Act in 6 years.

Implications for practice: In order to provide accurate information regarding genetic testing, clinicians need to be familiar with key factors about GINA regarding law, practice, impact on patients and their rights in terms of genetic testing.

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2008年遗传信息非歧视法案:临床医生应该了解的。
目的:解释遗传信息非歧视法案(GINA),它涵盖了什么,它不包括什么,以帮助初级保健从业人员在建议他们的病人。数据来源:政府机构、国会记录、各种非政府机构、新闻稿和期刊文章。结论:GINA将从多个方面保护患者的就业和保险信息。然而,该法案存在漏洞,需要在6年后的下一次审查中加以解决。对实践的启示:为了提供准确的基因检测信息,临床医生需要熟悉GINA在基因检测方面的法律、实践、对患者的影响及其权利等关键因素。
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