Spirituality, Self-Efficacy, and Quality of Life among Adults with Sickle Cell Disease.

Maxine Adegbola
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Abstract

Spirituality and self-efficacy both have been identified as factors that contribute to management of chronic illnesses and quality of life (QOL). For individuals with sickle cell disease (SCD), the lifespan is increasing, but adults report low self-efficacy, ineffective coping skills and poor QOL. The care of adult patients with SCD requires a complex, multidisciplinary team approach with a focus not only on physiological, psychological, and social needs, but also on spiritual needs. However, spirituality, self-efficacy and QOL have been little studied in individuals with SCD.This study explored the relationships among spirituality, self-efficacy, and QOL in adults with SCD. The study used a descriptive correlational design. Prospective participants, 18 years and older, were invited to participate in the study through a mail out and electronic survey.Individuals who reported high levels of spirituality and self-efficacy reported high levels of QOL. Self-efficacy and spirituality accounted for more than 50%, of the variance in QOL.This study provides information about the roles that spirituality, self-efficacy, and QOL play in the lives of adults with SCD and gives direction for developing holistic interventions.

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镰状细胞病成人的精神、自我效能和生活质量。
精神和自我效能被认为是有助于控制慢性疾病和提高生活质量(QOL)的因素。镰状细胞病(SCD)患者的寿命在延长,但成人患者的自我效能感低、应对能力差、生活质量低。成年 SCD 患者的护理需要复杂的多学科团队方法,不仅要关注生理、心理和社会需求,还要关注精神需求。本研究探讨了成年 SCD 患者的精神、自我效能和 QOL 之间的关系。本研究采用描述性相关设计。通过邮寄和电子调查邀请 18 岁及以上的潜在参与者参与研究。这项研究提供了有关精神、自我效能和 QOL 在 SCD 成人患者生活中的作用的信息,并为制定整体干预措施指明了方向。
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Spirituality, Self-Efficacy, and Quality of Life among Adults with Sickle Cell Disease. Recruitment of Rural African Americans for Research Projects: Lessons Learned. PUBLIC HEALTH NURSING IN MISSISSIPPI: CHANGES IN CONTEXT AND PRACTICE. Data Collection Order: A Primer.
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