Understanding the social and community support networks of American Indian women cancer survivors.

Yeon-Shim Lee, Catherine E Burnette, Jessica Liddell, Soonhee Roh
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Abstract

Cancer is the leading cause of death among American Indian and Alaska Native (AI/AN) women. Although cancer disparities among AI women are alarming, there is littlle research focused on the topic of social support and cancer treatment and outcomes. A community advisory board was used to develop and administer the project, and a qualitative descriptive study methodology was used. This research was conducted in partnership with two community-based hospitals in the Northern Plains. The sample included 43 AI female cancer survivors who were interviewed with a semi-structured interview guide. The data were analyzed using content analysis. Emergent themes revealed that AI cancer survivors' non-familial support systems included friends (n = 12), support groups (n = 6), churches (n = 10), co-workers (n = 5), communities (n = 4), support from health practitioners (n = 3), and additional forms of support. Results indicate that survivors' networks are diverse and support broad prevention programs that reach out to churches, community groups, and online forums. These sources of supports can be enhanced through sustainable community-based infrastructures.

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了解美国印第安妇女癌症幸存者的社会和社区支持网络。
癌症是美国印第安人和阿拉斯加原住民(AI/AN)妇女的主要死因。尽管美国印第安人和阿拉斯加原住民妇女患癌的差距令人担忧,但有关社会支持和癌症治疗及结果的研究却很少。该项目由一个社区咨询委员会负责开发和管理,并采用了定性描述研究方法。这项研究是与北部平原的两家社区医院合作进行的。样本包括 43 名人工智能女性癌症幸存者,她们在半结构化访谈指南的指导下接受了访谈。采用内容分析法对数据进行了分析。新出现的主题显示,人工智能癌症幸存者的非家庭支持系统包括朋友(12 人)、支持团体(6 人)、教会(10 人)、同事(5 人)、社区(4 人)、医疗从业人员的支持(3 人)以及其他形式的支持。研究结果表明,幸存者的网络是多样化的,并且支持广泛的预防计划,这些计划可以深入到教会、社区团体和在线论坛。这些支持来源可以通过可持续的社区基础设施得到加强。
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