Deanna Allred, Tracy M Frech, Cynthia McComber, Kathryn Peterson, Gloria Ortiz, Constance McNeill, Linsey Broadbent, Nancy Elorreaga, Thomas Miller, Mary Beth Scholand
{"title":"Chronic Multiorgan Rare Disease: The Role of the Nurse Practitioner as a Leader of the Healthcare Team.","authors":"Deanna Allred, Tracy M Frech, Cynthia McComber, Kathryn Peterson, Gloria Ortiz, Constance McNeill, Linsey Broadbent, Nancy Elorreaga, Thomas Miller, Mary Beth Scholand","doi":"","DOIUrl":null,"url":null,"abstract":"<p><p>Value in healthcare must focus on accessibility, quality, and affordability. This article describes how a healthcare team provides value by meeting the needs of a rare disease patient and underscores the importance of a chronic multiorgan rare disease home. A nurse practitioner can ensure that barriers to evaluation are removed and communication is prioritized in order to provide accessible and affordable care to a patient with rare disease without jeopardizing quality of care.</p>","PeriodicalId":80215,"journal":{"name":"The Journal of medical practice management : MPM","volume":"32 6","pages":"413-416"},"PeriodicalIF":0.0000,"publicationDate":"2017-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6326372/pdf/nihms904911.pdf","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"The Journal of medical practice management : MPM","FirstCategoryId":"1085","ListUrlMain":"","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"","JCRName":"","Score":null,"Total":0}
引用次数: 0
Abstract
Value in healthcare must focus on accessibility, quality, and affordability. This article describes how a healthcare team provides value by meeting the needs of a rare disease patient and underscores the importance of a chronic multiorgan rare disease home. A nurse practitioner can ensure that barriers to evaluation are removed and communication is prioritized in order to provide accessible and affordable care to a patient with rare disease without jeopardizing quality of care.