Using Technology to Seek the Vulnerable and Marginalized Child's Voice in Hospital: Co-working with a 'Child Research Advisory Group' (CRAG).

Abstract

This paper illustrates the development, value and outcome of co-working with a 'child research advisory group' (CRAG) within healthcare research. The UK qualitative study completed as part of a Doctorate in Education (EdD) primarily explored the child's experience of hospital in Northern Ireland from the perspective of the child (and children's nurse). Essentially the role of the CRAG was to co-develop simple research questions and a data collection tool which was child centered, rather than adult centered - the research tool would be used with the main study child participants aged six to 12 years old in 2017. Five primary school children, with experience of hospital from year six and seven agreed to act as a CRAG in 2016. The outcome being an innovative data collection tool which is an App featuring the choice of two talking cartoon characters who asked the co-designed research questions via an iPad. The characters are Sprinkle Cupcake and Ronaldo Football.