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Association Between Self-Esteem and Family Functioning with Adolescent Pregnancy. A Case-Control Study. 青少年怀孕与自尊、家庭功能的关系。病例对照研究。
IF 1.4 Pub Date : 2025-12-08 DOI: 10.1080/24694193.2025.2600513
Edith Araceli Cano-Estrada, Jazmin Adaly Acosta-Valera, Jose Angel Hernández-Mariano, Ana Cristina Castañeda-Márquez

Adolescent pregnancy is a global phenomenon that increases the risk of maternal and neonatal morbidity and mortality. In addition, early parenthood has implications that foster intergenerational poverty and social exclusion. Hence, this study aimed to evaluate the association between self-esteem and family functioning with teenage pregnancy. We conducted a case-control study from April to November 2023 at two community health centers in Hidalgo, Mexico. Primiparous adolescents aged 10 to 19 whose gestational age was less than 21 weeks and who attended a prenatal checkup consultation were considered the case group. Conversely, the control group consisted of non-pregnant adolescents (aged 10-19 years) who visited the same community health centers for medical consultations. The APGAR family scale was used to assess the family functioning of the participants, and self-esteem was assessed using the Rosenberg Self-Esteem Scale. The associations between the variables of interest were evaluated using logistic regression models adjusted by confounders. After adjusting for confounders, adolescents with medium (adjusted odds ratio [aOR] = 1.81; 95% confidence interval [95% CI] = 0.91, 3.59; p-value = .086) and lo8w self-esteem (aOR = 4.04; 95% CI = 1.96, 8.31; p-value = .030) compared to those with high self-esteem were more likely to be mothers. Besides, we found that the lower the self-esteem, the greater the odds of being an adolescent mother (p-trend <0.014). On the other hand, adolescents with moderate (aOR = 2.31; 95% CI = 1.03, 5.21; p-value = .031) and severe family dysfunction (aOR = 4.00; 95% CI = 1.61, 9.97; p-value = .001) were more likely to be adolescent mothers compared to those with good family functioning. Furthermore, we found that the greater the family dysfunction degree, the higher the risk of being an adolescent mother (p-trend <0.001). Our findings suggest that self-esteem and family functioning are independently associated with adolescent pregnancy. This adds to the existing literature that emphasizes the relevance of promoting emotional well-being and family relationships to prevent risky behaviors among adolescents. Therefore, it is necessary to develop holistic intervention programs that promote healthy family relationships and consider strengthening sexual assertiveness and self-esteem from early adolescence.

少女怀孕是一种全球现象,增加了孕产妇和新生儿发病率和死亡率的风险。此外,过早为人父母还会助长代际贫困和社会排斥。因此,本研究旨在评估自尊和家庭功能与少女怀孕之间的关系。我们于2023年4月至11月在墨西哥伊达尔戈的两个社区卫生中心进行了一项病例对照研究。10至19岁的初产青少年,胎龄小于21周,并参加了产前检查咨询被认为是病例组。相反,对照组由未怀孕的青少年(10-19岁)组成,他们到同一社区卫生中心进行医疗咨询。采用APGAR家庭量表评估被试的家庭功能,采用Rosenberg自尊量表评估被试的自尊。使用混杂因素调整的逻辑回归模型评估感兴趣变量之间的关联。校正混杂因素后,青少年中(校正优势比[aOR] = 1.81; 95%可信区间[95% CI] = 0.91, 3.59;086)和低自尊(aOR = 4.04; 95% CI = 1.96, 8.31; p值=。与自尊心强的人相比,她们更有可能成为母亲。此外,我们发现自尊心越低,成为未成年母亲的几率越大(p趋势)
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引用次数: 0
Multilevel Risk and Protective Factors Influencing Cannabis Use Among Adolescents and Young Adults in the United States: A Systematic Review. 影响美国青少年大麻使用的多重风险和保护因素:一项系统综述。
IF 1.4 Pub Date : 2025-12-01 Epub Date: 2025-07-15 DOI: 10.1080/24694193.2025.2524680
Belinda A Phares, Christie N Driskill, HimaBindu Basani, Aimee Rousella M Rodil, Emily Anne Barr

Cannabis use among adolescents and young adults has become a significant public health concern in the United States (US), as it is associated with immediate and long-term effects on mental health, academic achievement, and social functioning. The purpose of this systematic review was to identify risk and protective factors contributing to cannabis use initiation and continuation among adolescents and young adults in the US. A search (January 2019 to September 2024) was conducted across CINAHL, Medline (OVID), and PubMed databases using PRISMA guidelines and relevant MeSH terms. Studies were included if they were peer-reviewed, quantitative, US-based, and involved youth ages 12-26. Fifteen studies met inclusion criteria and were critically appraised for quality. The Social Ecological Model guided analysis. Findings revealed that cannabis use is shaped by multi-level influences. At the individual level, older age, early initiation, lower perceived risk of harm, and polysubstance use were key risk factors. At the interpersonal level, peer influence, parental acceptance of cannabis use, and family structure played prominent roles, with peer disapproval and parental monitoring emerging as strong protective factors. At the community level, perceived neighborhood stress, social media exposure, and proximity to cannabis dispensaries contributed to increased use, while school connectedness and extracurricular involvement served as protective influences. At the societal level, cannabis legalization and lower socioeconomic status were associated with increased use and normalization of behavior. Gender disparities in use are narrowing, with similar rates reported among males and females. This review underscores the need for multi-level interventions that address peer and familial norms, promote public education to increase perceived harm, and account for environmental and policy contexts. Evidence-based strategies targeting individual, relational, community, and societal factors are essential to reduce cannabis use and mitigate its adverse effects among youth.

在美国,青少年和年轻人中使用大麻已成为一个重大的公共卫生问题,因为它与心理健康、学业成就和社会功能的直接和长期影响有关。本系统综述的目的是确定美国青少年和年轻人开始和持续使用大麻的风险和保护因素。使用PRISMA指南和相关MeSH术语对CINAHL、Medline (OVID)和PubMed数据库进行了检索(2019年1月至2024年9月)。纳入同行评议的、定量的、美国的、涉及12-26岁青年的研究。15项研究符合纳入标准,并对质量进行了严格评价。社会生态模型指导分析。研究结果显示,大麻的使用受到多层次影响。在个体水平上,年龄较大、开始早、感知危害风险较低和多物质使用是关键危险因素。在人际层面上,同伴影响、父母对大麻使用的接受和家庭结构发挥了突出作用,同伴的反对和父母的监督成为强有力的保护因素。在社区层面,感知到的邻里压力、社交媒体曝光和靠近大麻药房有助于增加使用,而学校联系和课外参与则起到了保护作用。在社会层面,大麻合法化和较低的社会经济地位与大麻使用和行为正常化的增加有关。性别差异正在缩小,男性和女性的使用率相似。本综述强调需要采取多层次干预措施,解决同伴和家庭规范问题,促进公共教育以增加可感知的危害,并考虑环境和政策背景。针对个人、关系、社区和社会因素的循证战略对于减少大麻使用和减轻其对青年的不利影响至关重要。
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引用次数: 0
Comparison of Local Heat and Massage on the Outcomes of Venous Cannulation in Hospitalized Children with Difficult Venous Access: A Randomized Controlled Trial. 一项随机对照试验:局部热敷与按摩对住院静脉通道困难患儿静脉插管效果的比较
IF 1.4 Pub Date : 2025-12-01 Epub Date: 2025-07-15 DOI: 10.1080/24694193.2025.2530477
Samieh Naseri, Hanieh Neshat, Saeed Musavi, Fatemeh Ghorbani

Peripheral venous cannulation is a common invasive procedure with a high failure rate, particularly challenging in children and young patients due to their unique anatomical characteristics. This study evaluated the effectiveness of local heat and massage in facilitating venous access in hospitalized children with difficult access. A single-blind randomized controlled trial was conducted at Children's Hospital in Tabriz from December 20, 2023, to May 9, 2024. Ninety-six children aged 6 to 12 years were enrolled and randomly assigned to three groups: two intervention groups and one control group. In the first intervention group, an electric heating pad at 40 ± 2 degrees Celsius was applied to the venous access site for 5 minutes. In the second intervention group, a gentle circular massage from the wrist to the cubital fossa was performed for at least 2 minutes. Outcomes included pain scores using the Visual Analogue Scale (VAS), time spent, and number of attempts for venous access, along with vein assessment using the Vein Assessment Scale (VAS). Data were analyzed using SPSS version 23. No significant differences were found in demographic factors among the groups (p > .05). The vein assessment showed improved visibility and palpability with local heat and massage. Pain scores significantly decreased in both intervention groups (p ≤ .001), with the local heat group reporting lower mean pain scores and shorter cannulation duration compared to the massage group (p ≤ .001). No significant differences were observed in the frequency of cannulation attempts (p > .05). Applying local heat and massaging the venous cannulation site prior to venous cannulation significantly increases the ease of venous access. However, in a comparison of these two methods, local heat was more effective than massage in reducing perceived pain in children with difficult access. Therefore, using local heat can be recommended as a simple and cost-effective intervention.

外周静脉插管是一种常见的侵入性手术,失败率很高,由于其独特的解剖特点,对儿童和青少年患者尤其具有挑战性。本研究评估局部加热和按摩在促进静脉通路困难的住院儿童的有效性。于2023年12月20日至2024年5月9日在大不里士儿童医院进行了一项单盲随机对照试验。96名6至12岁的儿童被随机分为三组:两个干预组和一个对照组。第一干预组在静脉通路部位敷40±2℃电热垫5分钟。在第二个干预组,从手腕到肘窝进行轻柔的圆形按摩至少2分钟。结果包括使用视觉模拟量表(VAS)的疼痛评分,花费的时间和尝试静脉通路的次数,以及使用静脉评估量表(VAS)的静脉评估。数据分析采用SPSS version 23。组间人口学因素差异无统计学意义(p < 0.05)。静脉评估显示,局部加热和按摩可改善静脉的可视性和触感。两个干预组的疼痛评分均显著降低(p≤0.001),与按摩组相比,局部热组的平均疼痛评分较低,插管时间较短(p≤0.001)。两组间插管次数差异无统计学意义(p < 0.05)。在静脉插管之前,对静脉插管部位进行局部加热和按摩,可显著增加静脉通路的便利性。然而,在这两种方法的比较中,局部加热比按摩更有效地减轻难以接触的儿童的感知疼痛。因此,可以推荐使用局部加热作为一种简单且具有成本效益的干预措施。
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引用次数: 0
Interpretative Phenomenological Analysis of Mothers' Experience of Caring for Their Child Dying of Cancer at Home. 母亲在家照顾癌症病童经验之解释现象学分析。
IF 1.4 Pub Date : 2025-12-01 Epub Date: 2025-08-18 DOI: 10.1080/24694193.2025.2544992
Voskan Kirakosyan, Marie-Frédérique Bacqué

Pediatric palliative care (PPC) places mothers in an extremely challenging situation, where they must confront not just the approaching death of their child, but also their own suffering. In this context, hospitalization at home (HaH) is often the preferred choice for children and parents alike since it offers the comfort of a familiar setting and the reassuring presence of family. Yet, there is limited research into how the home setting may impact the maternal experience of a dying child. This qualitative study aims to capture the intimate experience of mothers in PPC during the HaH of a child dying of cancer and to explore how they make sense of this specific experience. Non-directive interviews with three mothers were conducted and submitted to an interpretative phenomenological analysis. We identified one major theme made up of three sub-themes: waiting, uncertainty and life on hold. These three dimensions do not merely represent psychological states: they are part of a process in which the impending death is not just an imminent event, but a reality that is already active, progressive and psychologically invasive. This process may have an impact on the course of the mother's subsequent bereavement, which is an important consideration for professionals to integrate into their supportive interventions.

儿科姑息治疗(PPC)将母亲置于极具挑战性的境地,她们不仅要面对孩子即将到来的死亡,还要面对自己的痛苦。在这种情况下,家庭住院(HaH)往往是儿童和家长的首选,因为它提供了熟悉环境的舒适和家人的安心。然而,关于家庭环境如何影响濒死儿童的母亲经历的研究有限。本定性研究旨在捕捉PPC中母亲在癌症死亡儿童的HaH期间的亲密体验,并探索她们如何理解这一特定体验。对三位母亲进行了非指导性访谈,并提交了解释性现象学分析。我们确定了一个主要主题,由三个次要主题组成:等待、不确定性和被搁置的生活。这三个维度不仅仅代表心理状态:它们是一个过程的一部分,在这个过程中,即将到来的死亡不仅仅是一个迫在眉睫的事件,而是一个已经活跃、渐进和心理侵入的现实。这一过程可能会对母亲随后的丧亲过程产生影响,这是专业人员将其纳入支持性干预措施的重要考虑因素。
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引用次数: 0
Effect of Blood Component Transfusion on Vital Signs Among Children. 输血对儿童生命体征的影响。
IF 1.4 Pub Date : 2025-12-01 Epub Date: 2025-08-14 DOI: 10.1080/24694193.2025.2544291
Rwan Mansour ALmotary, Ahlam Mohamed Hussien, Hend Abd El-Moneme Eid Elshnawie

Children are vulnerable to hemodynamic instability due to their distinct physiological characteristics, including a higher circulating blood volume relative to body weight. This physiological difference reduces their ability to tolerate blood loss. The aim of this study was to assess the effect of blood component transfusions on vital signs among children. A descriptive cross-sectional study design was carried out. All children who received blood component transfusions (60 children). The study was conducted in Pediatric Intensive Care Unit, Pediatric Medical Unit, and Pediatric Surgical Unit at King Abdulaziz University Hospital in Jeddah City. During the blood component transfusions, all children were assessed for vital signs before, during, and after the transfusion. One tool was used to collect data. Tool I: A standardized blood component transfusions observational checklist, developed by the National Standards for Blood Transfusion Service (2013) and based on the first edition by the World Health Organization (WHO), was used to assess blood component transfusions and vital signs 15 minutes before, during, and one hour after blood component transfusion. The findings of this study revealed that blood component transfusions have no statistically significant effect on vital signs among children who received blood component transfusions before, during, and after transfusion. Blood component transfusions (packed red blood cells, fresh frozen plasma, and platelet concentrate) showed no statistically significant effect on vital signs (before, during, and after the transfusion). However, gender significantly impacted the mean temperature and blood pressure values during the transfusion. In contrast, other socio-demographic variables, such as blood group and blood component, did not influence the vital signs throughout the process.

儿童由于其独特的生理特征,包括相对于体重较高的循环血容量,容易发生血流动力学不稳定。这种生理差异降低了他们对失血的容忍能力。本研究的目的是评估输血对儿童生命体征的影响。采用描述性横断面研究设计。所有接受血液成分输血的儿童(60名儿童)。该研究是在吉达市阿卜杜勒阿齐兹国王大学医院的儿科重症监护室、儿科内科和儿科外科进行的。在输血过程中,对所有患儿在输血前、输血中、输血后的生命体征进行评估。一个工具被用来收集数据。工具一:由国家输血服务标准(2013年)根据世界卫生组织(世卫组织)第一版制定的标准化血液成分输血观察清单,用于评估血液成分输血前15分钟、输血期间和输血后1小时的血液成分输血和生命体征。本研究结果显示,在输血前、输血中、输血后接受血液成分输血的儿童的生命体征无统计学意义的影响。血液成分输注(填充红细胞、新鲜冷冻血浆和浓缩血小板)对生命体征(输注前、输注中、输注后)无统计学显著影响。然而,性别对输血过程中的平均体温和血压值有显著影响。相比之下,其他社会人口变量,如血型和血液成分,在整个过程中对生命体征没有影响。
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引用次数: 0
Trends of Problems with Functioning in Everyday Life for Children Post Brain Tumor Treatment: As Documented in Professional Records. 脑肿瘤治疗后儿童日常生活功能问题的趋势:根据专业记录。
IF 1.4 Pub Date : 2025-12-01 Epub Date: 2025-07-09 DOI: 10.1080/24694193.2025.2524671
A-C Björklund, A-I Coci, M Granlund, S J Santacroce, L Darcy, L Augustine, M Björk

Background: Children who complete brain tumor treatment encounter ongoing problems with functioning that fluctuate over time. Previous studies shows that health care and schools tend to focus more on the child's cancer-related body symptoms, rather than on existing problems to participate and manage everyday life activities, or moreover of environmental barriers they face. Few studies address how the child's problems to function on body, activity and participation levels co-occur and are presented over time. Therefore, this study´s purpose is to describe how documented problems with functioning, vary over time in children who have completed brain tumor treatment.

Methods: Medical and school records from seven children were reviewed for up to 5 years after treatment completion, to identify problems and link these to International Classification of Functioning, Disability and Health (ICF) code domains. The coded data were divided into six-month blocks over a 4-year time period, analyzed statistically and illustrated graphically. Code variations on group-levels and patterns of body, activity and environmental codes that tentatively co-occurred with participation were exemplified in a child-case, using a collaborative problem-solving (CPS) approach.

Results: Based on median (Md) number of codes within participation, activity, body and environment, the children exhibited ongoing problems with body function over time (Md 11-18). Activity-related problems were most noticeable about 1-year post-treatment completion (Md 6), and participation problems (Md 1-2) persisted throughout the follow-up period. Documentation of environmental problems was limited but increased after 3 years (Md 3). In the child-case example, participation problems with self-care, schooling and peer-relations continued across the years, with plausible explanations related to problems with communication and fine-hand function (activity), fatigue (body function) and with surrounding supportive systems (environment).

Conclusion: Over time, professionals' documentation predominantly focused on problems with the child's body function, while functioning in everyday life and environmental barriers affecting participation, was often neglected. By using the ICF and CPS, service professionals, including nurses, are provided with guidance for comprehensive and systematic approach of addressing patterns of co-occurring problems with functioning, which could lead to improved support to optimize the child's participation in everyday life.

背景:完成脑肿瘤治疗的儿童会遇到持续的功能问题,这些问题随着时间的推移而波动。先前的研究表明,医疗保健和学校往往更关注儿童与癌症相关的身体症状,而不是关注参与和管理日常生活活动的现有问题,更不用说他们面临的环境障碍。很少有研究涉及儿童的问题是如何在身体、活动和参与水平上共同发生并随着时间的推移而呈现出来的。因此,本研究的目的是描述在完成脑肿瘤治疗的儿童中记录的功能问题是如何随时间变化的。方法:回顾了7名儿童在治疗结束后长达5年的医疗和学校记录,以确定问题并将其与国际功能、残疾和健康分类(ICF)代码域联系起来。编码的数据在4年的时间里被分成6个月的块,进行统计分析和图表说明。使用协作解决问题(CPS)方法,在儿童案例中举例说明了群体层面上的代码变化以及身体、活动和环境代码模式,这些代码暂时与参与共同发生。结果:根据参与、活动、身体和环境中编码的中位数(Md),儿童表现出持续的身体功能问题(Md 11-18)。活动相关问题在治疗结束后1年最为明显(Md 6),参与问题(Md 1-2)在整个随访期间持续存在。环境问题的文件记录有限,但3年后增加了(Md 3)。在儿童案例中,自我照顾、学校教育和同伴关系方面的参与问题持续多年,其合理的解释与沟通和精细手功能(活动)、疲劳(身体功能)以及周围支持系统(环境)的问题有关。结论:随着时间的推移,专业人员的记录主要集中在儿童的身体功能问题上,而日常生活中的功能和影响参与的环境障碍往往被忽视。通过使用ICF和CPS,为包括护士在内的服务专业人员提供了全面和系统的方法指导,以解决与功能共存的问题模式,这可能会改善对儿童参与日常生活的支持。
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引用次数: 0
Perceived Impact of the COVID-19 Pandemic on Parents and Caregivers with Young Children: Results of a Mixed-Methods Canadian Survey. COVID-19大流行对有幼儿的父母和照顾者的感知影响:加拿大一项混合方法调查的结果
IF 1.4 Pub Date : 2025-11-21 DOI: 10.1080/24694193.2025.2588479
Erica Koopmans, Tess Amyot, Brianna Turner, Theone Paterson, Shanaya Rathod, Peter Phiri, Caroline Sanders

Across the globe, the COVID-19 pandemic and the resulting public health measures significantly impacted the lives of families with young children. The emerging tensions surrounding the loss of social interactions for young children, 0-8 years, during the pandemic, as evident in recent literature, have sparked our interest. To explore this from a Canada-wide perspective, we delved into a subset of data from a national mixed methods survey conducted in 2021, examining the impact and projected psychological and social concerns of the COVID-19 pandemic. This subset included responses from 688 participants who identified as primary daily caregivers of children aged 0-8 years. The study employed descriptive statistics and thematic analysis to fill an evidence gap around the possible effects of the pandemic on caregivers' concerns for their child's social and emotional development. Findings revealed that parents/caregivers ranked their child's social and emotional development as their highest concern during and after the pandemic; connecting it to the loss or lack of socialization, increases in screen time, and the lack of participation in early years education and community programs. Moving forward from the pandemic, this study's results help us understand where focused attention may be needed to support young children's development and consider areas where parents stress may remain high post-pandemic, to inform service design and policy direction.

在全球范围内,COVID-19大流行及其产生的公共卫生措施严重影响了有幼儿的家庭的生活。最近的文献表明,在大流行期间,0-8岁幼儿失去社交互动,这引发了我们的兴趣。为了从加拿大的角度探讨这一点,我们深入研究了2021年进行的一项全国混合方法调查的数据子集,研究了COVID-19大流行的影响和预测的心理和社会问题。这个子集包括688名参与者的回答,他们被确定为0-8岁儿童的主要日常照顾者。该研究采用了描述性统计和专题分析,以填补有关大流行对照顾者对儿童社会和情感发展的关注可能产生影响的证据空白。调查结果显示,在大流行期间和之后,父母/照顾者将孩子的社交和情感发展列为他们最关心的问题;将其与缺乏社交、屏幕时间增加、缺乏早期教育和社区项目的参与联系起来。从大流行开始,这项研究的结果帮助我们了解在哪些方面需要重点关注,以支持幼儿的发展,并考虑大流行后父母压力可能仍然很高的领域,为服务设计和政策方向提供信息。
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引用次数: 0
Use of Traditional and Complementary Medicine (T&CM) Treatments by Mothers of Children with Autistic Spectrum Conditions. 使用传统和补充医学(T&CM)治疗的儿童自闭症谱系条件的母亲。
IF 1.4 Pub Date : 2025-09-01 Epub Date: 2025-05-29 DOI: 10.1080/24694193.2025.2509543
Edibe Ece Onur, Gonca Karayagiz Muslu

The use of traditional and complementary medicine is increasing in the population with developmental disabilities, including children diagnosed with autistic spectrum conditions (ASC). Despite the growing use of T&CM, limited research exists on its use in ASC populations. This study aims to explore the attitudes and behaviors of mothers with children diagnosed with ASC regarding of traditional and complementary medicine (T&CM) use and identify the factors influencing their decisions. This descriptive study was conducted with a total of 149 mothers of children diagnosed with ASC under the age of 18 who were receiving education in seven special education and rehabilitation centers. Data were collected using the Socio-Demographic Characteristics Questionnaire, the Diagnostic Form for the Use of Traditional and Complementary Treatment Practices, and the Attitude toward the Holistic Complementary and Alternative Medicine Questionnaire. Descriptive and inferential statistics were used to analyze the data. The findings revealed that 27.5% of mothers used T&CM for their children, with vitamins and minerals being the most commonly used forms (65.9%). Higher maternal education and paternal self-employment were significantly associated with T&CM use (p < .05). The study suggests that healthcare professionals should be aware of the widespread use of T&CM and provide parents with accurate information regarding these practices. These findings underscore the importance of healthcare professionals being informed about the prevalence of T&CM use in children with ASC and proactively guiding families with evidence-based information. Further research is warranted to assess the safety and effectiveness of these practices in this vulnerable population.

在发育障碍人群中,包括被诊断为自闭症谱系疾病的儿童中,传统医学和补充医学的使用正在增加。尽管T&CM的使用越来越多,但关于其在ASC人群中的应用的研究有限。本研究旨在探讨诊断为ASC患儿的母亲对使用传统和补充药物的态度和行为,并确定影响其决策的因素。本研究对149名18岁以下ASC儿童的母亲进行了描述性研究,这些儿童在7个特殊教育和康复中心接受教育。采用社会人口学特征问卷、传统和补充治疗方法诊断表以及对整体补充和替代医学问卷的态度收集数据。采用描述性统计和推断性统计对数据进行分析。调查结果显示,27.5%的母亲为孩子使用T&CM,其中维生素和矿物质是最常用的形式(65.9%)。较高的母亲教育程度和父亲的自营职业与T&CM使用显著相关(p
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引用次数: 0
The Perspective of the Hospitalized School-Aged Child on the Sharing of Information by Healthcare Professionals. 住院学龄儿童对医护人员信息共享的看法。
IF 1.4 Pub Date : 2025-09-01 Epub Date: 2025-05-24 DOI: 10.1080/24694193.2025.2509553
Ana Beatriz do Egito Cyriaco, Natália Alencar de Sales Benedito, Danton Matheus de Souza, Aline Santa Cruz Belela Anacleto, Edmara Bazoni Soares Maia

Communication is a right of children, a pillar of the philosophy of Child-Centered Care and health advocacy, and a priority for research. Despite the widespread recognition that developmentally appropriate information has a positive effect on children's healthcare experience, their information needs remain unmet. Giving voice to the child's experience is vital for transforming this scenario. In our study, we aimed to understand the perspective of hospitalized children regarding the sharing of information by healthcare professionals. A descriptive, qualitative study was developed, grounded in the philosophy of Child-Centered Care. Thirty school-aged children, hospitalized in a pediatric inpatient unit at an university hospital in São Paulo, Brazil, participated in the study. Data collection occurred between July 2023 and May 2024 through semi-structured individual interviews, analyzed using Inductive Thematic Analysis and Lexical Analysis. Four themes emerged: 1) Family members: source of information, support, and comfort; 2) Individual information needs; 3) Barriers to understanding information; and 4) Identifying encouraging information. In summary, for children, the sharing of information by healthcare professionals is permeated by barriers that hinder their understanding, requiring them to turn to family members to decode messages, as they often feel shy about directing questions to the healthcare professionals. During hospitalization, children identify information shared by the team, such as the possibility of attending the playroom and the pedagogy room, as powerful in alleviating boredom, promoting cheerfulness, and supporting learning.

沟通是儿童的一项权利,是以儿童为中心的护理和健康宣传理念的支柱,也是研究的优先事项。尽管人们普遍认识到,与发展相适应的信息对儿童的保健经历有积极影响,但他们的信息需求仍未得到满足。说出孩子的经历对于改变这种情况至关重要。在本研究中,我们旨在了解住院儿童对医护人员信息共享的看法。在以儿童为中心的护理理念的基础上,开展了一项描述性质的研究。巴西圣保罗一所大学附属医院儿科住院病房的30名学龄儿童参与了这项研究。数据收集于2023年7月至2024年5月之间,通过半结构化的个人访谈,使用归纳主题分析和词法分析进行分析。出现了四个主题:1)家庭成员:信息的来源、支持和安慰;2)个人信息需求;3)信息理解障碍;4)识别激励信息。总之,对于儿童来说,医疗保健专业人员分享信息的过程中充满了阻碍他们理解的障碍,要求他们求助于家庭成员来解码信息,因为他们经常羞于向医疗保健专业人员提出问题。在住院期间,儿童认为团队共享的信息,如参加游戏室和教学室的可能性,在缓解无聊,促进快乐和支持学习方面具有强大的作用。
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引用次数: 0
Perceptions of Social Functioning Among Adolescents Aged 12-14 with Spina Bifida and Their Parents. 12-14岁脊柱裂青少年及其父母的社会功能认知。
IF 1.4 Pub Date : 2025-09-01 Epub Date: 2025-06-17 DOI: 10.1080/24694193.2025.2506096
Ranya Bafail, Catherine Vincent, Kathleen Sawin, Agatha Gallo

Background: Spina bifida (SB), a congenital defect affecting neural tube closure, results in physical, neuropsychological, and social challenges. Adolescents with SB may experience impaired social functioning due to mobility limitations, pain, and cognitive issues, which can affect their overall well-being. However, little is known about factors facilitating social functioning in these adolescents.

Objective: This study aimed to explore the perceptions and expectations of adolescents with SB and their parents regarding social functioning, identifying facilitators and challenges that could inform interventions.

Methods: A qualitative descriptive design and interactive interviews were used with adolescent-parent dyads. Adolescents recruited were diagnosed with myelomeningocele (the most severe form of SB), spoke English, and had cognitive ability to participate in an interview. Adolescents' English-speaking parents were also recruited. Data were analyzed using direct content analysis to identify key themes related to social functioning.

Results: Participants were 10 primarily African American adolescent-parent dyads where the adolescents were aged 12-14. The interviews revealed four key themes: (1) facilitators of social functioning, primarily family relationships and family/peer support, helped adolescents navigate social interactions despite their physical limitations; (2) challenges to social functioning, including mobility limitations, stigma, and difficulty developing friendships, often led to social isolation; (3) the impact of social participation on physical and mental health was evident, with both adolescents and parents recognizing that social involvement contributed positively to well-being; and (4) the impact of parents' expectations on social functioning significantly shaped adolescents' social involvement, with some parents promoting active participation while others limited social activities to protect their children from negative influences.

Conclusion: Minority adolescents with SB face significant barriers to social functioning, particularly due to pain, mobility limitations, and stigma/bullying. However, strong family support and peer relationships played a critical role in fostering social engagement and promoting overall well-being. The study highlights the importance of early interventions and inclusive programs that reduce stigma/bullying and promote social participation for adolescents with SB. Findings provide a voice for underrepresented African American adolescents and insight into the complex interplay of physical, social, and psychological factors affecting adolescents with SB, offering guidance for future interventions aimed at enhancing social functioning.

背景:脊柱裂(SB)是一种影响神经管闭合的先天性缺陷,会导致身体、神经心理和社会方面的挑战。患有SB的青少年可能会由于活动受限、疼痛和认知问题而经历社会功能受损,这可能会影响他们的整体健康。然而,对促进这些青少年社会功能的因素知之甚少。目的:本研究旨在探讨SB青少年及其父母对社会功能的认知和期望,确定干预措施的促进因素和挑战。方法:采用定性描述设计和互动访谈法对青少年父母夫妇进行调查。被招募的青少年被诊断为脊髓脊膜膨出(最严重的SB形式),会说英语,并具有参加面试的认知能力。青少年说英语的父母也被招募进来。使用直接内容分析来分析数据,以确定与社会功能相关的关键主题。结果:参与者主要是10名非裔美国青少年父母,青少年年龄在12-14岁。访谈揭示了四个关键主题:(1)社会功能促进者,主要是家庭关系和家庭/同伴支持,帮助青少年在身体受限的情况下进行社会互动;(2)对社会功能的挑战,包括行动受限、耻辱和发展友谊困难,往往导致社会孤立;(3)社会参与对身心健康的影响是明显的,青少年和家长都认识到社会参与对幸福感有积极的贡献;(4)父母对社会功能的期望显著影响青少年的社会参与,一些父母鼓励积极参与社会活动,而另一些父母限制社会活动,以保护孩子免受负面影响。结论:患有SB的少数族裔青少年在社会功能方面面临着重大障碍,特别是由于疼痛、行动限制和耻辱/欺凌。然而,强大的家庭支持和同伴关系在促进社会参与和促进整体福祉方面发挥了关键作用。该研究强调了早期干预和包容性项目的重要性,以减少对SB青少年的羞辱/欺凌和促进社会参与。研究结果为代表性不足的非裔美国青少年提供了一个声音,并深入了解了影响SB青少年的身体、社会和心理因素的复杂相互作用,为未来旨在增强社会功能的干预提供了指导。
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引用次数: 0
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Comprehensive child and adolescent nursing
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