Telehealth for the Care of Complex Chronic Pediatric Patients in Latin America and the Caribbean: Narrative Review.

IF 4.7 3区材料科学 Q1 ENGINEERING, ELECTRICAL & ELECTRONIC ACS Applied Electronic Materials Pub Date : 2021-01-01 Epub Date: 2021-09-04 DOI:10.1007/s40124-021-00246-9

María Celeste Savignano, Graciela Kondratiuk, María de Las Mercedes Martínez, Pablo Lechuga, Florencia Ugo, Mariel Della Corte, Alejandro Mato, Antonio Luna

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Abstract

Purpose of review: This article is a review of the most significant productions on the care of pediatric patients with complex and/or rare chronic diseases in the field of telehealth, produced in Latin America and the Caribbean. It inquires about accessibility to health, its efficiency for the care of chronic and rare diseases, its acceptability/resistance by users (health teams and patients), and the standardization-evaluation of telecare processes.

Recent findings: The formation of reference networks for patients with chronic and rare diseases.

Summary: The incorporation of ICTs in comprehensive patient care is carried out mainly through home telemonitoring and the use of virtual platforms to empower patients and families. This modality allows to improve the attention and to offer assistance of specialties when there are geographic gaps. Telemedicine improves health outcomes, although article samples are mostly limited. It is made visible that the greatest impact in the region will be linked to the development of telehealth protocols and standards and legal and ethical frameworks, in order to guarantee good telehealth practices.

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拉丁美洲和加勒比地区远程医疗对复杂慢性儿科病人的护理：叙述性综述。

综述目的：本文综述了拉丁美洲和加勒比地区在远程保健领域为患有复杂和/或罕见慢性疾病的儿科病人提供护理的最重要成果。文章探讨了远程医疗的可及性、远程医疗在治疗慢性病和罕见病方面的效率、用户（医疗团队和患者）对远程医疗的接受程度/抵触情绪，以及远程医疗流程的标准化-评估：为慢性病和罕见病患者建立参考网络。摘要：将信息和通信技术纳入病人综合护理主要是通过家庭远程监控和使用虚拟平台来增强病人和家属的能力。这种方式可以提高关注度，并在存在地域差距的情况下提供专科援助。尽管文章样本大多有限，但远程医疗改善了医疗效果。可以看出，该地区最大的影响将与远程保健协议和标准以及法律和道德框架的制定有关，以确保良好的远程保健做法。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

ACS Applied Electronic Materials Multiple-

CiteScore

7.20

自引率

4.30%

发文量

567

期刊介绍： ACS Applied Electronic Materials is an interdisciplinary journal publishing original research covering all aspects of electronic materials. The journal is devoted to reports of new and original experimental and theoretical research of an applied nature that integrate knowledge in the areas of materials science, engineering, optics, physics, and chemistry into important applications of electronic materials. Sample research topics that span the journal's scope are inorganic, organic, ionic and polymeric materials with properties that include conducting, semiconducting, superconducting, insulating, dielectric, magnetic, optoelectronic, piezoelectric, ferroelectric and thermoelectric. Indexed/Abstracted： Web of Science SCIE Scopus CAS INSPEC Portico

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