Contemporary Issues and Practicalities in Completing Advance Care Planning for Patients With Severe COPD Living Alone: A Qualitative Study.

IF 1.6 Q2 SOCIAL WORK Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2022-01-01 Epub Date: 2021-10-03 DOI:10.1080/15524256.2021.1976353
Yoshihisa Hirakawa, Kaoruko Aita, Mitsunori Nishikawa, Hidenori Arai, Hisayuki Miura
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引用次数: 3

Abstract

Health care professionals working with older people living alone with chronic obstructive pulmonary disease (COPD) to complete advance care planning (ACP) often encounter the double burden of social isolation and acute exacerbations in this planning. The study explored clinicians' perceptions regarding factors influencing the completion of ACP for older people with COPD living alone. Individual interviews were conducted with 18 health care professionals using the video meeting platform in 2020. A semi-structured interview guide included: (a) behavior and lifestyle related to decision-making, (b) desired place to die, and (c) facilitators and barriers to autonomy in patients with severe COPD who live alone. Five main themes were identified: information sharing among team members, patient readiness, desired place of death, economic constraints, and care at the time of and after death. Partly due to the heterogeneity and complexity of clinical courses and treatment responses of COPD, a wide range of social issues of a person's life were related to practicality in the completion of ACP for older people with COPD living alone. Social work knowledge and skills such as in-depth interviewing, outreach finance and welfare support, and holistic perspective play an essential role in completing ACP for COPD patients living alone.

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当代问题和完成重度COPD独居患者预先护理计划的实用性:一项定性研究。
与独居的慢性阻塞性肺疾病(COPD)老年人一起完成预先护理计划(ACP)的卫生保健专业人员经常在这一计划中遇到社会孤立和急性恶化的双重负担。该研究探讨了临床医生对影响独居老年COPD患者完成ACP的因素的看法。2020年,我们使用视频会议平台对18名医疗保健专业人员进行了个别采访。半结构化访谈指南包括:(A)与决策相关的行为和生活方式,(b)期望的死亡地点,以及(c)独居严重慢性阻塞性肺病患者自主的促进因素和障碍。确定了五个主要主题:团队成员之间的信息共享、患者的准备情况、期望的死亡地点、经济限制以及死亡时和死亡后的护理。部分由于COPD临床病程和治疗反应的异质性和复杂性,一个人生活的广泛社会问题与老年独居COPD患者完成ACP的实用性有关。社会工作知识和技能,如深度访谈、外联财务和福利支持、整体视角,在COPD独居患者完成ACP中起着至关重要的作用。
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来源期刊
CiteScore
2.60
自引率
12.50%
发文量
28
期刊介绍: The Journal of Social Work in End-of-Life & Palliative Care, now affiliated with the Social Work in Hospice and Palliative Care Network, explores issues crucial to caring for terminally ill patients and their families. Academics and social work practitioners present current research, articles, and continuing features on the "state of the art" of social work practice, including interdisciplinary interventions, practice innovations, practice evaluations, end-of-life decision-making, grief and bereavement, and ethical and moral issues. The Journal of Social Work in End-of-Life & Palliative Care combines theory and practice to facilitate an understanding of the multi-level issues surrounding care for those in pain and suffering from painful, debilitating, and/or terminal illness.
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