Palliative Care Interventions Among Adolescents and Young Adults with Serious Illness: A Scoping Review.

IF 1.2 Q3 PSYCHOLOGY, CLINICAL Clinical Practice in Pediatric Psychology Pub Date : 2023-09-01 DOI:10.1037/cpp0000486

Amy R Newman, Ansley E Kenney, Elizabeth Witkowski, Jeffrey Karst, Stacee Lerret, W Hobart Davies, Charles B Rothschild

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Abstract

Objective: To map the range of multidisciplinary palliative care interventions that are available to adolescents and young adults (AYAs) with serious illness.

Methods: Scoping review methodology as outlined by Arksey and O'Malley.

Results: Twenty-two articles describing nine specific AYA-focused, multidisciplinary palliative care interventions were included in this review. Interventions focused on supporting advance care planning (ACP), facilitating treatment decision making, managing pain, and promoting resilience, psychosocial well-being, and quality of life. Interventions were delivered face-to-face and via different eHealth platforms and were targeted to AYAs with cancer, HIV/AIDS, and cystic fibrosis in both inpatient and outpatient settings.

Conclusions: Few evidence-based multidisciplinary palliative care interventions have documented benefit for AYAs with serious illness. The limited work that has been done demonstrates that AYAs are open to engaging in palliative care interventions and suggests that individual members of the multidisciplinary team can implement these different interventions to support enhanced patient outcomes.

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青少年和患有严重疾病的年轻人的姑息治疗干预：范围界定综述。

目的：绘制适用于患有严重疾病的青少年和年轻人的多学科姑息治疗干预措施的范围。方法：Arksey和O’Malley概述的范围界定综述方法。结果：本综述包括22篇文章，描述了9种以AYA为重点的多学科姑息治疗干预措施。干预措施的重点是支持预先护理计划（ACP），促进治疗决策，管理疼痛，促进恢复力、心理健康和生活质量。干预措施是面对面和通过不同的eHealth平台提供的，针对住院和门诊环境中患有癌症、艾滋病毒/艾滋病和囊性纤维化的AYA。结论：很少有循证的多学科姑息治疗干预措施对患有严重疾病的AYA有益处。所做的有限工作表明，AYA对参与姑息治疗干预持开放态度，并表明多学科团队的个别成员可以实施这些不同的干预措施，以支持提高患者的治疗效果。

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来源期刊

Clinical Practice in Pediatric Psychology Psychology-Clinical Psychology

CiteScore

2.30

自引率

18.20%

发文量

期刊介绍： Clinical Practice in Pediatric Psychology® publishes articles representing the professional and applied activities of pediatric psychology. The journal comprehensively describes the breadth and richness of the field in its diverse activities;complements the scientific development of the field with information on the applied/clinical side;provides modeling that addresses the ways practicing pediatric psychologists incorporate empirical literature into day-to-day activities;emphasizes work that incorporates and cites evidence from the science base; andprovides a forum for those engaged in primarily clinical activities to report on their activities and inform future research activities. Articles include a range of formats such as commentaries, reviews, and clinical case reports in addition to more traditional empirical clinical studies. Articles address issues such as: professional and training activities in pediatric psychology and interprofessional functioning;funding/reimbursement patterns and the evaluation of the cost-effectiveness of clinical services;program development;organization of clinical services and workforce analyses;applications of evidence based interventions in "real world" settings with particular attention to potential barriers and solutions and considerations of diverse populations;critical analyses of professional practice issues;clinical innovations, e.g., emerging use of technology in clinical practice;case studies, particularly case studies that have enough detail to be replicated and that provide a basis for larger scale intervention studies; andorganizational, state and federal policies as they impact the practice of pediatric psychology, with a particular emphasis on changes due to health care reform.