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Adherence in young people living with juvenile arthritis: A systematic review. 青少年关节炎患者的依从性:一项系统综述。
IF 1.2 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2024-09-01 Epub Date: 2023-04-13 DOI: 10.1037/cpp0000483
Cecelia I Nelson, Destiny Noel, Line Caes, Klanci M McCabe, Christina L Duncan

Objective: Juvenile idiopathic arthritis (JIA) is one of the leading causes of chronic pain in pediatric patients. Treatment regimens, which are critical to symptom management, can be burdensome, involving medication with potentially aversive side effects and exercise that can cause joint pain. Thus, it is important to examine the barriers and facilitators to adherence in JIA. While systematic reviews exist for rheumatic disease in adults, there has not yet been a synthesis of the literature examining adherence in JIA.

Methods: PsychINFO, PubMed and MEDLINE databases were systematically searched to identify qualitative and quantitative empirical studies that investigate adherence for JIA. Keywords included: patient compliance OR adherence OR persistence; youth OR children OR juvenile OR pediatric OR teen OR child OR adolescent; and rheumatoid arthritis OR idiopathic arthritis OR arthritis. Articles were excluded from the review if they involved non-human or adult samples, were non-experimental (e.g., practice recommendations), were not peer-reviewed, or were not written in English. After abstract selection, 32 articles were included in the analyses.

Results: Adherence to exercise regimens was consistently lower than adherence to medication. Researchers relied heavily on self-report of adherence, which suggests a need for additional research with more objective measures of adherence. Across studies, psychological treatment was not included, so adherence to this treatment component in JIA remains understudied.

Conclusions: Results suggest that future research should target devising and evaluating interventions to improve adherence to exercise and perhaps psychological treatment.

Implications for impact: To facilitate adherence in JIA, behavioral health providers should focus on building a strong therapeutic alliance between provider and child, fostering positive coping skills in parents and children, and monitoring the parent-child relationship.

目的:幼年特发性关节炎(JIA)是导致儿童患者慢性疼痛的主要原因之一。治疗方案对症状控制至关重要,但也可能是一种负担,其中包括可能产生厌恶副作用的药物和可能导致关节疼痛的运动。因此,研究 JIA 患者坚持治疗的障碍和促进因素非常重要。虽然目前已有针对成人风湿性疾病的系统综述,但还没有针对 JIA 患者坚持治疗的文献综述:方法:系统检索了 PsychINFO、PubMed 和 MEDLINE 数据库,以确定调查 JIA 患者依从性的定性和定量实证研究。关键词包括:患者依从性或依从性或持续性;青少年或儿童或少年或儿科或青少年或儿童或青少年;类风湿性关节炎或特发性关节炎或关节炎。如果文章涉及非人类或成人样本、非实验性(如实践建议)、未经同行评议或不是用英语撰写,则排除在综述之外。经过摘要筛选,32 篇文章被纳入分析:结果:运动疗法的依从性始终低于药物疗法。研究人员在很大程度上依赖于自我报告的依从性,这表明需要对依从性进行更客观的测量,以开展更多的研究。在所有研究中,心理治疗未被包括在内,因此对JIA治疗的依从性研究仍然不足:结论:研究结果表明,未来的研究应以设计和评估干预措施为目标,以提高运动和心理治疗的依从性:为促进JIA患者坚持治疗,行为健康提供者应注重在提供者和患儿之间建立牢固的治疗联盟,培养家长和患儿的积极应对技能,并监测亲子关系。
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引用次数: 0
Acceptance and commitment therapy-based intervention for parents living with chronic pain: Feasibility and acceptability study. 以接纳与承诺疗法为基础,对患有慢性疼痛的父母进行干预:可行性和可接受性研究。
IF 1.1 Q2 Medicine Pub Date : 2024-05-02 DOI: 10.1037/cpp0000525
M. Pavlova, S. Kohut, Isabel Jordan, Janice Sumpton, Kyleigh Schraeder, S. L. Orr, Lindsay Craddock, Melanie Noel, K. Birnie
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引用次数: 0
Racial match: Black youth and pediatric integrated primary care. 种族匹配:黑人青年与儿科综合初级保健。
IF 1.1 Q2 Medicine Pub Date : 2024-05-02 DOI: 10.1037/cpp0000526
Ian C. Carroll, Christopher J. Senior, Mattina A. Davenport, Carmelita S. Foster, Ana Diaz-LePage, Cheyenne L. Hughes-Reid, Danielle R. Hatchimonji
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引用次数: 0
Participation in organized physical activity and discomfort with locker rooms among youth across sexual, gender, and racial identities. 不同性别和种族的青少年参加有组织体育活动的情况以及对更衣室的不适应。
IF 1.1 Q2 Medicine Pub Date : 2024-03-14 DOI: 10.1037/cpp0000518
B. Parchem, Jonathan L. Poquiz, R. Rahm-Knigge, Elizabeth Panetta, Ryan J. Watson, G. N. Rider
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引用次数: 0
Ethical and psychological considerations for posthumous-assisted reproduction for adolescents and young adults with poor cancer prognosis in the context of grief. 在悲痛的背景下,对癌症预后不良的青少年进行死后辅助生育的伦理和心理考虑。
IF 1.1 Q2 Medicine Pub Date : 2024-03-14 DOI: 10.1037/cpp0000502
B. Parchem, G. N. Rider, G. P. Quinn
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引用次数: 0
Call to action: Screening and addressing caregiver mental health needs within all pediatric medical subspecialty settings as standard of care. 行动呼吁:在所有儿科医学亚专科环境中,将筛查和解决护理人员的心理健康需求作为护理标准。
IF 1.1 Q2 Medicine Pub Date : 2024-03-07 DOI: 10.1037/cpp0000514
Christina G. Salley, Dana M Bakula, Colleen F. Bechtel Driscoll, Catherine Flanagan-Priore, Theresa L. Kapke, Rachel M. Moore, Kendra R. Parris, Christina M. Sharkey
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引用次数: 0
Sleep Patterns, Pain, and Emotional Functioning in Youth with Inflammatory Bowel Disease. 青年炎症性肠病患者的睡眠模式、疼痛和情绪功能。
IF 1.1 Q2 Medicine Pub Date : 2024-03-01 Epub Date: 2023-08-24 DOI: 10.1037/cpp0000491
Margo M Szabo, Cecelia I Nelson, Christa L Lilly, Ellen M Manegold, Brian D Riedel, Audra S Rouster, Christina L Duncan

Objective: Youth with inflammatory bowel disease (IBD) may be at increased risk for sleep difficulties due to the painful and inflammatory nature of their disease. Moreover, children and adolescents with IBD experience impairment across a variety of psychosocial domains. However, researchers have yet to investigate the complex interplay between sleep, disease-related symptoms, and psychosocial factors in this population. The purpose of this study was to examine sleep patterns, pain, and mood in pediatric IBD.

Methods: A sample of 25 children and adolescents with IBD (Mage = 14.24, Range = 10-18 years; 56% male) were recruited from a pediatric gastroenterology clinic. Youth wore an actigraphy watch and completed daily measures of affect and pain over the course of 14 days. Statistical analyses involved repeated measures general estimating equations.

Results: No significant association for sleep with negative affect was demonstrated. Despite majority of this sample being in disease remission, results revealed that increased sleep onset latency was associated with presence of next day pain and pain was associated with better next night sleep efficiency.

Conclusions: Findings of the current study suggest youth with IBD experience poor sleep quality, which is significantly related to the pain they experience. Consequently, healthcare providers should screen for and address sleep quality to optimize outcomes in their pediatric patients. Objectively assessing sleep patterns (e.g., actigraphy) may prove useful for pediatric IBD samples; however, additional research is needed to determine actigraphy's feasibility and efficacy in assessing sleep patterns in real world settings (e.g., pediatric medical clinics).

目的:患有炎症性肠病(IBD)的青少年由于其疾病的疼痛和炎症性质,可能会增加睡眠困难的风险。此外,患有 IBD 的儿童和青少年在各种社会心理领域都会受到损害。然而,研究人员尚未对这一人群中睡眠、疾病相关症状和社会心理因素之间复杂的相互作用进行研究。本研究的目的是调查小儿 IBD 患者的睡眠模式、疼痛和情绪:从儿科胃肠病诊所招募了 25 名患有 IBD 的儿童和青少年(年龄 = 14.24 岁,范围 = 10-18 岁;56% 为男性)。在 14 天的时间里,青少年佩戴行动计手表,每天完成对情绪和疼痛的测量。统计分析采用重复测量一般估计方程:结果:睡眠与负面情绪没有明显关联。尽管大部分样本的病情都得到了缓解,但结果显示,睡眠开始潜伏期的延长与次日疼痛的存在有关,而疼痛与次日夜间睡眠效率的提高有关:本研究结果表明,患有 IBD 的青少年睡眠质量较差,这与他们所经历的疼痛有很大关系。因此,医疗服务提供者应筛查并解决睡眠质量问题,以优化儿科患者的治疗效果。客观评估睡眠模式(如动图)可能对儿科 IBD 样本有用;但是,还需要进行更多的研究,以确定动图在实际环境(如儿科医疗诊所)中评估睡眠模式的可行性和有效性。
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引用次数: 0
Recommendations on inclusive language and transparent reporting relating to diversity dimensions for the Journal of Pediatric Psychology and Clinical Practice in Pediatric Psychology. 就《儿科心理学杂志》和《儿科心理学临床实践》有关多样性方面的包容性语言和透明报告提出建议。
IF 1.1 Q2 Medicine Pub Date : 2024-03-01 DOI: 10.1037/cpp0000519
A. Modi, Sarah J. Beal, Stephen P. Becker, Katelynn E. Boerner, E. T. Burton, Diane Chen, Lori E. Crosby, Marisa E Hilliard, Anna M. Hood, Nicole A. Kahhan, Emily Law, Kristin A Long, M. McGrady, Rachel E Sweenie, I. Thurston, Cecelia R Valrie, Yelena P. Wu, Christina L Duncan
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引用次数: 0
Ethics of pediatric gender-affirming care: A case study comparison. 儿科性别确认护理的伦理:案例研究比较。
IF 1.1 Q2 Medicine Pub Date : 2024-03-01 DOI: 10.1037/cpp0000487
Grayson R. Jackson, Diane Chen, Claire Coyne, Kelly Donahue, Lisa Campo-Engelstein
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引用次数: 0
Preserved neonatal follow-up care during COVID-19: Use of neurodevelopmental evaluation via telehealth. 在 COVID-19 期间保留新生儿随访护理:通过远程医疗进行神经发育评估。
IF 1.1 Q2 Medicine Pub Date : 2024-01-25 DOI: 10.1037/cpp0000516
Sakina Butt, Julia Nahman, Charles Cederberg, Nora Coultis
{"title":"Preserved neonatal follow-up care during COVID-19: Use of neurodevelopmental evaluation via telehealth.","authors":"Sakina Butt, Julia Nahman, Charles Cederberg, Nora Coultis","doi":"10.1037/cpp0000516","DOIUrl":"https://doi.org/10.1037/cpp0000516","url":null,"abstract":"","PeriodicalId":37641,"journal":{"name":"Clinical Practice in Pediatric Psychology","volume":null,"pages":null},"PeriodicalIF":1.1,"publicationDate":"2024-01-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139597518","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
期刊
Clinical Practice in Pediatric Psychology
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