Co-Design of a website for women with pelvic organ prolapse: A study protocol.

HRB open research Pub Date : 2024-01-11 eCollection Date: 2023-01-01 DOI:10.12688/hrbopenres.13742.2
Maria-Louise Carroll, Catherine Doody, Cliona O' Sullivan, Carla Perrotta, Brona M Fullen
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Abstract

Background: Despite high reported prevalence of pelvic organ prolapse (POP), women report difficulties accessing evidence-based and reliable information about the condition. Many rely on social media and other popular and highly visible internet platforms which have been found to contain poor quality information that is difficult for the average patient to understand. The aim of the study is to co-design an information website for premenopausal women with POP. The website design will be based on the Website Developmental Model for the Healthcare Consumer (WDMHC) framework.

Methods: A four phase process will be utilised as per the WDMHC framework: 1) User, task and environmental analysis; 2) Functional and representational analysis; 3) Cognitive walkthrough, keystroke level model, heuristic testing; 4) Content based testing, expert testing and user-based testing.Ethics approval has been obtained (LS-23-19-Carroll-Ful). Two groups of stakeholders will be recruited (i) patient group (ii) healthcare professional (HCP) group. Patient participants will be recruited from an online pelvic floor dysfunction (PFD) support group (n=950 members). A website designer and HCP stakeholders involved in the multidisciplinary team caring for women with POP will be invited to participate.Both groups will participate in separate co-design online workshops. Focus group workshops will be video-recorded, transcribed and imported into NVivo. Themes and subthemes will be developed.The website will be designed and disseminated to all participants for feedback. Cognitive walkthrough and heuristic testing will be undertaken. Following this, necessary modifications will be made to the website. Participants will then complete a modified System Usability Scale (SUS) and the eHealth Impact Questionnaire, while five HCPs will complete the DISCERN instrument.

Conclusion: This study will inform the design and testing of an information website for women with POP. The website design and content will be informed by patient and HCP stakeholder voices and the health literacy literature.

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女性盆腔器官脱垂网站的联合设计:一项研究方案。
背景:尽管盆腔器官脱垂(POP)的患病率很高,但女性报告难以获得有关该疾病的循证和可靠信息。许多人依赖社交媒体和其他流行且高度可见的互联网平台,这些平台被发现包含普通患者难以理解的劣质信息。这项研究的目的是与POP共同设计一个面向妇女的国家信息网站。网站设计将基于医疗保健消费者网站开发模型(WDMHC)框架。方法:将根据WDMHC框架采用四个阶段的过程:1)用户、任务和环境分析;2) 功能和代表性分析;3) 认知演练、击键水平模型、启发式测试;4) 基于内容的测试、专家测试和基于用户的测试。已获得伦理批准(LS-23-19-Carroll-Ful)。将招募两组利益相关者(i)患者组(ii)医疗专业人员(HCP)组。患者参与者将从在线盆底功能障碍(PFD)支持小组(n=950名成员)中招募。一位网站设计师和HCP利益相关者将被邀请参与照顾POP女性的多学科团队。两个小组将分别参加共同设计的在线研讨会。焦点小组讲习班将进行录像、转录并导入NVivo。将开发主题和子主题。该网站将设计并分发给所有参与者,以供反馈。将进行认知演练和启发式测试。在此之后,将对网站进行必要的修改。然后,参与者将完成修改后的系统可用性量表(SUS)和电子健康影响问卷,而五名HCP将完成DISCERN工具。结论:本研究将为POP女性信息网站的设计和测试提供依据。网站设计和内容将由患者和HCP利益相关者的声音和健康素养文献提供信息。
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