Travailler l’acceptation de la maladie en éducation thérapeutique : exemple d’une intervention « ateliers théâtre » pour des personnes porteuses d’un lupus

Abstract

In this article, a reflection concerning the acceptance of chronic illness in patient education (PE) is proposed. The research focuses on a therapeutic theatre intervention, inspired by theatre of lived experience as proposed to people with lupus. The aim of the intervention is to enable a putting into words and a staging of events that are identified by the patient as disabling. The framework and the process of the intervention are being presented. The results of an exploratory analysis followed by a clinical case will shed light on the contribution of these workshops on the improvement of life satisfaction and illness perception as well as the understanding and the acceptance of illness by the patients and their families. The article will be concluded by the interest of this project in proposing optimized support in PE.