W. van Staden, A. Nienaber, T. Rossouw, A. Turner, C. Filmalter, A. E. Mercier, J. Nel, B. Bapela, M. Beetge, R. Blumenthal, C. Castelyn, T. D. de Witt, A. G. Dlagnekova, C. Kotzé, J. Mangwane, L. Napoles, R. Sommers, L. Sykes, W. B. Van Zyl, M. Venter, A. Uys, N. Warren
{"title":"Race in health research: Considerations for researchers and research ethics committees","authors":"W. van Staden, A. Nienaber, T. Rossouw, A. Turner, C. Filmalter, A. E. Mercier, J. Nel, B. Bapela, M. Beetge, R. Blumenthal, C. Castelyn, T. D. de Witt, A. G. Dlagnekova, C. Kotzé, J. Mangwane, L. Napoles, R. Sommers, L. Sykes, W. B. Van Zyl, M. Venter, A. Uys, N. Warren","doi":"10.7196/sajbl.2023.v16i1.440","DOIUrl":null,"url":null,"abstract":"\n\n\n\nThis article provides ethical guidance on using race in health research as a variable or in defining the study population. To this end, a plain, non-exhaustive checklist is provided for researchers and research ethics committees, preceded by a brief introduction on the need for justification when using race as a variable or in defining a study population, the problem of exoticism, that distinctions pertain between race, ethnicity and ancestry, the problematic naming of races, and that race does not serve well as a presumed biological construct in genetic research.\n\n\n\n","PeriodicalId":43498,"journal":{"name":"South African Journal of Bioethics and Law","volume":" ","pages":""},"PeriodicalIF":0.5000,"publicationDate":"2023-05-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"South African Journal of Bioethics and Law","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.7196/sajbl.2023.v16i1.440","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q4","JCRName":"MEDICAL ETHICS","Score":null,"Total":0}
引用次数: 0
Abstract
This article provides ethical guidance on using race in health research as a variable or in defining the study population. To this end, a plain, non-exhaustive checklist is provided for researchers and research ethics committees, preceded by a brief introduction on the need for justification when using race as a variable or in defining a study population, the problem of exoticism, that distinctions pertain between race, ethnicity and ancestry, the problematic naming of races, and that race does not serve well as a presumed biological construct in genetic research.