Using the quality of life framework to operationalize and assess the CRPD articles and the Sustainable Development Goals

IF 2.5 4区 医学 Q2 HEALTH POLICY & SERVICES Journal of Policy and Practice in Intellectual Disabilities Pub Date : 2023-08-23 DOI:10.1111/jppi.12470
Laura E. Gómez, M. Lucía Morán, Patricia Navas, Miguel Ángel Verdugo, Robert L. Schalock, Marco Lombardi, Eva Vicente, Verónica M. Guillén, Giulia Balboni, Chris Swerts, Susana Al-Halabí, M. Ángeles Alcedo, Asunción Monsalve, Ivan Brown
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Abstract

This article describes how rights, the United Nations Sustainable Development Goals (SDGs), and the quality of life (QOL) framework are closely interrelated. Although legislation can be used as a tool for the practical application of QOL principles, QOL assessment information is required to further develop legislation and monitor the fulfillment of laws, policies, and the SDGs. A validated QOL model, which provides a set of concepts that can be one useful way for understanding and assessing QOL, can also function to assess many of the rights and goals promulgated in the Convention on the Rights of Persons with Disabilities (CRPD) and in the SDGs. This article illustrates the overlap between the CRPD, SDGs and QOL using the #Rights4MeToo Scale, a new measurement instrument for people with intellectual and developmental disabilities (IDD). The instrument's value lies in its potential to: (a) raise awareness about the rights enshrined in the CRPD; (b) design, implement, and evaluate the effectiveness of interventions aimed at facilitating the exercise of those rights and the achievement of the SDGs; and (c) ultimately improve the QOL of people with IDD.

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使用生活质量框架实施和评估《残疾人权利公约》条款和可持续发展目标
本文描述了权利、联合国可持续发展目标(sdg)和生活质量(QOL)框架是如何密切相关的。虽然立法可以作为实际应用生活质量原则的工具,但需要生活质量评估信息来进一步制定立法,监测法律、政策和可持续发展目标的实施情况。经过验证的生活质量模型提供了一组概念,可以作为理解和评估生活质量的一种有用方法,还可以用于评估《残疾人权利公约》(CRPD)和可持续发展目标中颁布的许多权利和目标。本文使用#Rights4MeToo量表(一种针对智力和发育障碍者(IDD)的新测量工具)说明了CRPD、可持续发展目标和生活质量之间的重叠。该文书的价值在于它有潜力:(a)提高对《残疾人权利公约》所载权利的认识;(b)设计、实施和评估旨在促进行使这些权利和实现可持续发展目标的干预措施的有效性;(c)最终改善缺乏症患者的生活质量。
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来源期刊
CiteScore
4.10
自引率
5.90%
发文量
38
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