Supporting HIV self-management in adolescents to be resilient and thrive: an intervention development study

Abstract

ABSTRACT Self-management programs or interventions focus on self-empowerment to improve skills, abilities and behaviors needed to control a chronic condition and may be of great value for adolescents living with HIV (ALWH). The aim of this study was to develop a self-management intervention called Self-Management in Adolescents to be Resilient and Thrive (S-SMART), for ALWH aged 15 to 19 years using the principles of intervention mapping (IM). We conducted a needs assessment and developed a logic model for change based on factors influencing self-management amongst ALWH on the level of the individual and environment. Program outcomes and objectives were identified based on formative qualitative and quantitative research, a systematic review and theory. We then selected theory-based models and practical strategies and developed a 12-week program consisting of individual activities completed in a workbook or smartphone application, five peer-group sessions and three individual coaching sessions. Content validity was determined by consulting nine local and international experts and 18 key stakeholders (11 ALWH and seven healthcare workers) through four focus groups in the Cape Metropole of the Western Cape, South Africa. The intervention will now be pilot tested for feasibility and acceptability.