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Assessing depression, suicidal behaviors and quality of life in adolescents with chronic illness: the potential role of SDQ-DP scores 评估患有慢性病的青少年的抑郁、自杀行为和生活质量:SDQ-DP 分数的潜在作用
IF 1.1 Q4 FAMILY STUDIES Pub Date : 2024-01-08 DOI: 10.1080/17450128.2024.2302621
Patchara Thitamethee, O. Louthrenoo, N. Likhitweerawong, N. Boonchooduang
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引用次数: 0
Assessment of family functioning in adolescents who use substances- a cross-sectional comparative study 使用药物的青少年的家庭功能评估--一项横断面比较研究
IF 1.1 Q4 FAMILY STUDIES Pub Date : 2023-11-24 DOI: 10.1080/17450128.2023.2286375
Gayatri Bhatia, Rachna Bhagava, Biswadip Chatterjee, A. Dhawan
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引用次数: 0
Condom use correlates among youth living with HIV in South Africa: lessons for promoting safer sex 南非感染艾滋病毒的青年使用安全套的相关性:促进安全性行为的经验教训
IF 1.1 Q4 FAMILY STUDIES Pub Date : 2023-11-23 DOI: 10.1080/17450128.2023.2282959
T. Thurman, Tory M. Taylor, Brian Luckett, Alexandra Spyrelis, Johanna Nice
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引用次数: 0
Parenting practices and adolescents’ mental health: Serial mediation by parental acceptance and adolescents’ grit 父母的养育方式与青少年的心理健康:父母的接纳与青少年的胆量的连环中介作用
IF 1.1 Q4 FAMILY STUDIES Pub Date : 2023-11-20 DOI: 10.1080/17450128.2023.2282573
Glen Johan Ri Young Lim, S. Wu, C. Yap, Pei Jun Woo
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引用次数: 0
Examining HIV-stigma interventions among youth living in sub-Sahara Africa: a systematic review of the evidence 审查针对撒哈拉以南非洲青年的艾滋病毒污名化干预措施:对证据的系统性审查
IF 1.1 Q4 FAMILY STUDIES Pub Date : 2023-11-16 DOI: 10.1080/17450128.2023.2280059
E. Small, S. Nikolova, Thabani Nyoni, Yuan Zhou, Moses Okumu, Kim L. Lipsey, Megan Westmore, LaTisha Thomas
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引用次数: 0
Analysis and mapping of literature on child marriage published in peer-reviewed journals (1983 – 2022) 在同行评议期刊上发表的关于童婚的文献分析与制图(1983 - 2022)
Q4 FAMILY STUDIES Pub Date : 2023-11-01 DOI: 10.1080/17450128.2023.2278116
Waleed M. Sweileh
ABSTRACTChild marriage, a stark disruption of the traditional childhood experience, remains a pressing concern, yet the scientific exploration of this complex issue has been surprisingly overlooked in terms of comprehensive analysis and mapping. This study aimed to bridge this gap by conducting an extensive examination and mapping of child marriage literature within peer-reviewed journals. Employing the powerful Scopus database, the study combed through research articles spanning from 1983 to 2022. Both quantitative and qualitative analyses were applied to uncover research trends and content patterns. The search string led to the retrieval of 964 relevant documents, revealing a nearly equal distribution between medical and social science subject areas. The analysis yielded several crucial findings. Firstly, it became evident that the current volume of research on child marriage, considering the prevalent rates and impact, falls considerably short of being adequate. A notable surge in research output was detected in the most recent five-year span (2018–2022), likely in response to the global commitment to sustainable development goals. Despite countries with high child marriage rates contributing relatively less to the research landscape, specific nations like India, Bangladesh, Ethiopia, and Nigeria left a noticeable imprint. Furthermore, high-income countries, including the US, the UK, Canada, and Australia, demonstrated significant involvement primarily through international research collaborations with scholars in high child marriage rate regions. Equally noteworthy is the revelation that the field of child marriage is a convergence of scholarly efforts from both the social and medical sciences. Notably, the University of California San Diego played a pivotal role in shaping and fostering research in this domain. In conclusion, the urgency of eliminating all detrimental practices against girls necessitates heightened research efforts, deeper collaboration, and a more holistic approach.KEYWORDS: Child marriagesustainable development goalsresearchbibliometric analysis Abbreviations WHO=World Health OrganizationCM=Child marriageDisclosure statementNo potential conflict of interest was reported by the author.Availability of data and materialsAll data presented in this manuscript are available on the Scopus database using the search query listed in the methodology section.Additional informationFundingThe author(s) reported there is no funding associated with the work featured in this article.Notes on contributorsWaleed M. SweilehProfessor Waleed Sweileh has a medical/health background with a special interest in the social component of health. Professor Sweileh is currently a faculty member at the college of medicine and health sciences at An-Najah National University, Palestine. Professor Sweileh is interested in research pertaining to social medicine including substance use disorder, women’s health, equality, and social determinants of health. Pro
童婚是对传统童年经历的严重破坏,仍然是一个迫切关注的问题,但令人惊讶的是,在全面分析和绘图方面,对这一复杂问题的科学探索被忽视了。本研究旨在通过在同行评议的期刊上进行广泛的检查和绘制童婚文献来弥合这一差距。利用强大的Scopus数据库,这项研究梳理了从1983年到2022年的研究文章。定量和定性分析都被用于揭示研究趋势和内容模式。搜索字符串导致检索到964份相关文件,显示医学和社会科学学科领域之间的分布几乎相等。分析得出了几个关键的发现。首先,考虑到普遍的童婚率和影响,目前关于童婚的研究数量显然远远不够。在最近的五年(2018-2022年)期间,研究产出显著增加,这可能是对可持续发展目标的全球承诺的回应。尽管童婚率高的国家对研究领域的贡献相对较小,但印度、孟加拉国、埃塞俄比亚和尼日利亚等特定国家留下了显著的印记。此外,包括美国、英国、加拿大和澳大利亚在内的高收入国家主要通过与高童婚率地区的学者进行国际研究合作,表现出了显著的参与。同样值得注意的是,童婚领域是社会科学和医学两方面学术努力的融合。值得注意的是,加州大学圣地亚哥分校在塑造和促进这一领域的研究方面发挥了关键作用。总之,迫切需要消除对女童的一切有害做法,因此需要加强研究工作,深化合作,采取更全面的办法。关键词:童婚;可持续发展目标;研究文献计量学分析;缩写词WHO=世界卫生组织;数据和材料的可用性本文中提供的所有数据都可以在Scopus数据库中使用方法部分列出的搜索查询获得。其他信息资金作者报告没有与本文所述工作相关的资金。关于投稿人的说明Waleed M. Sweileh Waleed Sweileh教授具有医学/健康背景,对健康的社会组成部分特别感兴趣。Sweileh教授目前是巴勒斯坦安纳杰国立大学医学和保健科学学院的教员。Sweileh教授对社会医学的研究感兴趣,包括物质使用障碍、妇女健康、平等和健康的社会决定因素。Sweileh教授发表了关于妇女健康和社会问题的各种主题的文章。在社会层面,斯威勒教授发表了关于切割女性生殖器官和中东地区难民心理健康的著作。
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引用次数: 0
Children and their experiences about seasonal flood disasters in Indonesia : qualitative study 印度尼西亚儿童及其对季节性洪水灾害的经历:定性研究
Q4 FAMILY STUDIES Pub Date : 2023-11-01 DOI: 10.1080/17450128.2023.2277169
Susanti Niman, None Mustikasari, Novy Helena Daulima, Dewi Gayatri, Timothy Rothhaar
ABSTRACTFloods are a seasonal disaster for those who live in flood-prone areas. Children are a vulnerable group. Disasters can reduce the ability to adapt. This study aims to explore the experience of repeated flooding in children who live in flood-prone areas.Method: A qualitative study with a phenomenological design in Baleendah village, West Java. Qualitative phenomenological studies focus on details and aspects of children’s experiences that form the meaning and understanding of children about flooding. Fifteen participants were taken by purposive sampling. The inclusion criteria were aged 13–18 years, experienced a flood disaster, and lived in disaster-prone areas with moderate to high risk based on the Inarisk application. The collected data came through in-depth interviews with semi-structured interview guidelines. The analysis was carried out inductively to obtain themes based on in-depth interviews.Results: Fifteen children (ten girls and five boys) who have experienced flooding more than 2–5 times participated in the research. Children know about seasonal floods in their homes. They interpret it as an unpleasant experience repeated every rainy season and cannot be changed.There are five themes from this study: knowledge about flooding, feelings experienced, focus on solving flood problems, felt problems, and group beliefs.Conclusion: Repeated floods are stressors for children. They respond as unpleasant experiences. It indicates psychosocial problems in children in flood-prone areas. Children cannot overcome psychological problems independently and require mental health intervention for adaptation. A psychosocial intervention programme is essential for children who live in flood-prone areas.KEYWORDS: Childrenseasonal flooddisaster-proneunpleasant experience Disclosure statementNo potential conflict of interest was reported by the author(s).Additional informationFundingThe author(s) reported there is no funding associated with the work featured in this article.Notes on contributorsSusanti NimanSusanti Niman is a mental health nurse on mental health and psychiatric research. MustikasariMustikasari is a Senior Researcher at Universitas Indonesia.Novy Helena DaulimaNovy Helena Daulima is a Senior Researcher at Universitas Indonesia.Dewi GayatriDewi Gayatri is a Senior Researcher at Universitas Indonesia.Timothy RothhaarTimothy Rothhaar is an independent researcher in qualitative psychology.
【摘要】对于生活在洪水易发地区的人们来说,洪水是一种季节性灾害。儿童是弱势群体。灾难会降低人们的适应能力。本研究旨在探讨生活在洪水易发地区的儿童对反复洪水的体验。方法:采用现象学设计对西爪哇Baleendah村进行定性研究。定性现象学研究侧重于儿童经历的细节和方面,这些经历形成了儿童对洪水的意义和理解。采用有目的抽样法抽取15名参与者。入选标准为年龄13-18岁,经历过洪涝灾害,居住在灾害易发区,根据inrisk应用分为中高风险。收集的数据是通过半结构化访谈指南进行的深度访谈。在深入访谈的基础上进行归纳分析,获得主题。结果:15名经历过2-5次以上洪水的儿童(10名女孩,5名男孩)参与了研究。孩子们知道家里会发生季节性洪水。他们认为这是一种不愉快的经历,每个雨季都会重复出现,而且无法改变。本研究有五个主题:关于洪水的知识、经历的感受、解决洪水问题的重点、感受到的问题和群体信仰。结论:反复洪水是儿童的应激源。它们的反应是不愉快的经历。它表明了洪水易发地区儿童的社会心理问题。儿童不能独立克服心理问题,需要心理健康干预以适应。心理社会干预方案对生活在洪水易发地区的儿童至关重要。关键词:儿童季节性洪涝灾害易发不愉快经历披露声明作者未报告潜在利益冲突。其他信息资金作者报告没有与本文所述工作相关的资金。作者简介susanti Niman是一名从事心理健康和精神病学研究的心理健康护士。mustikasari是印度尼西亚大学的高级研究员。Novy Helena Daulima是印度尼西亚大学的高级研究员。Dewi GayatriDewi Gayatri是印度尼西亚大学的高级研究员。Timothy Rothhaar是一位独立的定性心理学研究者。
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引用次数: 0
Community perceptions of causes of violence against young women in Botswana: fuzzy cognitive mapping 博茨瓦纳社区对暴力侵害年轻妇女原因的看法:模糊认知地图
Q4 FAMILY STUDIES Pub Date : 2023-10-16 DOI: 10.1080/17450128.2023.2262413
Iván Sarmiento, Michaela Field, Leagajang Kgakole, Puna Molatlhwa, Indu Girish, Neil Andersson, Anne Cockcroft
ABSTRACTViolence against young women is a problem worldwide. Understanding its causes in a particular setting can inform context-specific interventions. We used Fuzzy cognitive mapping (FCM), a visual method for collating local knowledge about causes of health outcomes, to explore community views of factors that cause or prevent violence against young women in rural communities in southeast Botswana. In three communities, groups of young men, young women, older men, and older women built maps (68 participants and 12 maps in total) of factors they believed increased or decreased the risk of violence against young women. Trained local facilitators guided group sessions, drawing the reported factors as nodes linked by weighted arrows indicating the direction and strength of causal relationships among factors. Fuzzy transitive closure calculated the influence of each factor on others, considering direct and indirect connections. We combined maps by groups of stakeholders and condensed individual factors into categories which emerged from an inductive thematic analysis. The categories labelled conflict in relationships and parenting and family issues had the strongest influences on increasing violence across all maps. These categories were also common intermediaries between other causal categories and violence. The categories labelled women being disrespectful or uncooperative and transactional and intergenerational sex were the third and fourth strongest risk categories overall. Prominent protective concepts included a stronger legal framework and strengthening the role of local traditional leadership, with greater prominence on the maps of older participants. The most influential risk and protective categories were consistent across young men, young women, older men, and older women. FCM was feasible and acceptable with different stakeholders in Botswana. Fuzzy cognitive maps can inform community discussions, for example, of conflictive gender norms, family dynamics or healthier relationships, and are useful to build theories on how to act on the causes of violence against young women.KEYWORDS: Intimate partner violenceviolencegenderparticipatory researchinterpersonal violence AcknowledgmentsWe thank the men and women who contributed their time and knowledge in the FCM sessions. Khalid Omer collaborated in the initial discussion of categories. Sandra Cano checked the digitised maps.Disclosure statementThe authors do not have competing interests to declare.Data availability statementThe data supporting this study’s findings are available with the publication.Ethics reviewThis study is part of a Grand Challenges Canada project (Grant number R-ST-POC-1909–28463), which received ethical approval from the Botswana Ministry of Health under the Health Research and Development Division IRB (Reference HPDME 13/18/1).Additional informationFundingGrand Challenges Canada funded this work under Grant number R-ST-POC-1909-28463.Notes on contributorsIván Sarmiento
针对年轻女性的暴力是一个世界性的问题。在特定环境中了解其原因可以为特定环境的干预措施提供信息。我们使用模糊认知映射(FCM),一种整理当地健康结果原因知识的可视化方法,来探索社区对导致或防止对博茨瓦纳东南部农村社区年轻妇女的暴力行为的因素的看法。在三个社区中,由年轻男性、年轻女性、老年男性和老年女性组成的小组绘制了他们认为增加或减少针对年轻女性的暴力风险的因素的地图(68名参与者,总共12张地图)。训练有素的当地调解员指导小组会议,将报告的因素绘制为节点,用加权箭头连接,表明因素之间因果关系的方向和强度。模糊传递闭包计算每个因素对其他因素的影响,考虑直接和间接联系。我们结合了利益相关者群体的地图,并将个人因素浓缩到从归纳主题分析中出现的类别中。在所有地图上,标有关系冲突、养育子女和家庭问题的类别对暴力增加的影响最大。这些类别也是其他因果类别与暴力之间的常见中介。女性不尊重他人或不合作、交易性行为和代际性行为是第三和第四大风险类别。突出的保护概念包括更强有力的法律框架和加强地方传统领导的作用,这些概念在年长参与者的地图上更为突出。影响最大的风险和保护类别在年轻男性、年轻女性、老年男性和老年女性中是一致的。FCM对博茨瓦纳的不同利益攸关方来说是可行和可接受的。模糊认知地图可以为社区讨论提供信息,例如,关于冲突的性别规范、家庭动态或更健康的关系,并且有助于建立关于如何就暴力侵害年轻妇女的原因采取行动的理论。关键词:亲密伴侣暴力;暴力;性别参与研究;Khalid Omer参与了对分类的初步讨论。桑德拉·卡诺查看了数字化地图。声明作者无竞争利益需要声明。数据可用性声明支持本研究结果的数据可随出版物获得。本研究是加拿大大挑战项目(授权号R-ST-POC-1909-28463)的一部分,已获得博茨瓦纳卫生部卫生研究与发展部IRB(参考文献HPDME 13/18/1)的伦理批准。加拿大大挑战资助了这项工作,授权号为R-ST-POC-1909-28463。contributorsIván SarmientoIván Sarmiento是CIET的独立研究员,传统卫生系统研究小组成员,以及麦吉尔参与式研究(PRAM)的项目管理员。他有20多年与哥伦比亚当地和土著群体合作的经验。他的主要兴趣是促进土著传统医学与西方医学之间的文化间对话,特别是在初级保健方面。他利用模糊认知映射为健康问题的参与式建模程序做出了贡献,并将这些方法应用于8个国家的20多个项目。Michaela Field是一名独立研究人员,拥有麦吉尔大学精神病学硕士学位。她的专长涵盖心理学、精神病学和参与性研究领域。她对心理健康和社会文化影响的交叉点特别感兴趣。她的论文研究了黑人家庭在加拿大montrsamal的首发精神病诊所获得心理社会服务时面临的障碍。她以前的研究经验包括评估由加拿大殖民定居州的土著社区制定和领导的心理健康促进方案,以及与联合国儿童基金会合作开发关于在人道主义环境中培养和评估尊严的工具包。她目前正在支持一项倡议,探索社会歧视对蒙特里萨伊穆斯林社区福祉的影响。Leagajang Kgakole,是一名经验丰富的实地工作协调员,自2007年以来一直在博茨瓦纳与CIET合作。他对当地社区及其文化方式有着深刻的了解,这对他们参与参与式研究至关重要。Puna Molatlhwa自2010年以来一直在博茨瓦纳与CIET合作。 她为南部非洲发展共同体(SADC) 14个国家的研究人员和规划人员协调了CIET的循证规划培训。作为一名经验丰富的实地工作者,她在博茨瓦纳社区培训和监督实地工作者进行定量和定性数据收集。她对防止针对年轻妇女的暴力行为特别感兴趣。作为教育和非政府组织部门的培训和项目管理专家,Indu Girish拥有超过25年的经验。她在博茨瓦纳和印度的工作重点是社区发展、偏远地区妇女和儿童教育、卫生通讯和经济赋权。Neil Andersson是一名家庭医学教授,麦吉尔大学CIET和参与研究中心(PRAM)的主任,以及麦吉尔大学人类发展与福祉研究所的联合主任。他的主要工作重点是为解决不同健康问题的大规模参与性方法开发方法。他特别关注可重复和文化安全的技术,将利益相关者的声音纳入系统审查,研究概念化和共同设计,干预开发,实施和分析。Andersson博士目前的兴趣是社区主导的老年人参与痴呆症预防的随机试验。Anne Cockcroft是麦吉尔大学(PRAM) CIET-Participatory Research的家庭医学教授,拥有呼吸和职业医学背景。在过去的25年里,她在大约20个国家开展了大规模的社区参与性研究项目。她与弱势群体合作,记录他们获得卫生和其他服务的情况和经验,并与服务提供者和决策者合作,利用证据制定公平有效的服务。在过去的十年里,她的工作主要集中在共同设计干预措施,实施它们,并衡量其影响。她目前的工作包括参与研究,以改善尼日利亚包奇州青少年的性健康和生殖健康,以及社区应对COVID-19大流行的影响,以及研究博茨瓦纳以社区为基础的干预措施,以减少青少年个人和人际暴力。
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引用次数: 1
Community perceptions about causes of suicide among young men in Botswana: an analysis based on fuzzy cognitive maps 社区对博茨瓦纳年轻男子自杀原因的看法:基于模糊认知地图的分析
Q4 FAMILY STUDIES Pub Date : 2023-10-11 DOI: 10.1080/17450128.2023.2262941
Iván Sarmiento, Leagajang Kgakole, Puna Molatlhwa, Indu Girish, Neil Andersson, Anne Cockcroft
ABSTRACTSuicide is common in Botswana, particularly among young men. Fuzzy cognitive mapping (FCM) can support participatory research by depicting local stakeholder knowledge about causes of health outcomes. This study used FCM to explore local perceptions about causes of suicide among young men in rural communities close to the capital, Gaborone. In nine sessions, groups of young men, young women, older men, and older women separately mapped their knowledge of factors related to suicide among young men (46 people in total). Two trained facilitators, fluent in the local language, led the group sessions. The maps depicted risk and protective factors as nodes connected by arrows to show causal relationships. Participants also ranked the strength of each link on a scale of one (weakest) to five (strongest). Fuzzy transitive closure calculated the maximum influence of each factor, taking into account all other influences on the map. We combined maps by different stakeholders and grouped the 130 unique factors across the maps into 17 broader categories which emerged from an inductive thematic analysis of all the node labels. Financial difficulties, relationship problems, and family issues were the strongest categories of perceived causes of suicide by young men. Mental health problems played an intermediary role between more distal causes and suicide. There were differences in maps of different gender and age groups, but the strongest influences were consistent across groups. Young women, but not young men, identified men’s lack of self-esteem as a strong cause of suicide. The FCM findings offer a starting point for community discussions to seek local solutions to youth suicide.KEYWORDS: Southern Africamental healthself-harmcommunity interventionsparticipatory researchviolence AcknowledgmentsWe thank the men and women who contributed their time and knowledge in the FCM sessions. Sandra Cano checked the digitised maps.Disclosure statementNo potential conflict of interest was reported by the author(s).Data availability statementThe data supporting this study’s findings are available on request from the corresponding author. According to agreements with participating communities and to ensure the protection of participants and data governance, the requester will need to present a plan for data analysis, and participating communities must authorise their use for the specified purposes.Ethics reviewThis study is part of a Grand Challenges Canada project (Grant number R-ST-POC-1909–28463), which received ethical approval from the Botswana Ministry of Health under the Health Research and Development Division IRB (Reference HPDME 13/18/1).Additional informationFundingThis work was supported by Grand Challenges Canada under Grant number R-ST-POC-1909-28463Notes on contributorsIván SarmientoIván Sarmiento is an independent researcher at CIET, a member of the Groups of Studies in Traditional Health Systems, and the program administrator of Participatory Research
自杀在博茨瓦纳很常见,尤其是年轻男性。模糊认知映射(FCM)可以通过描述当地利益相关者关于健康结果原因的知识来支持参与性研究。本研究使用FCM探讨了当地对首都哈博罗内附近农村社区年轻男性自杀原因的看法。在9次会议中,年轻男性、年轻女性、老年男性和老年女性分别绘制了他们对年轻男性自杀相关因素的了解情况(总共46人)。两名训练有素、能说流利当地语言的主持人主持小组会议。这些地图将风险和保护因素描绘成由箭头连接的节点,以显示因果关系。参与者还将每个环节的强度按1(最弱)到5(最强)进行排序。模糊传递闭包计算每个因素的最大影响,考虑到地图上的所有其他影响。我们结合了不同利益相关者的地图,并将地图上的130个独特因素分组为17个更广泛的类别,这些类别来自对所有节点标签的归纳主题分析。经济困难、关系问题和家庭问题是年轻男性认为自杀的最主要原因。心理健康问题在远端原因和自杀之间起中介作用。不同性别和年龄组的地图存在差异,但最强烈的影响在各组之间是一致的。年轻女性,而不是年轻男性,认为男性缺乏自尊是自杀的主要原因。FCM的调查结果为社区讨论寻求当地解决青年自杀问题的办法提供了一个起点。关键词:南非精神健康、自我伤害、社区干预、参与式研究、暴力致谢我们感谢在FCM会议上贡献时间和知识的男性和女性。桑德拉·卡诺查看了数字化地图。披露声明作者未报告潜在的利益冲突。数据可用性声明支持本研究结果的数据可向通讯作者索取。根据与参与社区的协议,并确保对参与者和数据治理的保护,请求者将需要提交数据分析计划,参与社区必须授权将其用于指定目的。本研究是加拿大大挑战项目(授权号R-ST-POC-1909-28463)的一部分,已获得博茨瓦纳卫生部卫生研究与发展部IRB(参考文献HPDME 13/18/1)的伦理批准。本研究由加拿大大挑战资助,资助号为r - st - poc - 1909.28463 contributorsIván SarmientoIván上的说明Sarmiento是CIET的独立研究员,是传统卫生系统研究小组的成员,也是麦吉尔参与式研究(PRAM)的项目管理员。他有20多年与哥伦比亚当地和土著群体合作的经验。他的主要兴趣是促进土著传统医学与西方医学之间的文化间对话,特别是在初级保健方面。他利用模糊认知映射为健康问题的参与式建模程序做出了贡献,并将这些方法应用于8个国家的20多个项目。Leagajang Kgakole是一名经验丰富的实地工作协调员,自2007年以来一直在博茨瓦纳与CIET合作。他对当地社区及其文化方式有着深刻的了解,这对他们参与参与式研究至关重要。Puna Molatlhwa自2010年以来一直在博茨瓦纳与CIET合作。她为南部非洲发展共同体(SADC) 14个国家的研究人员和规划人员协调了CIET的循证规划培训。作为一名经验丰富的实地工作者,她在博茨瓦纳社区培训和监督实地工作者进行定量和定性数据收集。她对防止针对年轻妇女的暴力行为特别感兴趣。作为教育和非政府组织部门的培训和项目管理专家,Indu Girish拥有超过25年的经验。她在博茨瓦纳和印度的工作重点是社区发展、偏远地区妇女和儿童教育、卫生通讯和经济赋权。Neil Andersson是一名家庭医学教授,麦吉尔大学CIET和参与研究中心(PRAM)的主任,以及麦吉尔大学人类发展与福祉研究所的联合主任。他的主要工作重点是为解决不同健康问题的大规模参与性方法开发方法。 他特别关注可重复和文化安全的技术,将利益相关者的声音纳入系统审查,研究概念化和共同设计,干预开发,实施和分析。Andersson博士目前的兴趣是社区主导的老年人参与痴呆症预防的随机试验。Anne Cockcroft是麦吉尔大学(PRAM) CIET-Participatory Research的家庭医学教授,拥有呼吸和职业医学背景。在过去的25年里,她在大约20个国家开展了大规模的社区参与性研究项目。她与弱势群体合作,记录他们获得卫生和其他服务的情况和经验,并与服务提供者和决策者合作,利用证据制定公平有效的服务。在过去的十年里,她的工作主要集中在共同设计干预措施,实施它们,并衡量其影响。她目前的工作包括参与研究,以改善尼日利亚包奇州青少年的性健康和生殖健康,以及社区应对COVID-19大流行的影响,以及研究博茨瓦纳以社区为基础的干预措施,以减少青少年个人和人际暴力。
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引用次数: 1
Psychosocial aspects in children with transfusion-dependent thalassemia 输血依赖型地中海贫血儿童的社会心理方面
Q4 FAMILY STUDIES Pub Date : 2023-09-20 DOI: 10.1080/17450128.2023.2260601
Diah Kusuma Arumsari, Andi Cahyadi, Mia Ratwita Andarsini, Ferry Efendi, Adwina Nurlita Kusuma Wardhani, Maria Christina Shanty Larasati, I Dewa Gede Ugrasena
ABSTRACTChildren with transfusion-dependent thalassemia experience stressful conditions related to chronic anemia, repeated blood transfusions, and iron chelation adherence. They are vulnerable to emotional and behavioral problems and psychosocial disturbances. An observational evaluation of psychosocial issues in children with TDTs aged 4–18 using Strengths and Difficulties Questionnaires (SDQ). Psychosocial part in children with TDTs often experiences difficulties in childhood under 10 years old, compared to adolescents (11–18 years) for emotional symptoms and conduct problems. Boys and girls had similar psychosocial problems regarding emotional symptoms, conduct problems, hyperactivity-inatttention, peer relationship problems, and prosocial behavior. In a quarter of cases, they had emotional symptoms, conduct, and hyperactivity-inattention issues, especially in younger children. Interestingly, younger children have more problems than adolescence in peer relations even though they are still under strict parental supervision. Difficulties in emotion, conduct, and hyperactivity would affect their relationship life. Children may try to be accepted by their social environment (prosocial) even though they realize that there are problems in their emotional life and peer relationships. Regular screening of the psychosocial aspects should be followed by counseling because regular transfusion and iron chelation are necessary for long-term management.KEYWORDS: Childtransfusion-dependent thalassemiapsychosocial aspectsemotional and conductpeer relationshipprosocial behavior AcknowledgmentsThe author would like to thank all the staff of the Division of Hematology-Oncology and Residents of Pediatrics at the Faculty of Medicine, Universitas Airlangga/Dr. Soetomo General Academic Hospital, Surabaya, East Java, IndonesiaDisclosure statementNo potential conflict of interest was reported by the author(s).Data availability statementThe data that support the findings of this study are available from the corresponding author upon reasonable request.Ethical declarationResearch ethics were obtained from the Health Research Ethics Committee of Clinical Research Unit (CRU) on Dr. Soetomo General Academic Hospital, Surabaya, East Java, Indonesia under the ethics number 0462/KEPK/VIII/2022.Additional informationFundingThis research did not receive financial assistance from sponsors.Notes on contributorsDiah Kusuma ArumsariDiah Kusuma Arumsari, She is a research assistant in Hematology-Oncology Division, Department of Child Health, Dr. Soetomo General Academic Hospital, Surabaya, East Java, Indonesia. She was doing the conceptualization, methodology, writing the manuscript, data sampling and analysis. Email: dka.diah@gmail.comAndi CahyadiAndi Cahyadi, He is a pediatric hematology-oncologist at Hematology Oncology Division, Department of Child Health, Faculty of Medicine, Universitas Airlangga/Dr. Soetomo General Academic Hospital, Surabaya, East Java, Indonesia. He was do
输血依赖型地中海贫血儿童经历与慢性贫血、反复输血和铁螯合依从性相关的应激条件。他们容易受到情绪和行为问题以及社会心理障碍的影响。运用优势与困难问卷(SDQ)对4-18岁TDTs儿童的社会心理问题进行观察性评估。与青少年(11-18岁)相比,ttd儿童的心理社会部分往往在10岁以下的儿童时期遇到情绪症状和行为问题方面的困难。男孩和女孩在情绪症状、行为问题、多动-注意力不集中、同伴关系问题和亲社会行为方面有相似的社会心理问题。在四分之一的病例中,他们有情绪症状、行为和多动症——注意力不集中问题,尤其是在年幼的儿童中。有趣的是,年幼的孩子在同伴关系中比青少年有更多的问题,即使他们仍然在父母的严格监督下。情感、行为和多动方面的困难会影响他们的关系生活。孩子们可能会试图被他们的社会环境所接受(亲社会),即使他们意识到他们的情感生活和同伴关系存在问题。定期进行心理社会方面的筛查后应进行咨询,因为定期输血和铁螯合对于长期治疗是必要的。关键词:儿童输血依赖型地中海贫血心理社会方面情感与同伴关系亲社会行为致谢作者感谢埃尔朗加大学医学院血液学肿瘤科和儿科住院医师的所有工作人员。印度尼西亚东爪哇泗水Soetomo综合学术医院披露声明作者未报告潜在的利益冲突。数据可得性声明支持本研究结果的数据可根据通讯作者的合理要求获得。伦理声明:研究伦理从印度尼西亚东爪哇泗水Soetomo博士综合学术医院临床研究单位(CRU)健康研究伦理委员会获得,伦理号为0462/KEPK/VIII/2022。本研究没有得到赞助商的经济资助。作者简介diah Kusuma Arumsari diah Kusuma Arumsari,她是印度尼西亚东爪哇泗水Soetomo博士综合学术医院儿童健康部血液肿瘤科的研究助理。她负责概念化、方法论、撰写手稿、数据取样和分析。Email: dka.diah@gmail.comAndi CahyadiAndi Cahyadi,他是一名儿科血液肿瘤学家,在血液肿瘤学部门,儿童健康,医学院,埃尔朗加大学/博士。Soetomo综合学术医院,泗水,东爪哇,印度尼西亚。他负责构思、方法论、撰写手稿和数据分析。Ratwita andarsinia Ratwita Andarsini,她是一名儿科血液肿瘤学家,也是Airlangga大学医学院儿童健康系血液肿瘤学部门的负责人。Soetomo综合学术医院,泗水,东爪哇,印度尼西亚。她负责手稿的监督、验证和临床方面的审查。Email: mia-r-a@fk.unair.ac.idFerry Efendi ferry Efendi,博士,印度尼西亚东爪哇泗水市埃尔朗加大学护理学院社区卫生护理硕士和博士。他在做数据分析,回顾心理社会方面,并讨论结果。Email: ferry-e@fkp.unair.ac.idAdwina Nurlita Kusuma Wardhani, Nurlita Kusuma Wardhani,她是Airlangga大学医学院儿童健康系血液肿瘤科的儿科医生。Soetomo综合学术医院,泗水,东爪哇,印度尼西亚。她在做数据记录和采样。maria Christina Shanty Larasati,她是Airlangga大学医学院儿童健康系血液肿瘤学部门的儿科血液肿瘤学家/博士。Soetomo综合学术医院,泗水,东爪哇,印度尼西亚。她是埃尔朗加大学的博士生。Dewa Gede UgrasenaI Dewa Gede Ugrasena,他是Airlangga大学医学院儿童健康系血液肿瘤学教授/博士。Soetomo综合学术医院,泗水,东爪哇,印度尼西亚。他负责监督和审稿。电子邮件:ugrasena56@gmail.com
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Vulnerable Children and Youth Studies
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