Perceptions and experiences of exercise participation among persons with amyotrophic lateral sclerosis: A qualitative study

IF 8 2区 医学 Q1 HOSPITALITY, LEISURE, SPORT & TOURISM Qualitative Research in Sport Exercise and Health Pub Date : 2022-10-06 DOI:10.1080/2159676X.2022.2128397
Kristiann E. Man, Laura Sawula, B. Gurd, S. Taylor, M. Allen, J. Tomasone
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Abstract

ABSTRACT Our work sought to understand perceptions and experiences of exercise participation from the perspectives of persons living with amyotrophic lateral sclerosis (ALS). Data were collected through semi-structured interviews with seven participants with ALS. Using an interpretivist approach, we engaged in reflexive thematic analysis. Two overarching themes were identified: 1) negotiating exercise participation is complex and 2) the environmental conditions influencing access to exercise. Within the first overarching theme, three key subthemes were found: i) the psycho-emotional experience of ALS, ii) reconceptualising exercise as medicine, and iii) antecedents to exercise participation. Further, three additional subthemes arose within the overarching theme of environmental conditions influencing access to exercise: i) location and access matter, ii) the multifaceted nature of care, and iii) aspects of quality exercise delivery. Findings offer novel insights on the complexity of navigating exercise participation for persons with ALS. Although exercise may be beneficial for individuals with ALS, healthcare professionals, researchers, and policymakers need to consider adopting a cautious and individualised approach when contemplating exercise participation for persons with ALS.
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肌萎缩性侧索硬化症患者运动参与的感知和体验:一项定性研究
摘要:我们的工作试图从肌萎缩侧索硬化症(ALS)患者的角度来理解对运动参与的看法和体验。数据是通过对七名ALS参与者的半结构化访谈收集的。使用解释主义方法,我们进行了反身主题分析。确定了两个总体主题:1)参与演习的谈判很复杂;2)影响演习机会的环境条件。在第一个总体主题中,发现了三个关键的子主题:i)ALS的心理-情感体验,ii)将运动重新定义为医学,以及iii)参与运动的前因。此外,在影响锻炼机会的环境条件这一总体主题中,还出现了三个额外的子主题:i)地点和获取问题,ii)护理的多方面性质,以及iii)高质量锻炼提供的各个方面。研究结果为ALS患者导航运动参与的复杂性提供了新的见解。尽管运动可能对ALS患者有益,但医疗保健专业人员、研究人员和政策制定者在考虑ALS患者的运动参与时,需要考虑采取谨慎和个性化的方法。
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来源期刊
CiteScore
10.60
自引率
10.20%
发文量
36
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